Establishing an online resource to facilitate global collaboration and inclusion of underrepresented populations: Experience from the MJFF Global Genetic Parkinson’s Disease Project

• Eva-Juliane Vollstedt,

  Roles Conceptualization, Data curation, Formal analysis, Investigation, Methodology, Project administration, Resources, Software, Visualization, Writing – original draft, Writing – review & editing

  Affiliation Institute of Neurogenetics, University of Luebeck, Luebeck, Germany

  https://orcid.org/0000-0002-6898-9201

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• Harutyun Madoev,

  Roles Data curation, Software, Writing – review & editing

  Affiliation Institute of Neurogenetics, University of Luebeck, Luebeck, Germany

  https://orcid.org/0000-0001-5360-5319

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• Anna Aasly,

  Roles Resources, Writing – review & editing

  Affiliation Department of Neuromedicine and Movement Science, Norwegian University of Science and Technology, Trondheim, Norway

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• Azlina Ahmad-Annuar,

  Roles Resources, Writing – review & editing

  Affiliation Department of Biomedical Science, Faculty of Medicine, University of Malaya, Kuala Lumpur, Malaysia

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• Bashayer Al-Mubarak,

  Roles Resources, Writing – review & editing

  Affiliation Center for Genomic Medicine, Research Centre, King Faisal Specialist Hospital and Research Center, Riyadh, Saudi Arabia

  https://orcid.org/0000-0001-9716-3241

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• Roy N. Alcalay,

  Roles Resources, Writing – review & editing

  Affiliations Department of Neurology, Columbia University, New York, New York, United States of America, Neurological Institute, Tel-Aviv Medical Center, Tel-Aviv, Israel; Sackler School of Medicine, Sagol School of Neuroscience, Tel-Aviv University, Tel-Aviv, Israel

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• Victoria Alvarez,

  Roles Resources, Writing – review & editing

  Affiliations Laboratório de Genética, Hospital Universitario Central de Asturias, Oviedo, Asturias, Spain, Instituto de Investigación Sanitaria del Principado de Asturias (ISPA), Oviedo, Spain

  https://orcid.org/0000-0002-1916-2523

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• Ignacio Amorin,

  Roles Resources, Writing – review & editing

  Affiliation Universidad de la Republica Uruguay, Montevideo, Uruguay

  https://orcid.org/0000-0003-2700-1989

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• Grazia Annesi,

  Roles Resources, Writing – review & editing

  Affiliation Institute of Biomedical Research and Innovation, National Research Council, Cosenza, Italy

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• David Arkadir,

  Roles Resources, Writing – review & editing

  Affiliation Department of Neurology, Hadassah Medical Center and the Hebrew University, Jerusalem, Israel

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• Soraya Bardien,

  Roles Resources, Writing – review & editing

  Affiliations Division of Molecular Biology and Human Genetics, Faculty of Medicine and Health Sciences, Stellenbosch University, Cape Town, South Africa, South African Medical Research Council/Stellenbosch University Genomics of Brain Disorders Research Unit, Stellenbosch University, Cape Town, South Africa

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• Roger A. Barker,

  Roles Conceptualization, Resources, Writing – review & editing

  Affiliation Department of Clinical Neurosciences, University of Cambridge, Cambridge, United Kingdom

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• Melinda Barkhuizen,

  Roles Resources, Writing – review & editing

  Affiliation DST/NWU Preclinical Drug Development Platform, North-West University, Potchefstroom, North-West, South Africa

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• A. Nazli Basak,

  Roles Resources, Writing – review & editing

  Affiliation Suna and Inan Kiraç Foundation, Neurodegeneration Research Laboratory, KUTTAM, School of Medicine, Koç University, Istanbul, Turkey

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• Vincenzo Bonifati,

  Roles Resources, Writing – review & editing

  Affiliation Department of Clinical Genetics, Erasmus MC University Medical Center Rotterdam, Rotterdam, The Netherlands

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• Agnita Boon,

  Roles Resources, Writing – review & editing

  Affiliation Department of Neurology, Erasmus MC, University Medical Center Rotterdam, Rotterdam, Netherlands

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• Laura Brighina,

  Roles Resources, Writing – review & editing

  Affiliation Department of Neurology, Milan Center for Neuroscience, University of Milano-Bicocca/San Gerardo Hospital, Monza, Monza Brianza, Italy

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• Kathrin Brockmann,

  Roles Resources, Writing – review & editing

  Affiliations Department of Neurodegenerative Diseases, University of Tuebingen, Tuebingen, Baden Wuerttemberg, Germany, Hertie Institute for Clinical Brain Research and German Centre for Neurodegenerative Diseases, Tuebingen, Baden Wuerttemberg, Germany

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• Andrea Carmine Belin,

  Roles Resources, Writing – review & editing

  Affiliation Department of Neuroscience, Karolinska Institutet, Stockholm, Sweden

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• Jonathan Carr,

  Roles Resources, Writing – review & editing

  Affiliations South African Medical Research Council/Stellenbosch University Genomics of Brain Disorders Research Unit, Stellenbosch University, Cape Town, South Africa, Division of Neurology, Department of Medicine, Faculty of Medicine and Health Sciences, Stellenbosch University, Cape Town, South Africa

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• Jordi Clarimon,

  Roles Resources, Writing – review & editing

  Affiliations Department of Neurology, Biomedical Research Institute IIB-Sant Pau, Hospital de la Santa Creu i Sant Pau, Barcelona, Spain, Centro de Investigación Biomédica en Red sobre Enfermedades Neurodegenerativas (CIBERNED), Madrid, Spain

  ⨯
• Mario Cornejo-Olivas,

  Roles Resources, Writing – review & editing

  Affiliations Neurogenetics Research Center, Instituto Nacional de Ciencias Neurologicas, Lima, Peru, Center for Global Health, Universidad Peruana Cayetano Heredia, Lima, Peru

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• Leonor Correia Guedes,

  Roles Resources, Writing – review & editing

  Affiliations Centro de Estudos Egas Moniz, Faculdade de Medicina, Universidade de Lisboa, Lisboa, Portugal, Instituto de Medicina Molecular João Lobo Antunes, Faculty of Medicine, University of Lisbon, Lisbon, Portugal

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• Jean-Christophe Corvol,

  Roles Resources, Writing – review & editing

  Affiliation Paris Brain Institute—ICM, Inserm, CNRS, Assistance Publique Hôpitaux de Paris, Pitié-Salpêtrière Hospital, Department of Neurology, Sorbonne University, Paris, France

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• David Crosiers,

  Roles Resources, Writing – review & editing

  Affiliations Department of Neurology, Antwerp University Hospital, Edegem, Belgium, Translational Neurosciences, Born Bunge Institute, Faculty of Medicine and Health Sciences, University of Antwerp, Wilrijk, Antwerp, Belgium, Center for Molecular Neurology, VIB, Wilrijk, Antwerp, Belgium

  https://orcid.org/0000-0002-7881-4499

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• Joana Damásio,

  Roles Resources, Writing – review & editing

  Affiliations Department of Neurology, Hospital de Santo António—Centro Hospitalar Universitário do Porto, Porto, Portugal, UnIGENe, Instituto de Biologia Molecular e Celular (IBMC), Instituto de Investigação e Inovação em Saúde (i3S), Universidade do Porto, Porto, Portugal

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• Parimal Das,

  Roles Resources, Writing – review & editing

  Affiliation Centre for Genetic Disorders, Institute of Science, Banaras Hindu University, Varanasi, Uttar Pradesh, India

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• Patricia de Carvalho Aguiar,

  Roles Resources, Writing – review & editing

  Affiliations Hospital Israelita Albert Einstein, São Paulo, Brazil, Department of Neurology and Neurosurgery, Universidade Federal de São Paulo, São Paulo, Brazil

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• Anna De Rosa,

  Roles Resources, Writing – review & editing

  Affiliation Department of Neurosciences and Reproductive and Odontostomatological Sciences, Federico II University, Naples, Italy

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• Jolanta Dorszewska,

  Roles Data curation, Writing – review & editing

  Affiliation Laboratory of Neurobiology, Department of Neurology, Poznan University of Medical Sciences, Poznan, Poland

  ⨯
• Sibel Ertan,

  Roles Resources, Writing – review & editing

  Affiliation Department of Neurology, School of Medicine, Koç University, Istanbul, Turkey

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• Rosangela Ferese,

  Roles Resources, Writing – review & editing

  Affiliation IRCCS Neuromed, Localita‘ Camerelle, Pozzilli, Isernia, Italy

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• Joaquim Ferreira,

  Roles Resources, Writing – review & editing

  Affiliations Translational Neurosciences, Born Bunge Institute, Faculty of Medicine and Health Sciences, University of Antwerp, Wilrijk, Antwerp, Belgium, Laboratory of Clinical Pharmacology and Therapeutics, University of Lisbon, Lisbon, Portugal

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• Emilia Gatto,

  Roles Resources, Writing – review & editing

  Affiliation Movement Disorders, Department of Neurology, Instituto de Neurosciencias Buenos Aires, Buenos Aires, Argentina

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• Gençer Genç,

  Roles Resources, Writing – review & editing

  Affiliation Department of Neurology, University of Health Sciences, Şişli Hamidiye Etfal Training and Research Hospital, İstanbul, Turkey

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• Nir Giladi,

  Roles Resources, Writing – review & editing

  Affiliation Neurological Institute, Tel-Aviv Medical Center, Tel-Aviv, Israel; Sackler School of Medicine, Sagol School of Neuroscience, Tel-Aviv University, Tel-Aviv, Israel

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• Pilar Gómez-Garre,

  Roles Resources, Writing – review & editing

  Affiliations Unidad de Trastornos del Movimiento, Servicio de Neurología y Neurofisiología Clínica, Instituto de Biomedicina de Sevilla, Hospital Universitario Virgen del Rocío/CSIC/Universidad de Sevilla, Seville, Spain, Centro de Investigación Biomédica en Red sobre Enfermedades Neurodegenerativas (CIBERNED), Madrid, Spain

  ⨯
• Hasmet Hanagasi,

  Roles Resources, Writing – review & editing

  Affiliation Department of Neurology, Istanbul Faculty of Medicine, Istanbul University, Istanbul, Turkey

  ⨯
• Nobutaka Hattori,

  Roles Resources, Writing – review & editing

  Affiliation Department of Neurology, Juntendo University School of Medicine, Bunkyo, Tokyo, Japan

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• Faycal Hentati,

  Roles Resources, Writing – review & editing

  Affiliation Mongi Ben Hmida National Institute of Neurology, Tunis, Tunisia

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• Dorota Hoffman-Zacharska,

  Roles Resources, Writing – review & editing

  Affiliation Institute of Genetics and Biotechnology, Faculty of Biology, University of Warsaw, Warsaw, Poland

  https://orcid.org/0000-0001-7367-512X

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• Sergey N. Illarioshkin,

  Roles Resources, Writing – review & editing

  Affiliation Department of Neurogenetics, Research Center of Neurology, Moscow, Russia

  ⨯
• Joseph Jankovic,

  Roles Resources, Writing – review & editing

  Affiliation Parkinson’s Disease Center and Movement Disorders Clinic, Department of Neurology, Baylor College of Medicine, Houston, Texas, United States of America

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• Silvia Jesús,

  Roles Resources, Writing – review & editing

  Affiliations Unidad de Trastornos del Movimiento, Servicio de Neurología y Neurofisiología Clínica, Instituto de Biomedicina de Sevilla, Hospital Universitario Virgen del Rocío/CSIC/Universidad de Sevilla, Seville, Spain, Centro de Investigación Biomédica en Red sobre Enfermedades Neurodegenerativas (CIBERNED), Madrid, Spain

  ⨯
• Valtteri Kaasinen,

  Roles Resources, Writing – review & editing

  Affiliations Neurocenter, Turku University Hospital, Turku, Finland, Department of Neurology, Satasairaala Hospital, Pori, Finland, Clinical Neurosciences, Faculty of Medicine, University of Turku, Turku, Finland

  ⨯
• Anneke Kievit,

  Roles Resources, Writing – review & editing

  Affiliation Department of Clinical Genetics, Erasmus MC University Medical Center Rotterdam, Rotterdam, The Netherlands

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• Peter Klivenyi,

  Roles Resources, Writing – review & editing

  Affiliation Department of Neurology, University of Szeged, Szeged, Hungary

  https://orcid.org/0000-0002-5389-3266

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• Vladimir Kostic,

  Roles Resources, Writing – review & editing

  Affiliation Department for Neurodegeneration, Clinic for Neurology UCCS, Medical Faculty, University of Belgrade, Belgrade, Serbia

  ⨯
• Dariusz Koziorowski,

  Roles Conceptualization, Resources, Writing – review & editing

  Affiliation Department of Neurology, Faculty of Health Science, Medical University in Warsaw, Warsaw, Poland

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• Andrea A. Kühn,

  Roles Resources, Writing – review & editing

  Affiliation Movement Disorder and Neuromodulation Unit, Charité, Department of Neurology, Campus Mitte, Universitätsmedizin Berlin, Berlin, Germany

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• Anthony E. Lang,

  Roles Resources, Writing – review & editing

  Affiliation Edmond J. Safra Program in Parkinson’s Disease, Division of Neurology, Department of Medicine, Toronto Western Hospital, University of Toronto, Toronto, Ontario, Canada

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• Shen-Yang Lim,

  Roles Resources, Writing – review & editing

  Affiliation Division of Neurology, Department of Medicine, and the Mah Pooi Soo & Tan Chin Nam Centre for Parkinson’s & Related Disorders, Faculty of Medicine, University of Malaya, Kuala Lumpur, Malaysia

  ⨯
• Chin-Hsien Lin,

  Roles Resources, Writing – review & editing

  Affiliation Department of Neurology, National Taiwan University Hospital, National Taiwan University College of Medicine, Taipei, Taiwan

  ⨯
• Katja Lohmann,

  Roles Resources, Writing – review & editing

  Affiliation Institute of Neurogenetics, University of Luebeck, Luebeck, Germany

  ⨯
• Vladana Markovic,

  Roles Resources, Writing – review & editing

  Affiliation Department for Neurodegeneration, Clinic for Neurology UCCS, Medical Faculty, University of Belgrade, Belgrade, Serbia

  ⨯
• Mika Henrik Martikainen,

  Roles Resources, Writing – review & editing

  Affiliations Neurocenter, Turku University Hospital, Turku, Finland, Clinical Neurosciences, Faculty of Medicine, University of Turku, Turku, Finland, Pontificia Universidad Católica Argentina (UCA), Buenos Aires, Argentina

  ⨯
• George Mellick,

  Roles Resources, Writing – review & editing

  Affiliation Griffith Institute for Drug Discovery (GRIDD), School of Environment and Science, Griffith University, Brisbane, Queensland, Australia

  ⨯
• Marcelo Merello,

  Roles Resources, Writing – review & editing

  Affiliations Pontificia Universidad Católica Argentina (UCA), Buenos Aires, Argentina, Sección Movimientos Anormales, Departamento de Neurociencias, Fleni, Buenos Aires, Argentina, Argentine National Scientific and Technological Research Council (CONICET), Buenos Aires, Argentina

  ⨯
• Lukasz Milanowski,

  Roles Resources, Writing – review & editing

  Affiliation Department of Neurology, Faculty of Health Science, Medical University in Warsaw, Warsaw, Poland

  https://orcid.org/0000-0003-4197-8518

  ⨯
• Pablo Mir,

  Roles Resources, Writing – review & editing

  Affiliations Unidad de Trastornos del Movimiento, Servicio de Neurología y Neurofisiología Clínica, Instituto de Biomedicina de Sevilla, Hospital Universitario Virgen del Rocío/CSIC/Universidad de Sevilla, Seville, Spain, Centro de Investigación Biomédica en Red sobre Enfermedades Neurodegenerativas (CIBERNED), Madrid, Spain

  ⨯
• Özgür Öztop-Çakmak,

  Roles Resources, Writing – review & editing

  Affiliation Department of Neurology, School of Medicine, Koç University, Istanbul, Turkey

  ⨯
• Márcia Mattos Gonçalves Pimentel,

  Roles Resources, Writing – review & editing

  Affiliation Department of Genetics, Institute of Biology Roberto Alcantara Gomes, State University of Rio de Janeiro, Rio de Janeiro, Brazil

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• Teeratorn Pulkes,

  Roles Resources, Writing – review & editing

  Affiliation Division of Neurology, Department of Medicine, Ramathibodi Hospital, Mahidol University, Rajthevi, Bangkok, Thailand

  ⨯
• Andreas Puschmann,

  Roles Resources, Writing – review & editing

  Affiliations Department of Neurology, Lund University, Lund, Sweden, Department of Neurology, Skåne University Hospital, Lund, Sweden

  ⨯
• Ekaterina Rogaeva,

  Roles Resources, Writing – review & editing

  Affiliation Tanz Centre for Research in Neurodegenerative Diseases, University of Toronto, Toronto, ON, Canada

  ⨯
• Esther M. Sammler,

  Roles Resources, Writing – review & editing

  Affiliations Medical Research Council Protein Phosphorylation and Ubiquitylation Unit, University of Dundee, Dundee, United Kingdom, Molecular and Clinical Medicine, Ninewells Hospital and Medical School, University of Dundee, Dundee, United Kingdom

  https://orcid.org/0000-0003-3218-7116

  ⨯
• Maria Skaalum Petersen,

  Roles Resources, Writing – review & editing

  Affiliations Centre of Health Science, University of the Faroe Islands, Tórshavn, Faroe Islands, Department of Occupational Medicine and Public Health, The Faroese Hospital System, Tórshavn, Faroe Islands

  ⨯
• Matej Skorvanek,

  Roles Resources, Writing – review & editing

  Affiliations Pavol Jozef Šafárik University in Košice, Košice, Slovakia, Department of Neurology, University Hospital L. Pasteur, Kosice, Slovakia

  ⨯
• Mariana Spitz,

  Roles Resources, Writing – review & editing

  Affiliation Neurology Service, State University of Rio de Janeiro, Rio de Janeiro, Rio de Janeiro, Brazil

  https://orcid.org/0000-0001-7548-2313

  ⨯
• Oksana Suchowersky,

  Roles Resources, Writing – review & editing

  Affiliation Department of Medicine, Medical Genetics and Pediatrics, University of Alberta, Edmonton, Alberta, Canada

  ⨯
• Ai Huey Tan,

  Roles Resources, Writing – review & editing

  Affiliation Division of Neurology, Department of Medicine, and the Mah Pooi Soo & Tan Chin Nam Centre for Parkinson’s & Related Disorders, Faculty of Medicine, University of Malaya, Kuala Lumpur, Malaysia

  ⨯
• Pichet Termsarasab,

  Roles Resources, Writing – review & editing

  Affiliation Division of Neurology, Department of Medicine, Ramathibodi Hospital, Mahidol University, Rajthevi, Bangkok, Thailand

  ⨯
• Avner Thaler,

  Roles Resources, Writing – review & editing

  Affiliation Neurological Institute, Tel-Aviv Medical Center, Tel-Aviv, Israel; Sackler School of Medicine, Sagol School of Neuroscience, Tel-Aviv University, Tel-Aviv, Israel

  ⨯
• Vitor Tumas,

  Roles Resources, Writing – review & editing

  Affiliation Behavioral and Movement Disorders Section, Ribeirão Preto Medical School, University of São Paulo, São Paulo, Brazil

  ⨯
• Enza Maria Valente,

  Roles Resources, Writing – review & editing

  Affiliations Department of Molecular Medicine, University of Pavia, Pavia, Italy, Neurogenetics Research Centre, IRCCS Mondino Foundation, Pavia, Italy

  ⨯
• Bart van de Warrenburg,

  Roles Resources, Writing – review & editing

  Affiliation Department of Neurology, Donders Institute for Brain, Cognition, and Behavior, Radboud University Medical Centre, Nijmegen, The Netherlands

  ⨯
• Caroline H. Williams-Gray,

  Roles Resources, Writing – review & editing

  Affiliation Department of Clinical Neurosciences, University of Cambridge, Cambridge, United Kingdom

  ⨯
• Ruey-Mei Wu,

  Roles Resources, Writing – review & editing

  Affiliation Department of Neurology, National Taiwan University Hospital, National Taiwan University College of Medicine, Taipei, Taiwan

  ⨯
• Baorong Zhang,

  Roles Resources, Writing – review & editing

  Affiliation Department of Neurology, Second Affiliated Hospital, College of Medicine, Zhejiang University, Hangzhou, Zhejiang, China

  ⨯
• Alexander Zimprich,

  Roles Resources, Writing – review & editing

  Affiliation Department of Neurology, Medical University, Vienna, Austria

  ⨯
• Justin Solle,

  Roles Supervision, Writing – review & editing

  Affiliation The Michael J. Fox Foundation for Parkinson’s Research, New York, NY, United States of America

  ⨯
• Shalini Padmanabhan,

  Roles Conceptualization, Methodology, Supervision, Writing – review & editing

  Affiliation The Michael J. Fox Foundation for Parkinson’s Research, New York, NY, United States of America

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•  [ ... ],
• Christine Klein

  Roles Conceptualization, Formal analysis, Funding acquisition, Investigation, Methodology, Resources, Supervision, Writing – original draft, Writing – review & editing

  * E-mail: christine.klein@neuro.uni-luebeck.de

  Affiliation Institute of Neurogenetics, University of Luebeck, Luebeck, Germany

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