PONE-D-23-43273Management of food socialization for children with Prader-Willi Syndrome: An exploration study in MalaysiaPLOS ONE

Dear Dr. Wan,

Thank you for submitting your manuscript to PLOS ONE. After careful consideration, we feel that it has merit but does not fully meet PLOS ONE’s publication criteria as it currently stands. Therefore, we invite you to submit a revised version of the manuscript that addresses the points raised during the review process.

Dear authors,

You have to incorporate the suggestions of the reviewers before considering for further publication processes. 

With regards,

Ranjit

Please submit your revised manuscript by Apr 18 2024 11:59PM. If you will need more time than this to complete your revisions, please reply to this message or contact the journal office at plosone@plos.org. When you're ready to submit your revision, log on to https://www.editorialmanager.com/pone/ and select the 'Submissions Needing Revision' folder to locate your manuscript file.

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We look forward to receiving your revised manuscript.

Kind regards,

Ranjit Kumar Dehury

Academic Editor

PLOS ONE

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2. Thank you for stating the following financial disclosure: 

This study is a part of the Hubert Curien Partnership France-Malaysia Hibiscus (PHC Hibiscus) Grant titled “The Socialization of eating practices in children with Prader-Willi syndrome” (MYPAIR/1/2020/SS05/TAYLOR/1), funded by Ministry of Higher Education (MOHE), Ministry of Europe and Foreign Affairs (MEAE) and Ministry of National Education, Higher Education and Research (MESRI),  France, which is a mirror study of “Socialisation des Pratiques alimentaires des Enfants avec un Syndrôme Prader-Willi” (SoPAP – translation Socialisation of Food Practices of Children with Prader-Willi Syndrome). The  URL: https://www.moe.gov.my/en/pemberitahuan/media-statement/deklarasi-bersama-mengenai-pelancaran-rasmi-perkongsian-penyelidikan-hubert-curien-malaysia-perancis. The funder plays an important role in supporting the research direction and publication requirement.

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Additional Editor Comments:

Dear authors,

You have to incorporate the suggestions of the reviewers before considering for further publication processes.

With regards,

Ranjit

[Note: HTML markup is below. Please do not edit.]

Reviewers' comments:

Reviewer's Responses to Questions

Comments to the Author

1. Is the manuscript technically sound, and do the data support the conclusions?

The manuscript must describe a technically sound piece of scientific research with data that supports the conclusions. Experiments must have been conducted rigorously, with appropriate controls, replication, and sample sizes. The conclusions must be drawn appropriately based on the data presented.

Reviewer #1: Yes

Reviewer #2: Yes

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2. Has the statistical analysis been performed appropriately and rigorously?

Reviewer #1: N/A

Reviewer #2: N/A

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3. Have the authors made all data underlying the findings in their manuscript fully available?

The PLOS Data policy requires authors to make all data underlying the findings described in their manuscript fully available without restriction, with rare exception (please refer to the Data Availability Statement in the manuscript PDF file). The data should be provided as part of the manuscript or its supporting information, or deposited to a public repository. For example, in addition to summary statistics, the data points behind means, medians and variance measures should be available. If there are restrictions on publicly sharing data—e.g. participant privacy or use of data from a third party—those must be specified.

Reviewer #1: No

Reviewer #2: Yes

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4. Is the manuscript presented in an intelligible fashion and written in standard English?

PLOS ONE does not copyedit accepted manuscripts, so the language in submitted articles must be clear, correct, and unambiguous. Any typographical or grammatical errors should be corrected at revision, so please note any specific errors here.

Reviewer #1: Yes

Reviewer #2: Yes

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5. Review Comments to the Author

Please use the space provided to explain your answers to the questions above. You may also include additional comments for the author, including concerns about dual publication, research ethics, or publication ethics. (Please upload your review as an attachment if it exceeds 20,000 characters)

Reviewer #1: Wan and colleagues seek to better understand the strategies used by families of those with Prader-Willi syndrome (PWS) to manage the disorder. They report on food socialization and cultural aspects in Malaysia that have important impacts on managing food intake and behavior in individuals with PWS. Drawing from interviews and observation of eight families, the authors identify common food management strategies used by families in everyday life.

Critique:

This is a generally well-written manuscript that explores a relatively under-appreciated aspect in the management of PWS – how families, in the context of their culture, apply the information and guidelines they are given from medical professionals, and adapt it to their individual families. It is important to understand the real-world strategies that families use to manage PWS, which may or may not be fully aligned with the guidance they receive from health care professionals.

Specific comments:

The Introduction is long and should be streamlined; for example, while the description of familialisation and discussion of Malaysian culture and aspects of food/living arrangements are important for understanding the context of the paper, details on the stages of food consumption in children (paragraph beginning at line 138) is not essential and can be shortened or eliminated, and the discussion of the history of PWS support in the country could be much more concise.

More detail should be provided on the methods used for thematic analysis – including, how 'significant statements' were determined, how themes were generated, and whether a single investigator or a collaborative process was used, etc.

The discussion should include a section on the limitations of the study, for example, the families involved in the study may not be representative of the broader PWS population in Malaysia, the limitations of the interview process and observing a meal in the setting of a behavioral lab, etc.

Minor edits/comments:

Prader-Willi syndrome should be spelled out once and the abbreviation (PWS) indicated, then “PWS” should be used throughout the manuscript

Line 55 – While growth hormone improves growth and body composition, there is no evidence (known to this reviewer) that its use alters the progression of the nutritional phases – please provide evidence for this statement or revise.

Lines 57-61 Please clarify – a nasogastric tube is generally considered a type of tube feeding, but, as written, these sentences imply that it is not.

Line 74-75 – The efficacy of behavioral management interventions for features of PWS such as food stealing, overeating and temper outburst has been limited as per most reports, in contrast to the statement that “Interventions such as rewards systems…..have been effective” Additional evidence should be provided for this statement, or it should be modified to reflect the mixed findings in the literature.

Lines 124-125 – please reword “or in what takes them at distance” – - the meaning isn’t clear.

Reviewer #2: 1. Introduction needs to be re-written and to be edited suitably.

2. Methodology needs to be corrected

3. Add the reference letter for ethical approval.

4. Grammatical errors

5. Table-3 legends are confusion.

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Reviewer #1: No

Reviewer #2: Yes: Amitesh Narayan

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Attachments

Attachment

Submitted filename: PONE-D-23-43273_reviewer-1.pdf

PONE-D-23-43273R1Management of food socialization for children with Prader-Willi Syndrome: An exploration study in MalaysiaPLOS ONE

Dear Dr. Wan,

Thank you for submitting your manuscript to PLOS ONE. After careful consideration, we feel that it has merit but does not fully meet PLOS ONE’s publication criteria as it currently stands. Therefore, we invite you to submit a revised version of the manuscript that addresses the points raised during the review process.

==============================

ACADEMIC EDITOR: The article needs minor revision before further consideration according to the reviewers.==============================

Please submit your revised manuscript by Jul 20 2024 11:59PM. If you will need more time than this to complete your revisions, please reply to this message or contact the journal office at plosone@plos.org. When you're ready to submit your revision, log on to https://www.editorialmanager.com/pone/ and select the 'Submissions Needing Revision' folder to locate your manuscript file.

Please include the following items when submitting your revised manuscript:

• A rebuttal letter that responds to each point raised by the academic editor and reviewer(s). You should upload this letter as a separate file labeled 'Response to Reviewers'.
• A marked-up copy of your manuscript that highlights changes made to the original version. You should upload this as a separate file labeled 'Revised Manuscript with Track Changes'.
• An unmarked version of your revised paper without tracked changes. You should upload this as a separate file labeled 'Manuscript'.

If you would like to make changes to your financial disclosure, please include your updated statement in your cover letter. Guidelines for resubmitting your figure files are available below the reviewer comments at the end of this letter.

If applicable, we recommend that you deposit your laboratory protocols in protocols.io to enhance the reproducibility of your results. Protocols.io assigns your protocol its own identifier (DOI) so that it can be cited independently in the future. For instructions see: https://journals.plos.org/plosone/s/submission-guidelines#loc-laboratory-protocols. Additionally, PLOS ONE offers an option for publishing peer-reviewed Lab Protocol articles, which describe protocols hosted on protocols.io. Read more information on sharing protocols at https://plos.org/protocols?utm_medium=editorial-email&utm_source=authorletters&utm_campaign=protocols.

We look forward to receiving your revised manuscript.

Kind regards,

Ranjit Kumar Dehury

Academic Editor

PLOS ONE

Journal Requirements:

Please review your reference list to ensure that it is complete and correct. If you have cited papers that have been retracted, please include the rationale for doing so in the manuscript text, or remove these references and replace them with relevant current references. Any changes to the reference list should be mentioned in the rebuttal letter that accompanies your revised manuscript. If you need to cite a retracted article, indicate the article’s retracted status in the References list and also include a citation and full reference for the retraction notice.

Additional Editor Comments:

Dear authors,

The article needs minor revision before further evaluation.

with regards,

Ranjit

[Note: HTML markup is below. Please do not edit.]

Reviewers' comments:

Reviewer's Responses to Questions

Comments to the Author

1. If the authors have adequately addressed your comments raised in a previous round of review and you feel that this manuscript is now acceptable for publication, you may indicate that here to bypass the “Comments to the Author” section, enter your conflict of interest statement in the “Confidential to Editor” section, and submit your "Accept" recommendation.

Reviewer #2: All comments have been addressed

**********

2. Is the manuscript technically sound, and do the data support the conclusions?

The manuscript must describe a technically sound piece of scientific research with data that supports the conclusions. Experiments must have been conducted rigorously, with appropriate controls, replication, and sample sizes. The conclusions must be drawn appropriately based on the data presented.

Reviewer #2: (No Response)

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3. Has the statistical analysis been performed appropriately and rigorously?

Reviewer #2: Yes

**********

4. Have the authors made all data underlying the findings in their manuscript fully available?

The PLOS Data policy requires authors to make all data underlying the findings described in their manuscript fully available without restriction, with rare exception (please refer to the Data Availability Statement in the manuscript PDF file). The data should be provided as part of the manuscript or its supporting information, or deposited to a public repository. For example, in addition to summary statistics, the data points behind means, medians and variance measures should be available. If there are restrictions on publicly sharing data—e.g. participant privacy or use of data from a third party—those must be specified.

Reviewer #2: Yes

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5. Is the manuscript presented in an intelligible fashion and written in standard English?

PLOS ONE does not copyedit accepted manuscripts, so the language in submitted articles must be clear, correct, and unambiguous. Any typographical or grammatical errors should be corrected at revision, so please note any specific errors here.

Reviewer #2: Yes

**********

6. Review Comments to the Author

Please use the space provided to explain your answers to the questions above. You may also include additional comments for the author, including concerns about dual publication, research ethics, or publication ethics. (Please upload your review as an attachment if it exceeds 20,000 characters)

Reviewer #2: Page- 16 line 338 to 340:

About 40% of the strategies employed by the families were retrieved during the observation and were supported by the family's feedback during the reflective interview; 40% were from the reflective interview, and only 23% were from the observation.

Information presented is confusing and needs attention by the authors.

Rest are small grammatical errors.

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7. PLOS authors have the option to publish the peer review history of their article (what does this mean?). If published, this will include your full peer review and any attached files.

If you choose “no”, your identity will remain anonymous but your review may still be made public.

Do you want your identity to be public for this peer review? For information about this choice, including consent withdrawal, please see our Privacy Policy.

Reviewer #2: Yes: Amitesh Narayan

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[NOTE: If reviewer comments were submitted as an attachment file, they will be attached to this email and accessible via the submission site. Please log into your account, locate the manuscript record, and check for the action link "View Attachments". If this link does not appear, there are no attachment files.]

While revising your submission, please upload your figure files to the Preflight Analysis and Conversion Engine (PACE) digital diagnostic tool, https://pacev2.apexcovantage.com/. PACE helps ensure that figures meet PLOS requirements. To use PACE, you must first register as a user. Registration is free. Then, login and navigate to the UPLOAD tab, where you will find detailed instructions on how to use the tool. If you encounter any issues or have any questions when using PACE, please email PLOS at figures@plos.org. Please note that Supporting Information files do not need this step.

Attachments

Attachment

Submitted filename: PONE-D-23-43273_R1_reviewer-1.pdf

Management of food socialization for children with Prader-Willi Syndrome: An exploration study in Malaysia

PONE-D-23-43273R2

Dear Dr. Wan,

We’re pleased to inform you that your manuscript has been judged scientifically suitable for publication and will be formally accepted for publication once it meets all outstanding technical requirements.

Within one week, you’ll receive an e-mail detailing the required amendments. When these have been addressed, you’ll receive a formal acceptance letter and your manuscript will be scheduled for publication.

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If your institution or institutions have a press office, please notify them about your upcoming paper to help maximize its impact. If they’ll be preparing press materials, please inform our press team as soon as possible -- no later than 48 hours after receiving the formal acceptance. Your manuscript will remain under strict press embargo until 2 pm Eastern Time on the date of publication. For more information, please contact onepress@plos.org.

Kind regards,

Ranjit Kumar Dehury

Academic Editor

PLOS ONE

Additional Editor Comments (optional):

Dear authors,

The paper is accepted.

With regards,

Ranjit

Reviewers' comments:

Reviewer's Responses to Questions

Comments to the Author

1. If the authors have adequately addressed your comments raised in a previous round of review and you feel that this manuscript is now acceptable for publication, you may indicate that here to bypass the “Comments to the Author” section, enter your conflict of interest statement in the “Confidential to Editor” section, and submit your "Accept" recommendation.

Reviewer #2: All comments have been addressed

**********

2. Is the manuscript technically sound, and do the data support the conclusions?

The manuscript must describe a technically sound piece of scientific research with data that supports the conclusions. Experiments must have been conducted rigorously, with appropriate controls, replication, and sample sizes. The conclusions must be drawn appropriately based on the data presented.

Reviewer #2: Yes

**********

3. Has the statistical analysis been performed appropriately and rigorously?

Reviewer #2: Yes

**********

4. Have the authors made all data underlying the findings in their manuscript fully available?

The PLOS Data policy requires authors to make all data underlying the findings described in their manuscript fully available without restriction, with rare exception (please refer to the Data Availability Statement in the manuscript PDF file). The data should be provided as part of the manuscript or its supporting information, or deposited to a public repository. For example, in addition to summary statistics, the data points behind means, medians and variance measures should be available. If there are restrictions on publicly sharing data—e.g. participant privacy or use of data from a third party—those must be specified.

Reviewer #2: Yes

**********

5. Is the manuscript presented in an intelligible fashion and written in standard English?

PLOS ONE does not copyedit accepted manuscripts, so the language in submitted articles must be clear, correct, and unambiguous. Any typographical or grammatical errors should be corrected at revision, so please note any specific errors here.

Reviewer #2: Yes

**********

6. Review Comments to the Author

Please use the space provided to explain your answers to the questions above. You may also include additional comments for the author, including concerns about dual publication, research ethics, or publication ethics. (Please upload your review as an attachment if it exceeds 20,000 characters)

Reviewer #2: 1. Good findings.

2. Applicable for the families and professionals,

3. Think of broadening its findings across the Asian countries.

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7. PLOS authors have the option to publish the peer review history of their article (what does this mean?). If published, this will include your full peer review and any attached files.

If you choose “no”, your identity will remain anonymous but your review may still be made public.

Do you want your identity to be public for this peer review? For information about this choice, including consent withdrawal, please see our Privacy Policy.

Reviewer #2: Yes: Amitesh Narayan

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