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Fig 1.

Flow diagram of websites included*.

Search term 1: “Ehlers-Danlos Syndrome and exercise”. Search term 2: “Ehlers-Danlos Syndrome and physical activity”. *On July 14, 2023, the first 150 identified English websites for each of the two search terms in Google were selected for the study (n = 300). An updated search was conducted on July 2, 2024, to identify any new or relevant websites, assessing the first 25 websites for each search term.

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Table 1.

Website characteristics.

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Table 2.

Criteria for content scoring of websites on exercise training.

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Fig 2.

Percentage (%) of websites addressing short- and long-term benefits of exercise training.

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Fig 3.

Percentage (%) of websites addressing educational aspects of exercise training.

Other: Hydration, sun protection, weather, air quality health index, nutrition/diet, sleep, overcoming kinesiophobia, (i.e., through cognitive behavioural therapy).

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