Fig 1.
CONSORT Flow Diagram.
Fig 2.
Overview of Project Action Phases and Results. Based on the Knowledge to Action Cycle; A through G are “action cycles”[37]. FCG = family caregiver. QOL = quality of life. QPSS = quality of life and practice support system.
Fig 3.
Pragmatic Randomized Controlled Trial Design.
Table 1.
QOL Assessment Instruments.
Table 2.
Number of Focus Groups and Individual Interview Participants.
Fig 4.
Longitudinal Structural Equation Model. e = error variance. T1-T7 = time periods 1–7. I = latent intercept. S = latent slope. g = grouping variable.
Fig 5.
Demographic Characteristics of Patients and Family Caregivers.
np = patient sample size. fc = family caregiver sample size. CECEP = general and professional teaching college in Quebec. na = not applicable. None of the differences between intervention and control groups had p-values <0.05. See S2 and S3 Tables for details.
Fig 6.
Clinicians’ Use of QPSS Over Time.
Fig 7.
QPSS Use Per Instrument.
Table 3.
Structural Equation Model Results for Patients’ QOL Trajectories.
Fig 8.
MQOL-E Summary Score Trajectories.
Fig 9.
MQOL-E and QOLLTI-F V3 Domain Scores at Study Entry and at One Year.
Table 4.
Structural Equation Model Results for Family Caregiver QOL Trajectories.
Fig 10.
QOLLTI-F v3 Total Trajectories.