Fig 1.
The kidney transplant pathway in New Zealand via the NKAS and the directed living donor route.
Patients may be involved in one route or both routes at times.
Fig 2.
Calendar years of available data from each data source included in the initial data linkage to create ASSET data platform.
Study population databases include ANZDATA (Australia and New Zealand Dialysis and Transplant Registry), ANZLKD (Australia and New Zealand Living Kidney Donor Registry) and NZ Blood Service (New Zealand Blood Service Database). Health outcomes databases include National Non-Admitted Patient Data, National Minimum Data, Cancer Registry, Pharmaceutical Claims Data, PRIMHD (Programme for the Integration of Mental Health Data) and Mortality Collection Database. ASSET data platform will be relinked biennially to include most recent available data and any additional databases for ongoing health services research.
Fig 3.
Process of data linkage by the New Zealand Ministry of Health.
Linking study population and health services and outcomes databases to create the ASSET linked data platform.
Fig 4.
Governance framework of the ASSET data platform.
Including Operations Committee, Steering Committee, External Advisory Committee, Data Reference Groups, Consumer Engagement Committee and Supporting Team.