Fig 1.
Active opt-out paper form.
Fig 2.
Research contact encounter.
Fig 3.
Patient portal notification email.
Fig 4.
Patient portal message.
Fig 5.
Research preferences questionnaire.
Fig 6.
Reminder message.
Fig 7.
“Not ready” message.
Fig 8.
Questionnaire workflow.
Fig 9.
Registry process flow.
Fig 10.
Questionnaire response over time.
Table 1.
Comparison of patient portal responses to research permissions questions by demographics.
Table 2.
Registry patients agreeing to contact/biobank per condition.
Table 3.
Comparison of in-clinic responses to research permissions questions by demographics.
Table 4.
Comparison of research recruitment registry characteristics from information available on public sources.