Perceptions of research participation among underrepresented groups: Insights using freelisting methodology

Tamar Klaiman; Jasmine A. Silvestri; Emma Britez Ferrante; Dorothy Sheu; Adina Lieberman; Erich Dress; Modele O. Ogunniyi; Neal W. Dickert; Meghan B. Lane-Fall; Rosemary Frasso; Rachel Kohn

doi:10.1371/journal.pone.0351215

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Peer-reviewed

Research Article

Perceptions of research participation among underrepresented groups: Insights using freelisting methodology

Tamar Klaiman,

Roles Conceptualization, Data curation, Formal analysis, Investigation, Methodology, Project administration, Supervision, Validation, Visualization, Writing – original draft, Writing – review & editing

Affiliations Behavioral Economics to Transform Trial Enrollment Representativeness (BETTER) Center, American Heart Association Strategically Focused Research Network on the Science of Diversity in Clinical Trials, Philadelphia, Pennsylvania, United States of America, Palliative and Advanced Illness Research (PAIR) Center, Perelman School of Medicine at the University of Pennsylvania, Philadelphia, Pennsylvania, United States of America, Department of Medical Ethics and Health Policy, Perelman School of Medicine, University of Pennsylvania, Philadelphia, Pennsylvania, United States of America, Center for Health Incentives and Behavioral Economics (CHIBE), Perelman School of Medicine at the University of Pennsylvania, Philadelphia, Pennsylvania, United States of America
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Jasmine A. Silvestri,

Roles Conceptualization, Data curation, Formal analysis, Investigation, Methodology, Project administration, Software, Validation, Visualization, Writing – original draft, Writing – review & editing

Affiliations Behavioral Economics to Transform Trial Enrollment Representativeness (BETTER) Center, American Heart Association Strategically Focused Research Network on the Science of Diversity in Clinical Trials, Philadelphia, Pennsylvania, United States of America, Palliative and Advanced Illness Research (PAIR) Center, Perelman School of Medicine at the University of Pennsylvania, Philadelphia, Pennsylvania, United States of America
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Emma Britez Ferrante,

Roles Data curation, Formal analysis, Writing – review & editing

Affiliations Behavioral Economics to Transform Trial Enrollment Representativeness (BETTER) Center, American Heart Association Strategically Focused Research Network on the Science of Diversity in Clinical Trials, Philadelphia, Pennsylvania, United States of America, Palliative and Advanced Illness Research (PAIR) Center, Perelman School of Medicine at the University of Pennsylvania, Philadelphia, Pennsylvania, United States of America
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Dorothy Sheu,

Roles Data curation, Writing – review & editing

Affiliations Behavioral Economics to Transform Trial Enrollment Representativeness (BETTER) Center, American Heart Association Strategically Focused Research Network on the Science of Diversity in Clinical Trials, Philadelphia, Pennsylvania, United States of America, Palliative and Advanced Illness Research (PAIR) Center, Perelman School of Medicine at the University of Pennsylvania, Philadelphia, Pennsylvania, United States of America
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Adina Lieberman,

Roles Conceptualization, Data curation, Project administration, Supervision, Writing – review & editing

Affiliations Behavioral Economics to Transform Trial Enrollment Representativeness (BETTER) Center, American Heart Association Strategically Focused Research Network on the Science of Diversity in Clinical Trials, Philadelphia, Pennsylvania, United States of America, Palliative and Advanced Illness Research (PAIR) Center, Perelman School of Medicine at the University of Pennsylvania, Philadelphia, Pennsylvania, United States of America
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Erich Dress,

Roles Formal analysis, Writing – review & editing

Affiliation Palliative and Advanced Illness Research (PAIR) Center, Perelman School of Medicine at the University of Pennsylvania, Philadelphia, Pennsylvania, United States of America
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Modele O. Ogunniyi,

Roles Validation, Writing – review & editing

Affiliations Behavioral Economics to Transform Trial Enrollment Representativeness (BETTER) Center, American Heart Association Strategically Focused Research Network on the Science of Diversity in Clinical Trials, Philadelphia, Pennsylvania, United States of America, Department of Medicine, Division of Cardiology, Emory University School of Medicine, Atlanta, Georgia, United States of America, Grady Health System, Atlanta, Georgia, United States of America
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Neal W. Dickert,

Roles Validation, Writing – review & editing

Affiliations Behavioral Economics to Transform Trial Enrollment Representativeness (BETTER) Center, American Heart Association Strategically Focused Research Network on the Science of Diversity in Clinical Trials, Philadelphia, Pennsylvania, United States of America, Department of Medicine, Division of Cardiology, Emory University School of Medicine, Atlanta, Georgia, United States of America, Department of Epidemiology, Emory University Rollins School of Public Health, Atlanta, Georgia, United States of America
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Meghan B. Lane-Fall,

Roles Conceptualization, Validation, Writing – review & editing

Affiliations Behavioral Economics to Transform Trial Enrollment Representativeness (BETTER) Center, American Heart Association Strategically Focused Research Network on the Science of Diversity in Clinical Trials, Philadelphia, Pennsylvania, United States of America, Department of Anesthesiology, Columbia University Vagelos College of Physicians and Surgeons, New York, New York, United States of America
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Rosemary Frasso,

Roles Formal analysis, Methodology, Software, Supervision, Validation, Visualization, Writing – review & editing

Affiliations Jefferson College of Population Health, Thomas Jefferson University, Philadelphia, Pennsylvania, United States of America, Asano-Gonnella Center for Research in Medical Education and Health Care, Sidney Kimmel Medical College, Thomas Jefferson University, Philadelphia, Pennsylvania, United States of America
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Rachel Kohn

Roles Conceptualization, Funding acquisition, Investigation, Methodology, Project administration, Resources, Supervision, Writing – original draft, Writing – review & editing

* E-mail: rachel.kohn2@pennmedicine.upenn.edu

Affiliations Behavioral Economics to Transform Trial Enrollment Representativeness (BETTER) Center, American Heart Association Strategically Focused Research Network on the Science of Diversity in Clinical Trials, Philadelphia, Pennsylvania, United States of America, Palliative and Advanced Illness Research (PAIR) Center, Perelman School of Medicine at the University of Pennsylvania, Philadelphia, Pennsylvania, United States of America, Department of Medicine, Perelman School of Medicine at the University of Pennsylvania, Philadelphia, Pennsylvania, United States of America, Leonard Davis Institute of Health Economics, Perelman School of Medicine at the University of Pennsylvania, Philadelphia, Pennsylvania, United States of America

https://orcid.org/0000-0002-9373-5035

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Perceptions of research participation among underrepresented groups: Insights using freelisting methodology

Tamar Klaiman,
Jasmine A. Silvestri,
Emma Britez Ferrante,
Dorothy Sheu,
Adina Lieberman,
Erich Dress,
Modele O. Ogunniyi,
Neal W. Dickert,
Meghan B. Lane-Fall,
Rosemary Frasso

Published: July 1, 2026
https://doi.org/10.1371/journal.pone.0351215

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