On the crossroads of interdisciplinary medicine in amyloidosis – study protocol for a single-center interdisciplinary registry study

• Helena Pernice ,

  Contributed equally to this work with: Helena Pernice, Gina Barzen

  Roles Conceptualization, Data curation, Formal analysis, Investigation, Methodology, Project administration, Validation, Visualization, Writing – original draft, Writing – review & editing

  * E-mail: katrin.hahn@charite.de

  Affiliations Amyloidosis Center Charité Berlin (ACCB), Charité Universitätsmedizin Berlin, Germany, Klinik für Neurologie mit Experimenteller Neurologie, Charité Universitätsmedizin Berlin, Germany, Medizinische Universität Lausitz - Carl Thiem, Department of Cardiology, Rhythmology and Angiology, Cottbus, Germany

  https://orcid.org/0009-0001-8711-5526

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• Gina Barzen ,

  Contributed equally to this work with: Helena Pernice, Gina Barzen

  Roles Conceptualization, Data curation, Methodology, Resources, Writing – original draft, Writing – review & editing

  Affiliations Amyloidosis Center Charité Berlin (ACCB), Charité Universitätsmedizin Berlin, Germany, Deutsches Herzzentrum der Charité, Department of Cardiology, Angiology and Intensive Care Medicine, CCM, Berlin, Germany, Charité – Universitätsmedizin Berlin, corporate member of Freie Universität Berlin and Humboldt-Universität zu Berlin, Berlin, Germany, DZHK (German Centre for cardiovascular research), Partner site Berlin, Germany

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• Jakub Piwowarski,

  Roles Writing – original draft, Writing – review & editing

  Affiliations Amyloidosis Center Charité Berlin (ACCB), Charité Universitätsmedizin Berlin, Germany, Deutsches Herzzentrum der Charité, Department of Cardiology, Angiology and Intensive Care Medicine, CCM, Berlin, Germany, Charité – Universitätsmedizin Berlin, corporate member of Freie Universität Berlin and Humboldt-Universität zu Berlin, Berlin, Germany

  https://orcid.org/0009-0000-0941-9084

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• Harisa Muratovic-Colic,

  Roles Writing – review & editing

  Affiliations Amyloidosis Center Charité Berlin (ACCB), Charité Universitätsmedizin Berlin, Germany, Klinik für Neurologie mit Experimenteller Neurologie, Charité Universitätsmedizin Berlin, Germany

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• Anne Pankow,

  Roles Data curation, Methodology, Writing – review & editing

  Affiliations Amyloidosis Center Charité Berlin (ACCB), Charité Universitätsmedizin Berlin, Germany, Department of Rheumatology and Clinical Immunology, Charité-Universitätsmedizin Berlin, Berlin, Germany

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• Vera von Landenberg-Roberg,

  Roles Methodology, Writing – review & editing

  Affiliations Amyloidosis Center Charité Berlin (ACCB), Charité Universitätsmedizin Berlin, Germany, Department of Hematology, Oncology and Cancer Immunology, Charité - Universitätsmedizin Berlin, corporate member of Freie Universität Berlin and Humboldt-Universität zu Berlin, Berlin, Germany

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• Stephan Bohl,

  Roles Methodology, Writing – review & editing

  Affiliations Amyloidosis Center Charité Berlin (ACCB), Charité Universitätsmedizin Berlin, Germany, Department of Hematology, Oncology and Cancer Immunology, Charité - Universitätsmedizin Berlin, corporate member of Freie Universität Berlin and Humboldt-Universität zu Berlin, Berlin, Germany

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• Eva Schrezenmeier,

  Roles Methodology, Writing – review & editing

  Affiliations Amyloidosis Center Charité Berlin (ACCB), Charité Universitätsmedizin Berlin, Germany, Department of Nephrology and Medical Intensive Care, Charité - Universitätsmedizin Berlin, Corporate Member of Freie Universität Berlin and Humboldt-Universität zu Berlin, Berlin, Germany

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• Paul J. Wetzel,

  Roles Methodology, Software, Visualization, Writing – review & editing

  Affiliations Amyloidosis Center Charité Berlin (ACCB), Charité Universitätsmedizin Berlin, Germany, Klinik für Neurologie mit Experimenteller Neurologie, Charité Universitätsmedizin Berlin, Germany

  https://orcid.org/0009-0001-9393-5512

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• Nicolas W. Wieder,

  Roles Data curation, Writing – review & editing

  Affiliations Amyloidosis Center Charité Berlin (ACCB), Charité Universitätsmedizin Berlin, Germany, Klinik für Neurologie mit Experimenteller Neurologie, Charité Universitätsmedizin Berlin, Germany, Berlin Institute of Health at Charité- Universitätsmedizin Berlin, Berlin, Germany

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• Gunnar Fiß,

  Roles Methodology, Writing – review & editing

  Affiliation Amyloidosis Center Charité Berlin (ACCB), Charité Universitätsmedizin Berlin, Germany

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• Elisabeth Blüthner,

  Roles Methodology, Writing – review & editing

  Affiliations Amyloidosis Center Charité Berlin (ACCB), Charité Universitätsmedizin Berlin, Germany, Berlin Institute of Health at Charité- Universitätsmedizin Berlin, Berlin, Germany, Medizinische Klinik m.S. Hepatologie und Gastroenterologie, Charité Universitätsmedizin Berlin, Campus Charité Mitte, Berlin, Germany

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• Fabian Knebel,

  Roles Conceptualization, Methodology, Writing – review & editing

  Affiliations Amyloidosis Center Charité Berlin (ACCB), Charité Universitätsmedizin Berlin, Germany, Klinik für Innere Medizin mit Schwerpunkt Kardiologie, Sana Klinikum Lichtenberg, Berlin, Germany

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• Daniel Messroghli,

  Roles Methodology, Writing – review & editing

  Affiliation Medizinische Universität Lausitz - Carl Thiem, Department of Cardiology, Rhythmology and Angiology, Cottbus, Germany

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• Stefanie M. Werhahn,

  Roles Methodology, Writing – review & editing

  Affiliations Amyloidosis Center Charité Berlin (ACCB), Charité Universitätsmedizin Berlin, Germany, DZHK (German Centre for cardiovascular research), Partner site Berlin, Germany, Deutsches Herzzentrum der Charité, Department of Cardiology, Angiology and Intensive Care Medicine, CVK, Berlin, Germany

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• Jan Gröschel,

  Roles Methodology, Writing – review & editing

  Affiliations Amyloidosis Center Charité Berlin (ACCB), Charité Universitätsmedizin Berlin, Germany, Deutsches Herzzentrum der Charité, Department of Cardiology, Angiology and Intensive Care Medicine, CCM, Berlin, Germany, Charité – Universitätsmedizin Berlin, corporate member of Freie Universität Berlin and Humboldt-Universität zu Berlin, Berlin, Germany, DZHK (German Centre for cardiovascular research), Partner site Berlin, Germany

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• Anna-Karina B Maier,

  Roles Methodology, Writing – review & editing

  Affiliations Amyloidosis Center Charité Berlin (ACCB), Charité Universitätsmedizin Berlin, Germany, Department of Ophthalmology, Charité – Universitätsmedizin Berlin, Berlin, Germany

  https://orcid.org/0000-0002-8095-0254

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• Shideh Schönfeld,

  Roles Methodology, Writing – review & editing

  Affiliations Amyloidosis Center Charité Berlin (ACCB), Charité Universitätsmedizin Berlin, Germany, Department of Ophthalmology, Charité – Universitätsmedizin Berlin, Berlin, Germany

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• Christoph Wetz,

  Roles Methodology, Writing – review & editing

  Affiliations Amyloidosis Center Charité Berlin (ACCB), Charité Universitätsmedizin Berlin, Germany, Klinik für Nuklearmedizin, Charité Universitätsmedizin Berlin, Germany

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• Jeanette Schulz-Menger,

  Roles Methodology, Writing – review & editing

  Affiliations Amyloidosis Center Charité Berlin (ACCB), Charité Universitätsmedizin Berlin, Germany, Deutsches Herzzentrum der Charité, Department of Cardiology, Angiology and Intensive Care Medicine, CCM, Berlin, Germany, DZHK (German Centre for cardiovascular research), Partner site Berlin, Germany, Helios Clinics Berlin Buch, Department Cardiology and Nephrology, Schwanebecker Berlin, Germany, Charité – Universitätsmedizin Berlin, ECRC a joint institution of Charité and MDC, Berlin, Germany

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• Bettina Heidecker,

  Roles Methodology, Writing – review & editing

  Affiliations Amyloidosis Center Charité Berlin (ACCB), Charité Universitätsmedizin Berlin, Germany, DZHK (German Centre for cardiovascular research), Partner site Berlin, Germany, Deutsches Herzzentrum der Charité, Department of Cardiology, Angiology and Intensive Care Medicine, CBF, Berlin, Germany

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• Axel Nogai,

  Roles Methodology, Writing – review & editing

  Affiliations Amyloidosis Center Charité Berlin (ACCB), Charité Universitätsmedizin Berlin, Germany, Onkologische Schwerpunktpraxis Tiergarten, Berlin, Germany

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• Sebastian Spethmann ,

  Roles Conceptualization, Methodology, Project administration, Resources, Supervision, Writing – review & editing

  ¶‡ SS and HK also contributed equally to this work.

  Affiliations Amyloidosis Center Charité Berlin (ACCB), Charité Universitätsmedizin Berlin, Germany, Deutsches Herzzentrum der Charité, Department of Cardiology, Angiology and Intensive Care Medicine, CCM, Berlin, Germany, Charité – Universitätsmedizin Berlin, corporate member of Freie Universität Berlin and Humboldt-Universität zu Berlin, Berlin, Germany, DZHK (German Centre for cardiovascular research), Partner site Berlin, Germany

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•  [ ... ],
• Katrin Hahn

  Roles Conceptualization, Funding acquisition, Methodology, Project administration, Resources, Supervision, Writing – review & editing

  ¶‡ SS and HK also contributed equally to this work.

  Affiliations Amyloidosis Center Charité Berlin (ACCB), Charité Universitätsmedizin Berlin, Germany, Klinik für Neurologie mit Experimenteller Neurologie, Charité Universitätsmedizin Berlin, Germany, Medizinische Universität Lausitz - Carl Thiem, Department of Cardiology, Rhythmology and Angiology, Cottbus, Germany

  https://orcid.org/0000-0002-6013-0072

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