Barriers and facilitators to healthcare utilization amongst people living with sickle cell disease in the United States: A scoping review

Christina Ruan; Joyce Gyamfi; Nana Osei-Tutu; Shreya Meda; Lydia Samuels; Nousheen Inayat; Sukruthi Thunga; Elizabeth Noble; Dorice L. Viera; Deborah Adenikinju; Charmaine Royal; Angela Odoms-Young; Prince Michael Amegbor; Emmanuel Peprah

doi:10.1371/journal.pone.0349441

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Open Access

Peer-reviewed

Research Article

Barriers and facilitators to healthcare utilization amongst people living with sickle cell disease in the United States: A scoping review

Christina Ruan ,

Roles Data curation, Formal analysis, Investigation, Methodology, Project administration, Resources, Software, Supervision, Validation, Visualization, Writing – original draft, Writing – review & editing

* E-mail: cr3041@nyu.edu

Affiliations Department of Global and Environmental Health, NYU School of Global Public Health, New York, New York, United States of America, Georgetown University Medical Center, Washington, District of Columbia, United States of America

https://orcid.org/0000-0001-6583-6448

⨯
Joyce Gyamfi,

Roles Conceptualization, Data curation, Formal analysis, Investigation, Methodology, Project administration, Resources, Supervision, Validation, Writing – original draft, Writing – review & editing

Affiliation Department of Global and Environmental Health, NYU School of Global Public Health, New York, New York, United States of America
⨯
Nana Osei-Tutu,

Roles Formal analysis, Investigation, Writing – original draft

Affiliation Department of Global and Environmental Health, NYU School of Global Public Health, New York, New York, United States of America
⨯
Shreya Meda,

Roles Data curation, Formal analysis, Investigation, Project administration, Resources, Supervision, Writing – original draft

Affiliation Department of Global and Environmental Health, NYU School of Global Public Health, New York, New York, United States of America

https://orcid.org/0000-0001-9632-2415

⨯
Lydia Samuels,

Roles Formal analysis, Investigation, Writing – original draft

Affiliation Department of Global and Environmental Health, NYU School of Global Public Health, New York, New York, United States of America

https://orcid.org/0009-0006-2214-6213

⨯
Nousheen Inayat,

Roles Formal analysis, Investigation

Affiliation Department of Global and Environmental Health, NYU School of Global Public Health, New York, New York, United States of America
⨯
Sukruthi Thunga,

Roles Formal analysis, Investigation

Affiliation Department of Global and Environmental Health, NYU School of Global Public Health, New York, New York, United States of America
⨯
Elizabeth Noble,

Roles Formal analysis, Investigation

Affiliation Department of Global and Environmental Health, NYU School of Global Public Health, New York, New York, United States of America

https://orcid.org/0000-0003-0958-2601

⨯
Dorice L. Viera,

Roles Data curation, Formal analysis, Investigation, Methodology, Project administration, Resources, Software, Supervision, Validation, Visualization, Writing – original draft, Writing – review & editing

Affiliations Department of Global and Environmental Health, NYU School of Global Public Health, New York, New York, United States of America, NYU Grossman School of Medicine, NYU Health Sciences Library, New York, New York, United States of America
⨯
Deborah Adenikinju,

Roles Writing – review & editing

Affiliation Department of Global and Environmental Health, NYU School of Global Public Health, New York, New York, United States of America
⨯
Charmaine Royal,

Roles Validation, Writing – review & editing

Affiliation Department of African and African American Studies, Duke University, Durham, North Carolina, United States of America
⨯
Angela Odoms-Young,

Roles Validation, Writing – review & editing

Affiliation College of Human Ecology, Division of Nutritional Sciences, Cornell Center for Health Equity, Cornell University, Ithaca, New York, United States of America
⨯
Prince Michael Amegbor,

Roles Validation, Writing – review & editing

Affiliation Department of Global and Environmental Health, NYU School of Global Public Health, New York, New York, United States of America

https://orcid.org/0000-0001-7701-2585

⨯
Emmanuel Peprah

Roles Conceptualization, Data curation, Formal analysis, Investigation, Methodology, Project administration, Supervision, Validation, Writing – original draft, Writing – review & editing

Affiliation Department of Global and Environmental Health, NYU School of Global Public Health, New York, New York, United States of America
⨯

Barriers and facilitators to healthcare utilization amongst people living with sickle cell disease in the United States: A scoping review

Christina Ruan,
Joyce Gyamfi,
Nana Osei-Tutu,
Shreya Meda,
Lydia Samuels,
Nousheen Inayat,
Sukruthi Thunga,
Elizabeth Noble,
Dorice L. Viera,
Deborah Adenikinju

Published: July 6, 2026
https://doi.org/10.1371/journal.pone.0349441

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