The lived experience of adolescents with X-linked hypophosphataemia treated with burosumab at end of skeletal growth: a mixed-methods analysis

• Vrinda Saraff ,

  Roles Conceptualization, Investigation, Methodology, Project administration, Resources, Writing – review & editing

  * E-mail: vrinda.saraff@nhs.net

  Affiliation Birmingham Women’s and Children’s Hospital, Birmingham, United Kingdom

  https://orcid.org/0000-0003-3601-8942

  ⨯
• Pedro Arango Sancho,

  Roles Investigation, Writing – review & editing

  Affiliation Sant Joan de Déu Barcelona Hospital, Barcelona, Spain

  ⨯
• Justine Bacchetta,

  Roles Investigation, Writing – review & editing

  Affiliation Hospices Civils de Lyon, INSERM1033 Research Unit, Lyon, France

  ⨯
• Annemieke M. Boot,

  Roles Investigation, Writing – review & editing

  Affiliation University Medical Center Groningen, University of Groningen, The Netherlands

  https://orcid.org/0000-0002-2426-3222

  ⨯
• Christine Burren,

  Roles Investigation, Writing – review & editing

  Affiliation University Hospitals Bristol and Weston NHS Foundation Trust, Bristol, United Kingdom

  ⨯
• Amish Chinoy,

  Roles Investigation, Writing – review & editing

  Affiliation Royal Manchester Children’s Hospital, Manchester, United Kingdom

  ⨯
• Poonam Dharmaraj,

  Roles Investigation, Writing – review & editing

  Affiliation Alder Hey Children’s Hospital, Liverpool, United Kingdom

  ⨯
• Maria Amelia Gómez Llorente,

  Roles Investigation, Writing – review & editing

  Affiliation Hospital Virgen de Las Nieves, Granada, Spain

  https://orcid.org/0000-0002-6662-8939

  ⨯
• Juan David González Rodríguez,

  Roles Investigation, Writing – review & editing

  Affiliation Department of Pediatric Nephrology, Santa Lucía General University Hospital, Cartagena, Spain

  https://orcid.org/0000-0002-8863-2007

  ⨯
• Iva Gueorguieva,

  Roles Investigation, Writing – review & editing

  Affiliation Centre Hospitalier Universitaire de Lille, Lille, France

  https://orcid.org/0000-0002-3562-6973

  ⨯
• Elin Haf Davies,

  Roles Conceptualization, Methodology, Writing – review & editing

  Affiliation Aparito Ltd, a wholly owned subsidiary of Eli Lilly and Company, Wrexham, United Kingdom

  ⨯
• Wesley Hayes,

  Roles Investigation, Writing – review & editing

  Affiliation Great Ormond Street Hospital, London, United Kingdom

  ⨯
• Sandra Komarzynski,

  Roles Conceptualization, Data curation, Formal analysis, Visualization, Writing – review & editing

  Affiliation Aparito Ltd, a wholly owned subsidiary of Eli Lilly and Company, Wrexham, United Kingdom

  ⨯
• Héctor Ríos Duro,

  Roles Investigation, Writing – review & editing

  Affiliation Pediatric Nephrology, Vall d’Hebron University Hospital, Barcelona, Spain

  ⨯
• Angela J. Rylands,

  Roles Conceptualization, Methodology, Project administration, Resources, Writing – review & editing

  Affiliation Kyowa Kirin International, Marlow, United Kingdom

  ⨯
• Kerry Sandilands,

  Roles Conceptualization, Methodology, Project administration, Resources, Writing – review & editing

  Affiliation Kyowa Kirin International, Marlow, United Kingdom

  ⨯
• Angela Williams,

  Roles Conceptualization, Methodology, Project administration, Resources, Writing – review & editing

  Affiliation Kyowa Kirin International, Marlow, United Kingdom

  https://orcid.org/0009-0003-8537-5468

  ⨯
• Emily Hardie,

  Roles Conceptualization, Methodology, Project administration, Resources, Writing – review & editing

  Affiliation Kyowa Kirin International, Marlow, United Kingdom

  ⨯
• Haruka Ishii,

  Roles Conceptualization, Methodology, Project administration, Resources, Writing – review & editing

  Affiliation Kyowa Kirin Co., Ltd., Tokyo, Japan

  ⨯
• Dirk Schnabel,

  Roles Investigation, Writing – review & editing

  Affiliation Center for Chronically Sick Children, Pediatric Endocrinology, Charité – University Medicine Berlin, Germany

  ⨯
• Santhani M. Selveindran,

  Roles Conceptualization, Formal analysis, Methodology, Writing – review & editing

  Affiliation Open Health Ltd, Marlow, United Kingdom

  ⨯
•  [ ... ],
• Agnès Linglart

  Roles Investigation, Writing – review & editing

  Affiliation Paris-Saclay University, AP-HP, INSERM, Service d’Endocrinologie et Diabète de l’Enfant, Bicêtre Paris-Saclay Hospital, Le Kremlin-Bicêtre, France

  ⨯
• [ view all ]
• [ view less ]