Epidermal necrolysis (Stevens-Johnson syndrome/ toxic epidermal necrolysis) as extensive boundary violation: A qualitative study on the illness experience and care needs of survivors in the context of the first German guideline

• Ruben Heuer ,

  Roles Conceptualization, Formal analysis, Methodology, Project administration, Writing – original draft, Writing – review & editing

  * E-mail: ruben.heuer@charite.de

  ¶‡ These authors share first authorship on this work.

  Affiliation Division of Evidence-based Medicine (dEBM), Department of Dermatology, Venereology und Allergy, Charité - University Medicine Berlin, Corporate Member of Free University of Berlin, Humboldt University of Berlin, and Berlin Institute of Health, Berlin, Germany

  https://orcid.org/0000-0002-0207-7373

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• Maren Paulmann ,

  Roles Conceptualization, Data curation, Writing – review & editing

  ¶‡ These authors share first authorship on this work.

  Affiliation Dokumentationszentrum schwerer Hautreaktionen (dZh), Department of Dermatology Medical Center, University of Freiburg, Freiburg, Germany

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• Maja Mockenhaupt,

  Roles Data curation, Funding acquisition, Writing – review & editing

  Affiliation Dokumentationszentrum schwerer Hautreaktionen (dZh), Department of Dermatology Medical Center, University of Freiburg, Freiburg, Germany

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• Alexander Nast

  Roles Conceptualization, Funding acquisition, Project administration, Writing – review & editing

  Affiliation Division of Evidence-based Medicine (dEBM), Department of Dermatology, Venereology und Allergy, Charité - University Medicine Berlin, Corporate Member of Free University of Berlin, Humboldt University of Berlin, and Berlin Institute of Health, Berlin, Germany

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