Measurement properties of instruments used to measure health-related quality of life in pediatric and adults patients with inherited epidermolysis bullosa: A systematic review and meta-analysis protocol

• Mario Gómez-Martínez ,

  Contributed equally to this work with: Mario Gómez-Martínez, Greta Arias-Merino

  Roles Data curation, Formal analysis, Investigation, Methodology, Software, Validation, Writing – original draft, Writing – review & editing

  Affiliation Institute of Rare Diseases Research (IIER), Instituto de Salud Carlos III (ISCIII), Madrid, Spain

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• Greta Arias-Merino ,

  Contributed equally to this work with: Mario Gómez-Martínez, Greta Arias-Merino

  Roles Conceptualization, Data curation, Formal analysis, Investigation, Methodology, Software, Supervision, Validation, Visualization, Writing – original draft, Writing – review & editing

  Affiliation Institute of Rare Diseases Research (IIER), Instituto de Salud Carlos III (ISCIII), Madrid, Spain

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• Juan Benito-Lozano,

  Roles Data curation, Formal analysis, Investigation, Methodology, Software, Validation, Visualization, Writing – review & editing

  Affiliation Institute of Rare Diseases Research (IIER), Instituto de Salud Carlos III (ISCIII), Madrid, Spain

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• Ana Villaverde-Hueso,

  Roles Writing – review & editing

  Affiliations Institute of Rare Diseases Research (IIER), Instituto de Salud Carlos III (ISCIII), Madrid, Spain, Centre for Biomedical Network Research on Rare Diseases (CIBERER), Instituto de Salud Carlos III, Madrid, Spain

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• Renata Linertová,

  Roles Funding acquisition, Writing – review & editing

  Affiliations Canary Islands Health Research Institute Foundation (FIISC), Santa Cruz de Tenerife, Spain, Research Network on Chronicity, Primary Care, and Health Promotion (RICAPPS), Instituto de Salud Carlos III, Madrid, Spain, Spanish Network of Agencies for Health Technology Assessment for the National Health Service (RedETS), Spain

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• Verónica Alonso-Ferreira

  Roles Conceptualization, Funding acquisition, Methodology, Project administration, Resources, Supervision, Validation, Visualization, Writing – original draft, Writing – review & editing

  * E-mail: valonso@isciii.es

  Affiliations Institute of Rare Diseases Research (IIER), Instituto de Salud Carlos III (ISCIII), Madrid, Spain, Centre for Biomedical Network Research on Rare Diseases (CIBERER), Instituto de Salud Carlos III, Madrid, Spain

  https://orcid.org/0000-0002-8560-1336

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