Recruitment, follow-up and survival in an 11-country cohort study of patients at the end of life and their relatives

• Maria E. C. Schelin,

  Roles Conceptualization, Data curation, Formal analysis, Investigation, Methodology, Project administration, Resources, Software, Validation, Visualization, Writing – original draft, Writing – review & editing

  Affiliation Institute for Palliative Care, Region Skåne and Department of Clinical Sciences Lund, Lund University, Lund, Sweden

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• Christel Hedman ,

  Roles Formal analysis, Methodology, Project administration, Validation, Visualization, Writing – review & editing

  * E-mail: christel.hedman@ki.se

  Affiliations Institute for Palliative Care, Region Skåne and Department of Clinical Sciences Lund, Lund University, Lund, Sweden, Department of Molecular Medicine and Surgery, Karolinska Institutet, Stockholm, Sweden, R & D Department, Stockholms Sjukhem Foundation, Stockholm, Sweden

  https://orcid.org/0000-0003-4183-7598

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• Pilar Barnestein-Fonseca,

  Roles Conceptualization, Investigation, Validation, Writing – review & editing

  Affiliation Instituto CUDECA, CUDECA Foundation, Group CA15 IBIMA-Plataforma Bionand, Málaga, Spain

  https://orcid.org/0000-0003-2767-8017

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• Martina Egloff,

  Roles Conceptualization, Investigation, Validation, Writing – review & editing

  Affiliation University Center for Palliative Care, University Hospital, Inselspital Bern, Bern, Switzerland

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• John Ellershaw,

  Roles Conceptualization, Investigation, Validation, Writing – review & editing

  Affiliation Palliative Care Unit, University of Liverpool, Liverpool, United Kingdom

  https://orcid.org/0000-0001-9789-3180

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• Dagny Faksvåg Haugen,

  Roles Conceptualization, Investigation, Validation, Writing – review & editing

  Affiliations Regional Centre of Excellence for Palliative Care, Western Norway, Haukeland University Hospital, Bergen, Norway, Department of Clinical Medicine K1, University of Bergen, Bergen, Norway

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• Claudia Fischer,

  Roles Conceptualization, Investigation, Validation, Writing – review & editing

  Affiliation Department of Health Economics, Center for Public Health, Medical University of Vienna, Vienna, Austria

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• Melanie Joshi,

  Roles Conceptualization, Investigation, Validation, Writing – review & editing

  Affiliation Department of Palliative Medicine, Faculty of Medicine and University Hospital, University of Cologne, Cologne, Germany

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• Ida J. Korfage,

  Roles Conceptualization, Investigation, Validation, Writing – review & editing

  Affiliation Department of Public Health, Erasmus MC, University Medical Center Rotterdam, Rotterdam, The Netherlands

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• Urška Lunder,

  Roles Conceptualization, Investigation, Validation, Writing – review & editing

  Affiliation University Clinic for Respiratory and Allergic Diseases Golnik, Golnik, Slovenia

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• Stephen Mason,

  Roles Conceptualization, Investigation, Validation, Writing – review & editing

  Affiliation Palliative Care Unit, University of Liverpool, Liverpool, United Kingdom

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• Judit Simon,

  Roles Conceptualization, Investigation, Validation, Writing – review & editing

  Affiliation Department of Health Economics, Center for Public Health, Medical University of Vienna, Vienna, Austria

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• Vilma A. Tripodoro,

  Roles Conceptualization, Investigation, Validation, Writing – review & editing

  Affiliations Instituto Pallium Latinoamérica, Buenos Aires, Argentina, ATLANTES Global Observatory of Palliative Care-WHO Collaborating Centre, University of Navarra, Pamplona, Spain

  https://orcid.org/0000-0003-2328-6032

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• Berivan Yildiz,

  Roles Conceptualization, Investigation, Validation, Writing – review & editing

  Affiliation Department of Public Health, Erasmus MC, University Medical Center Rotterdam, Rotterdam, The Netherlands

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• Sofia C. Zambrano,

  Roles Conceptualization, Investigation, Validation, Writing – review & editing

  Affiliations University Center for Palliative Care, University Hospital, Inselspital Bern, Bern, Switzerland, Institute of Social and Preventive Medicine, ISPM, University of Bern, Bern, Switzerland

  https://orcid.org/0000-0002-0918-9722

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• Steffen Eychmueller,

  Roles Conceptualization, Investigation, Validation, Writing – review & editing

  Affiliation University Center for Palliative Care, University Hospital, Inselspital Bern, Bern, Switzerland

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• Lia van Zuylen,

  Roles Conceptualization, Investigation, Validation, Writing – review & editing

  Affiliation Department Medical Oncology, University Medical Centers Amsterdam, Amsterdam, The Netherlands

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• Agnes van der Heide,

  Roles Conceptualization, Funding acquisition, Methodology, Validation, Writing – review & editing

  Affiliation Department of Public Health, Erasmus MC, University Medical Center Rotterdam, Rotterdam, The Netherlands

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• Carl Johan Fürst,

  Roles Conceptualization, Formal analysis, Funding acquisition, Methodology, Project administration, Validation, Writing – review & editing

  Affiliation Institute for Palliative Care, Region Skåne and Department of Clinical Sciences Lund, Lund University, Lund, Sweden

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•  [ ... ],
• the iLIVE Consortium

  ¶Collaborators in the iLIVE consortium are provided in the Acknowledgments.

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