“Are you listening?”: Experiences shared online by family caregivers of patients in the palliative phase during the Covid-19-pandemic

• Hinke E. Hoffstädt ,

  Roles Data curation, Formal analysis, Investigation, Methodology, Writing – original draft, Writing – review & editing

  * E-mail: h.e.hoffstadt@lumc.nl

  Affiliation Center of Expertise in Palliative Care, Leiden University Medical Center, Leiden, The Netherlands

  https://orcid.org/0000-0001-5985-6397

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• Mary-Joanne Verhoef,

  Roles Conceptualization, Data curation, Formal analysis, Investigation, Methodology, Writing – original draft, Writing – review & editing

  Affiliation Center of Expertise in Palliative Care, Leiden University Medical Center, Leiden, The Netherlands

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• Aranka Akkermans,

  Roles Methodology, Supervision, Writing – review & editing

  Affiliation Medical Psychology, Amsterdam University Medical Center, Amsterdam, The Netherlands

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• Jenny T. van der Steen,

  Roles Supervision, Writing – review & editing

  Affiliations Public Health and Primary Care, Leiden University Medical Center, Leiden, The Netherlands, Radboudumc Alzheimer Center and Department of Primary and Community Care, Radboud University Medical Center, Nijmegen, The Netherlands

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• Arianne Stoppelenburg,

  Roles Supervision, Writing – review & editing

  Affiliations Center of Expertise in Palliative Care, Leiden University Medical Center, Leiden, The Netherlands, Netherlands Comprehensive Cancer Organisation (IKNL), Utrecht, The Netherlands

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• Sita de Vries,

  Roles Conceptualization, Data curation, Investigation, Methodology, Writing – review & editing

  Affiliation Center of Expertise in Palliative Care Utrecht, Department of General Practice and Nursing Science, Julius Center for Health Sciences and Primary Care, University Medical Center Utrecht, Utrecht, The Netherlands

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• Everlien de Graaf,

  Roles Conceptualization, Methodology, Supervision, Writing – review & editing

  Affiliation Center of Expertise in Palliative Care Utrecht, Department of General Practice and Nursing Science, Julius Center for Health Sciences and Primary Care, University Medical Center Utrecht, Utrecht, The Netherlands

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• Saskia C. C. M. Teunissen,

  Roles Conceptualization, Funding acquisition, Methodology, Writing – review & editing

  Affiliation Center of Expertise in Palliative Care Utrecht, Department of General Practice and Nursing Science, Julius Center for Health Sciences and Primary Care, University Medical Center Utrecht, Utrecht, The Netherlands

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• Iris D. Hartog,

  Roles Supervision, Writing – original draft, Writing – review & editing

  Affiliations Center of Expertise in Palliative Care, Leiden University Medical Center, Leiden, The Netherlands, Netherlands Comprehensive Cancer Organisation (IKNL), Utrecht, The Netherlands

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• Yvette M. van der Linden

  Roles Conceptualization, Funding acquisition, Methodology, Supervision, Writing – review & editing

  Affiliations Center of Expertise in Palliative Care, Leiden University Medical Center, Leiden, The Netherlands, Netherlands Comprehensive Cancer Organisation (IKNL), Utrecht, The Netherlands

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