The observational EURACAN prospective clinical registry dedicated to epithelioid hemangioendothelioma: The protocol of an international and collaborative effort on an ultra-rare entity

• Anna Maria Frezza,

  Roles Conceptualization, Data curation, Resources, Supervision, Writing – original draft, Writing – review & editing

  Affiliation Fondazione IRCCS Istituto Nazionale Tumori, Medical Oncology 2, Milan, Italy

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• Hugh Leonard,

  Roles Funding acquisition, Writing – review & editing

  Affiliation EHE Rare Cancer Charity, London, United Kingdom

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• Ninna Aggerholm-Pedersen,

  Roles Conceptualization, Writing – review & editing

  Affiliation Department of Oncology, Aarhus University Hospital, Aarhus, Denmark

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• Giuseppe Badalamenti,

  Roles Conceptualization, Writing – review & editing

  Affiliation Department of Surgical, Oncological and Oral Sciences, Section of Medical Oncology, University of Palermo, Palermo, Italy

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• Paolo Baili,

  Roles Project administration, Resources, Writing – review & editing

  Affiliation Department of Epidemiology and Data Science, Fondazione IRCCS Istituto Nazionale Tumori, Data Science Unit, Milan, Italy

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• Giacomo G. Baldi,

  Roles Conceptualization, Writing – review & editing

  Affiliation Department of Oncology, Hospital of Prato, Azienda USL Toscana Centro, Prato, Italy

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• Sebastian Bauer,

  Roles Writing – review & editing

  Affiliation Medical Oncology, University Hospital Essen, Essen, Germany

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• Serena Bazzurri,

  Roles Writing – review & editing

  Affiliation Department of Oncology, Hospital of Prato, Azienda USL Toscana Centro, Prato, Italy

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• Irene Benzonelli,

  Roles Writing – review & editing

  Affiliation Medical Oncology, Ospedale San Luigi, Orbassano, Italy

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• Alexia Bertuzzi,

  Roles Writing – review & editing

  Affiliation Medical Oncology, IRCCS, Humanitas Research Hospital, Rozzano-Milano, Italy

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• Jean-Yves Blay,

  Roles Methodology, Writing – review & editing

  Affiliation Medical Oncology, Centre Léon Bérard, Lyon, France

  https://orcid.org/0000-0001-7190-120X

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• Giuseppe Bianchi,

  Roles Validation, Writing – review & editing

  Affiliation IRCCS Istituto Ortopedico Rizzoli, Clinica Ortopedica e Traumatologica III a Prevalente Indirizzo Oncologico, Bologna, Italy

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• Simone Bonfarnuzzo,

  Roles Conceptualization, Visualization, Writing – review & editing

  Affiliation Department of Epidemiology and Data Science, Fondazione IRCCS Istituto Nazionale Tumori, Data Science Unit, Milan, Italy

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• Christophe Bouvier,

  Roles Writing – review & editing

  Affiliation Medical Oncology, Centre Léon Bérard, Lyon, France

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• Kyetil Boye,

  Roles Writing – review & editing

  Affiliation Medical Oncology, Oslo University Hospital, Oslo, Norway

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• Javier Martin Broto,

  Roles Writing – review & editing

  Affiliation Medical Oncology, Fundación Jimenez Diaz University Hospital, Madrid, Spain

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• Antonella Brunello,

  Roles Writing – review & editing

  Affiliation Istituto Oncologico Veneto IOV—IRCCS, Medical Oncology 1, Padua, Italy

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• Domenico Campanacci,

  Roles Writing – review & editing

  Affiliation Orthopaedic Oncology, Careggi University Hospital, Florence, Italy

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• Paolo G. Casali,

  Roles Conceptualization, Writing – review & editing

  Affiliation Fondazione IRCCS Istituto Nazionale Tumori, Medical Oncology 2, Milan, Italy

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• Carlo Cicala,

  Roles Writing – review & editing

  Affiliation Medical Oncology, Hospital Universitari Vall d’Hebron, Spain

  https://orcid.org/0000-0002-4350-495X

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• Elisa Crotti,

  Roles Writing – review & editing

  Affiliation Medical Oncology, IRCCS, Humanitas Research Hospital, Rozzano-Milano, Italy

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• Lorenzo D’Ambrosio,

  Roles Writing – review & editing

  Affiliation Medical Oncology, Ospedale San Luigi, Orbassano, Italy

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• Angelo Paolo Dei Tos,

  Roles Writing – review & editing

  Affiliation Department of Pathology, Azienda Ospedaliera di Padova, Padua, Italy

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• Nils Dieckmann,

  Roles Writing – review & editing

  Affiliation Medical Oncology, University Hospital Essen, Essen, Germany

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• Armelle Dufresne,

  Roles Writing – review & editing

  Affiliation Medical Oncology, Centre Léon Bérard, Lyon, France

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• Stephanie Elston,

  Roles Writing – review & editing

  Affiliation Sarcoma Unit, The Royal Marsden NHS Foundation Trust, London, United Kingdom

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• Virginia Ferraresi,

  Roles Writing – review & editing

  Affiliation Sarcomas and Rare Tumors Departmental Unit-IRCCS Regina Elena National Cancer Institute, Rome, Italy

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• Stefano Gabellini,

  Roles Writing – review & editing

  Affiliation Department of Oncology, Hospital of Prato, Azienda USL Toscana Centro, Prato, Italy

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• Claudia Giani,

  Roles Conceptualization, Validation, Visualization, Writing – review & editing

  Affiliation Fondazione IRCCS Istituto Nazionale Tumori, Medical Oncology 2, Milan, Italy

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• Vincenzo Giannusa,

  Roles Writing – review & editing

  Affiliation Department of Surgical, Oncological and Oral Sciences, Section of Medical Oncology, University of Palermo, Palermo, Italy

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• Melissa Gil Sanjines,

  Roles Writing – review & editing

  Affiliation Department of Epidemiology and Data Science, Fondazione IRCCS Istituto Nazionale Tumori, Evaluative Epidemiology Unit, Milan, Italy

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• Teresa Grassani,

  Roles Writing – review & editing

  Affiliation Medical Oncology, Università Campus Bio-Medico, Rome, Italy

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• Alessandro Gronchi,

  Roles Conceptualization, Writing – review & editing

  Affiliation Fondazione IRCCS Istituto Nazionale Tumori, Sarcoma Surgery, Milan, Italy

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• Paolo Lasalvia,

  Roles Data curation, Methodology, Validation, Visualization, Writing – original draft, Writing – review & editing

  Affiliation Department of Epidemiology and Data Science, Fondazione IRCCS Istituto Nazionale Tumori, Evaluative Epidemiology Unit, Milan, Italy

  https://orcid.org/0000-0002-4264-220X

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• Stefan Lindskog,

  Roles Writing – review & editing

  Affiliation Department of Surgery, Institute of Clinical Sciences, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden

  https://orcid.org/0000-0001-8055-5003

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• Nadia Hindi,

  Roles Writing – review & editing

  Affiliation Medical Oncology, Fundación Jimenez Diaz University Hospital, Madrid, Spain

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• Matilde Ingrosso,

  Roles Validation, Visualization, Writing – review & editing

  Affiliation Fondazione IRCCS Istituto Nazionale Tumori, Medical Oncology 2, Milan, Italy

  https://orcid.org/0009-0002-7053-4684

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• Andrei Ivanescu,

  Roles Resources, Writing – review & editing

  Affiliation EHE Italia, Milan, Italy

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• Robin Jones,

  Roles Writing – review & editing

  Affiliation Sarcoma Unit, The Royal Marsden NHS Foundation Trust, London, United Kingdom

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• Iwona Lugowska,

  Roles Writing – review & editing

  Affiliation Maria Skłodowska Curie Institute—Oncology Centre, Early Phase Trial Unit, Warsaw, Poland

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• Julia Ketzer,

  Roles Writing – review & editing

  Affiliation Medical Oncology, University Hospital Essen, Essen, Germany

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• Anna Mariuk-Jarema,

  Roles Writing – review & editing

  Affiliation Maria Skłodowska Curie Institute—Oncology Centre, Early Phase Trial Unit, Warsaw, Poland

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• Alessandro Mazzocca,

  Roles Writing – review & editing

  Affiliation Medical Oncology, Università Campus Bio-Medico, Rome, Italy

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• Laura Monteleone,

  Roles Validation, Visualization, Writing – review & editing

  Affiliation Fondazione IRCCS Istituto Nazionale Tumori, Medical Oncology 2, Milan, Italy

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• Carlo Morosi,

  Roles Writing – review & editing

  Affiliation Department of Radiology, Fondazione IRCCS Istituto Nazionale dei Tumori, Milan, Italy

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• Andrea Napolitano,

  Roles Writing – review & editing

  Affiliation Sarcoma Unit, The Royal Marsden NHS Foundation Trust, London, United Kingdom

  https://orcid.org/0000-0002-7509-1555

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• Francesca Nardozza,

  Roles Writing – review & editing

  Affiliation IRCCS Regina Elena National Cancer Institute, UOSD Clinical Trial Center, Biostatistics and Bioinformatics, Rome, Italy

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• Elisabetta Neri,

  Roles Writing – review & editing

  Affiliation Orthopaedic Oncology, Careggi University Hospital, Florence, Italy

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• Maria Nilsson,

  Roles Writing – review & editing

  Affiliation Department of Surgery, Institute of Clinical Sciences, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden

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• Andri Papakonstantinou,

  Roles Writing – review & editing

  Affiliations Department of Oncology-Pathology, Karolinska Institutet, Stockholm, Sweden, Department of Breast Cancer, Endocrine Tumors and Sarcoma, Karolinska Comprehensive Cancer Center, Karolinska University Hospital, Stockholm, Sweden

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• Sandro Pasquali,

  Roles Writing – review & editing

  Affiliation Department of Experimental Oncology, Fondazione IRCCS Istituto Nazionale dei Tumori, Molecular Pharmacology Unit, Milan, Italy

  https://orcid.org/0000-0003-4815-6293

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• Marta Sbaraglia,

  Roles Writing – review & editing

  Affiliation Department of Pathology, Azienda Ospedaliera di Padova, Padua, Italy

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• Federico Scolari,

  Roles Writing – review & editing

  Affiliation Orthopaedic Oncology, Careggi University Hospital, Florence, Italy

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• Joanna Szkandera,

  Roles Writing – review & editing

  Affiliation Department of Internal Medicine, Division of Oncology, Medical University of Graz, Graz, Austria

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• Claudia Valverde,

  Roles Writing – review & editing

  Affiliation Medical Oncology, Hospital Universitari Vall d’Hebron, Spain

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• Bruno Vincenzi,

  Roles Writing – review & editing

  Affiliation Medical Oncology, Università Campus Bio-Medico, Rome, Italy

  ⨯
• Salvatore Vizzaccaro,

  Roles Writing – review & editing

  Affiliation Istituto Oncologico Veneto IOV—IRCCS, Medical Oncology 1, Padua, Italy

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• Federica Zuccheri,

  Roles Writing – review & editing

  Affiliation IRCCS Istituto Ortopedico Rizzoli, Clinica Ortopedica e Traumatologica III a Prevalente Indirizzo Oncologico, Bologna, Italy

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• Silvia Stacchiotti,

  Roles Conceptualization, Resources, Writing – original draft

  Affiliation Fondazione IRCCS Istituto Nazionale Tumori, Medical Oncology 2, Milan, Italy

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•  [ ... ],
• Annalisa Trama

  Roles Conceptualization, Funding acquisition, Methodology, Project administration, Supervision, Writing – original draft, Writing – review & editing

  * E-mail: annalisa.trama@istitutotumori.mi.it

  Affiliation Department of Epidemiology and Data Science, Fondazione IRCCS Istituto Nazionale Tumori, Evaluative Epidemiology Unit, Milan, Italy

  https://orcid.org/0000-0001-8220-9833

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