Head and Neck Paraganglioma (HNPGL) Registry: A study protocol for prospective data collection in patients with Head and Neck Paragangliomas

• Carolijn J. M. de Bresser ,

  Roles Conceptualization, Data curation, Investigation, Methodology, Project administration, Software, Writing – original draft, Writing – review & editing

  * E-mail: j.m.debresser-4@umcutrecht.nl

  Affiliation Department of Vascular Surgery, University Medical Center Utrecht, Utrecht, The Netherlands

  https://orcid.org/0009-0007-5784-2638

  ⨯
• Bernadette P. M. van Nesselrooij,

  Roles Methodology, Writing – review & editing

  Affiliation Department of Clinical Genetics, University Medical Center Utrecht, Utrecht, The Netherlands

  ⨯
• Mark J. C. van Treijen,

  Roles Methodology, Writing – review & editing

  Affiliation Department of Endocrine Oncology, University Medical Center Utrecht, Utrecht, The Netherlands

  ⨯
• Arthur J. A. T. Braat,

  Roles Writing – review & editing

  Affiliations Department of Radiology and Nuclear Medicine, University Medical Center Utrecht, Utrecht, The Netherlands, Department of Nuclear Medicine, Netherlands Cancer Institute, Amsterdam, The Netherlands

  https://orcid.org/0000-0002-8824-8697

  ⨯
• Mischa de Ridder,

  Roles Writing – review & editing

  Affiliation Department of Radiotherapy, University Medical Center Utrecht, Utrecht, The Netherlands

  ⨯
• Robert J. Stokroos,

  Roles Writing – review & editing

  Affiliation Department of Otolaryngology-Head and Neck Surgery, University Medical Center Utrecht, Utrecht, The Netherlands

  ⨯
• Remco de Bree,

  Roles Writing – review & editing

  Affiliations Department of Otolaryngology-Head and Neck Surgery, University Medical Center Utrecht, Utrecht, The Netherlands, Department of Head and Neck Surgical Oncology, University Medical Center Utrecht, Utrecht, The Netherlands

  ⨯
• Gert J. de Borst,

  Roles Supervision, Writing – review & editing

  Affiliation Department of Vascular Surgery, University Medical Center Utrecht, Utrecht, The Netherlands

  https://orcid.org/0000-0002-1389-4141

  ⨯
• Johannes A. Rijken ,

  Roles Methodology, Writing – review & editing

  ¶‡ JAR and BJP authors shared last authorship on this work.

  Affiliations Department of Otolaryngology-Head and Neck Surgery, University Medical Center Utrecht, Utrecht, The Netherlands, Department of Head and Neck Surgical Oncology, University Medical Center Utrecht, Utrecht, The Netherlands

  ⨯
• Bart-Jeroen Petri

  Roles Methodology, Writing – review & editing

  ¶‡ JAR and BJP authors shared last authorship on this work.

  Affiliation Department of Vascular Surgery, University Medical Center Utrecht, Utrecht, The Netherlands

  ⨯