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Open Access
Peer-reviewed
Research Article
Management of childbearing with hypermobile Ehlers-Danlos syndrome and hypermobility spectrum disorders: A scoping review and expert co-creation of evidence-based clinical guidelines
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Sally Pezaro ,
Roles Conceptualization, Data curation, Formal analysis, Investigation, Methodology, Project administration, Writing – original draft, Writing – review & editing
* E-mail: sally.pezaro@coventry.ac.uk
Affiliations Research Centre for Healthcare and Communities, Coventry University, Coventry, United Kingdom, The University of Notre Dame, Notre Dame, Australia
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Isabelle Brock,
Roles Conceptualization, Data curation, Formal analysis, Investigation, Writing – review & editing
Affiliation Department of Connective Tissue, Nova Combian Research Institute, New York, New York, United States of America
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Maggie Buckley,
Roles Data curation, Formal analysis, Investigation, Writing – review & editing
Affiliation The Ehlers Danlos Society’s International Consortium, New York, New York, United States of America
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Sarahann Callaway,
Roles Data curation, Formal analysis, Investigation, Writing – review & editing
Affiliation Main Line Health- Bryn Mawr Rehab, King of Prussia, Pennsylvania, United States of America
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Serwet Demirdas,
Roles Data curation, Formal analysis, Investigation, Writing – review & editing
Affiliation Department of Clinical Genetics, Erasmus Medical Centre, Rotterdam, The Netherlands
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Alan Hakim,
Roles Data curation, Formal analysis, Writing – original draft, Writing – review & editing
Affiliation The Ehlers-Danlos Society, The Ehlers-Danlos Society – Europe, London, United Kingdom
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Cheryl Harris,
Roles Data curation, Formal analysis, Investigation, Writing – review & editing
Affiliation Harris Whole Health, Fairfax, Virginia, United States of America
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Carole High Gross,
Roles Data curation, Formal analysis, Investigation, Writing – review & editing
Affiliation Lehigh Valley Health Network, Palmer, Pennsylvania, United States of America
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Megan Karanfil,
Roles Data curation, Formal analysis, Investigation, Writing – review & editing
Affiliation The International Consortium on the Ehlers-Danlos syndromes and Hypermobility Spectrum Disorders, The Herds Nerd, Baltimore, Maryland, United States of America
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Isabelle Le Ray,
Roles Data curation, Formal analysis, Investigation, Methodology, Validation, Writing – review & editing
Affiliation Integrative Systemic Medicine Center, Boulogne-Billancourt and Strasbourg University Hospital, Strasbourg, France
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Laura McGillis,
Roles Data curation, Formal analysis, Investigation, Writing – review & editing
Affiliation GoodHope EDS Program, Toronto General Hospital, Toronto, Ontario, Canada
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Bonnie Nasar,
Roles Data curation, Formal analysis, Investigation, Writing – review & editing
Affiliation Registered Dietitian Nutritionist, Ridgewood, New Jersey, United States of America
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Melissa Russo,
Roles Data curation, Formal analysis, Investigation, Validation, Writing – review & editing
Affiliation Women and Infants Hospital, An Affiliate of Warren Alpert Medical School at Brown University in Providence, Providence, Rhode Island, United States of America
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Lorna Ryan,
Roles Data curation, Formal analysis, Investigation, Writing – review & editing
Affiliation Lorna Ryan Health, London, United Kingdom
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Natalie Blagowidow
Roles Conceptualization, Data curation, Formal analysis, Investigation, Writing – original draft, Writing – review & editing
Affiliation Harvey Institute for Human Genetics, Greater Baltimore Medical Center, Baltimore, Maryland, United States of America
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Management of childbearing with hypermobile Ehlers-Danlos syndrome and hypermobility spectrum disorders: A scoping review and expert co-creation of evidence-based clinical guidelines
- Sally Pezaro,
- Isabelle Brock,
- Maggie Buckley,
- Sarahann Callaway,
- Serwet Demirdas,
- Alan Hakim,
- Cheryl Harris,
- Carole High Gross,
- Megan Karanfil,
- Isabelle Le Ray
- Published: May 15, 2024
- https://doi.org/10.1371/journal.pone.0302401