‘Integrating Ethics and Equity with Economics and Effectiveness for newborn screening in the genomic age: A qualitative study protocol of stakeholder perspectives

• Didu S. Kariyawasam ,

  Roles Conceptualization, Data curation, Investigation, Methodology

  * E-mail: didu.kariyawasam@health.nsw.gov.au

  ¶‡ DSK and JS are joint first authors on this work.

  Affiliations Department of Neurology, Sydney Children’s Hospital Network, Sydney, New South Wales, Australia, Discipline of Paediatrics and Child Health, School of Clinical Medicine, UNSW Medicine and Health, UNSW Sydney, Sydney, New South Wales, Australia

  https://orcid.org/0000-0002-4176-4010

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• Joanne Scarfe ,

  Roles Conceptualization

  ¶‡ DSK and JS are joint first authors on this work.

  Affiliation Faculty of Medicine and Health, Sydney School of Public Health, Menzies Centre for Health Policy & Economics, The University of Sydney, Camperdown, New South Wales, Australia

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• Christian Meagher,

  Roles Conceptualization, Data curation, Formal analysis, Investigation, Methodology

  Affiliation Discipline of Paediatrics and Child Health, School of Clinical Medicine, UNSW Medicine and Health, UNSW Sydney, Sydney, New South Wales, Australia

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• Michelle A. Farrar,

  Roles Conceptualization, Supervision

  Affiliations Department of Neurology, Sydney Children’s Hospital Network, Sydney, New South Wales, Australia, Discipline of Paediatrics and Child Health, School of Clinical Medicine, UNSW Medicine and Health, UNSW Sydney, Sydney, New South Wales, Australia

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• Kaustav Bhattacharya,

  Roles Conceptualization, Supervision

  Affiliations Discipline of Paediatrics and Child Health, School of Clinical Medicine, UNSW Medicine and Health, UNSW Sydney, Sydney, New South Wales, Australia, Genetic Metabolic Disorders Service, Sydney Children’s Hospital Network, Randwick and Westmead, New South Wales, Australia, Faculty of Medicine and Health, Discipline of Genomics, Sydney University, Westmead, New South Wales, Australia

  https://orcid.org/0000-0003-0518-5879

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• Stacy M. Carter,

  Roles Conceptualization

  Affiliation Australian Centre for Health Engagement, Evidence and Values, School of Health and Society, The University of Wollongong, Wollongong, New South Wales, Australia

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• Ainsley J. Newson,

  Roles Conceptualization

  Affiliation Sydney Health Ethics, Sydney School of Public Health, Faculty of Medicine and Health, The University of Sydney, Sydney, New South Wales, Australia

  https://orcid.org/0000-0002-3460-772X

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• Margaret Otlowski,

  Roles Conceptualization

  Affiliation Centre for Law and Genetics, Faculty of Law, College of Arts, Law and Education, University of Tasmania, Tasmania, Australia

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• Jo Watson,

  Roles Conceptualization

  Affiliation HTA Consumer Consultative Committee, Department of Health & Aged Care, Canberra, Australian Capital Territory, Australia

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• Nicole Millis,

  Roles Conceptualization

  Affiliation Rare Voices Australia, Mentone, Victoria, Australia

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• Sarah Norris

  Roles Conceptualization

  Affiliation Faculty of Medicine and Health, Sydney School of Public Health, Menzies Centre for Health Policy & Economics, The University of Sydney, Camperdown, New South Wales, Australia

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