Public and patient perspectives on the use of clinical and administrative health data to identify and contact people at risk of future illness—The case of chronic kidney disease

• Donald J. Willison ,

  Roles Conceptualization, Investigation, Methodology, Supervision, Writing – original draft, Writing – review & editing

  * E-mail: don.willison@utoronto.ca

  Affiliation Institute of Health Policy, Management and Evaluation, University of Toronto, Toronto, Ontario, Canada

  https://orcid.org/0000-0002-2848-3791

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• Danielle M. Nash,

  Roles Data curation, Formal analysis, Investigation, Writing – review & editing

  Affiliations ICES, Toronto, Ontario, Canada, Lawson Health Research Institute and London Health Sciences Centre, London, Ontario, Canada, Department of Epidemiology and Biostatistics, Schulich School of Medicine and Dentistry, Western University, London, Ontario, Canada

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• Sarah E. Bota,

  Roles Project administration, Writing – review & editing

  Affiliations ICES, Toronto, Ontario, Canada, Lawson Health Research Institute and London Health Sciences Centre, London, Ontario, Canada

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• Samar Almadhoun,

  Roles Project administration, Writing – review & editing

  Affiliations ICES, Toronto, Ontario, Canada, Lawson Health Research Institute and London Health Sciences Centre, London, Ontario, Canada

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• Teresa Scassa,

  Roles Conceptualization, Methodology, Writing – review & editing

  Affiliation Faculty of Law, Common Law Section, University of Ottawa, Ottawa, Ontario, Canada

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• Amit X. Garg,

  Roles Funding acquisition, Supervision, Writing – review & editing

  Affiliations ICES, Toronto, Ontario, Canada, Lawson Health Research Institute and London Health Sciences Centre, London, Ontario, Canada, Department of Epidemiology and Biostatistics, Schulich School of Medicine and Dentistry, Western University, London, Ontario, Canada, Division of Nephrology, Department of Medicine, Schulich School of Medicine and Dentistry, Western University, London, Ontario, Canada

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• Kidney Patient and Donor Alliance of Canada ,

  ¶Representatives of the Kidney Patient and Donor Alliance of Canada are listed in the Acknowledgments.

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• Ann Young

  Roles Conceptualization, Funding acquisition, Supervision, Writing – review & editing

  Affiliations ICES, Toronto, Ontario, Canada, Division of Nephrology, Unity Health and the University of Toronto, Toronto, Ontario, Canada

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