Single German centre experience with patient journey and care-relevant needs in amyloidosis: The German _AMY-NEED_S research and care program

• Sandra Michaela Ihne-Schubert ,

  Roles Conceptualization, Data curation, Formal analysis, Funding acquisition, Investigation, Methodology, Project administration, Visualization, Writing – original draft, Writing – review & editing

  * E-mail: ihne_s@ukw.de

  Affiliations Interdisciplinary Amyloidosis Centre of Northern Bavaria, University Hospital Würzburg, Würzburg, Germany, Department of Internal Medicine II, Hematology, University Hospital Würzburg, Würzburg, Germany, CIRCLE - Centre for Innovation Research, Lund University, Lund, Sweden, Department of Internal Medicine IV, University Hospital Gießen and Marburg, Gießen, Germany

  https://orcid.org/0000-0001-8540-7122

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• Maria Leberzammer,

  Roles Data curation, Writing – review & editing

  Affiliations Interdisciplinary Amyloidosis Centre of Northern Bavaria, University Hospital Würzburg, Würzburg, Germany, Department of Internal Medicine II, Hematology, University Hospital Würzburg, Würzburg, Germany

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• Marcel Weidgans,

  Roles Data curation, Writing – review & editing

  Affiliations Interdisciplinary Amyloidosis Centre of Northern Bavaria, University Hospital Würzburg, Würzburg, Germany, Department of Internal Medicine II, Hematology, University Hospital Würzburg, Würzburg, Germany

  https://orcid.org/0009-0004-6756-2267

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• Stefan Frantz,

  Roles Writing – review & editing

  Affiliations Interdisciplinary Amyloidosis Centre of Northern Bavaria, University Hospital Würzburg, Würzburg, Germany, Comprehensive Heart Failure Centre (CHFC) Würzburg, University and University Hospital Würzburg, Würzburg, Germany, Department of Internal Medicine I, Cardiology, University Hospital Würzburg, Würzburg, Germany

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• Hermann Einsele,

  Roles Writing – review & editing

  Affiliations Interdisciplinary Amyloidosis Centre of Northern Bavaria, University Hospital Würzburg, Würzburg, Germany, Department of Internal Medicine II, Hematology, University Hospital Würzburg, Würzburg, Germany

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• Stefan Knop,

  Roles Writing – review & editing

  Affiliation Department of Internal Medicine 5, Klinikum Nürnberg Nord, Nürnberg, Germany

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• Torben Schubert,

  Roles Formal analysis, Methodology, Visualization, Writing – review & editing

  Affiliations CIRCLE - Centre for Innovation Research, Lund University, Lund, Sweden, Competence Center Innovation and Knowledge Economy, Fraunhofer Institute for Systems and Innovation Research ISI, Karlsruhe, Germany

  https://orcid.org/0000-0001-9546-880X

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• Tanja Bratan,

  Roles Writing – review & editing

  Affiliation Competence Center Emerging Technologies, Business Unit “Innovations in the Health System”, Fraunhofer Institute for Systems and Innovation Research ISI, Karlsruhe, Germany

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• Stefan Störk,

  Roles Methodology, Writing – review & editing

  Affiliations Interdisciplinary Amyloidosis Centre of Northern Bavaria, University Hospital Würzburg, Würzburg, Germany, Comprehensive Heart Failure Centre (CHFC) Würzburg, University and University Hospital Würzburg, Würzburg, Germany, Department of Internal Medicine I, Cardiology, University Hospital Würzburg, Würzburg, Germany

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• Silke Neuderth

  Roles Conceptualization, Methodology, Writing – original draft, Writing – review & editing

  Affiliation Institute for Applied Social Sciences (IFAS) of the Technical University of Applied Sciences Würzburg-Schweinfurt (THWS), Würzburg, Germany

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