Psychosocial impact at the time of a rare disease diagnosis

• Juan Benito-Lozano,

  Roles Data curation, Formal analysis, Investigation, Methodology, Software, Validation, Visualization, Writing – original draft, Writing – review & editing

  Affiliations Institute of Rare Diseases Research (IIER), Instituto de Salud Carlos III (ISCIII), Madrid, Spain, Universidad Nacional de Educación a Distancia (UNED), Madrid, Spain

  https://orcid.org/0000-0002-5400-9057

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• Greta Arias-Merino,

  Roles Conceptualization, Formal analysis, Investigation, Methodology, Validation, Visualization, Writing – review & editing

  Affiliation Institute of Rare Diseases Research (IIER), Instituto de Salud Carlos III (ISCIII), Madrid, Spain

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• Mario Gómez-Martínez,

  Roles Data curation, Formal analysis, Investigation, Methodology, Software, Visualization, Writing – original draft, Writing – review & editing

  Affiliation Institute of Rare Diseases Research (IIER), Instituto de Salud Carlos III (ISCIII), Madrid, Spain

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• Beatriz Arconada-López,

  Roles Conceptualization, Investigation, Resources, Validation, Writing – original draft, Writing – review & editing

  Affiliation Spanish Federation of Rare Diseases (FEDER), Federación Española de Enfermedades Raras, Madrid, Spain

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• Begoña Ruiz-García,

  Roles Conceptualization, Investigation, Validation, Writing – review & editing

  Affiliation The State Reference Center for Assistance to People Living with Rare Diseases and their Families (Creer), Centro de Referencia Estatal de Atención a Personas con Enfermedades Raras y sus Familias, dependiente del IMSERSO, Burgos, Spain

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• Manuel Posada de la Paz,

  Roles Conceptualization, Formal analysis, Investigation, Methodology, Resources, Supervision, Validation, Visualization, Writing – review & editing

  Affiliations Institute of Rare Diseases Research (IIER), Instituto de Salud Carlos III (ISCIII), Madrid, Spain, Undiagnosed Diseases Network International (UDNI), Madrid, Spain

  https://orcid.org/0000-0002-8372-4180

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• Verónica Alonso-Ferreira

  Roles Conceptualization, Funding acquisition, Investigation, Methodology, Project administration, Resources, Supervision, Validation, Writing – review & editing

  * E-mail: valonso@isciii.es

  Affiliations Institute of Rare Diseases Research (IIER), Instituto de Salud Carlos III (ISCIII), Madrid, Spain, Centro de Investigación Biomédica en Red de Enfermedades Raras (CIBERER), Madrid, España

  https://orcid.org/0000-0002-8560-1336

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