Thinking globally to improve care locally: A Delphi study protocol to achieve international clinical consensus on best-practice end-of-life communication with adolescents and young adults with cancer

• Ursula M. Sansom-Daly ,

  Roles Conceptualization, Formal analysis, Funding acquisition, Investigation, Methodology, Project administration, Resources, Supervision, Writing – original draft, Writing – review & editing

  * E-mail: ursula@unsw.edu.au

  Affiliations Behavioural Sciences Unit proudly supported by the Kids with Cancer Foundation, Kids Cancer Centre, Sydney Children’s Hospital, Randwick, New South Wales, Australia, School of Clinical Medicine, UNSW Medicine & Health, Randwick Clinical Campus, Discipline of Paediatrics, UNSW Sydney, Kensington, New South Wales, Australia, Sydney Youth Cancer Service, Prince of Wales/Sydney Children’s Hospital, Randwick, New South Wales, Australia

  https://orcid.org/0000-0003-4200-8900

  ⨯
• Lori Wiener,

  Roles Conceptualization, Funding acquisition, Investigation, Methodology, Supervision, Writing – review & editing

  Affiliation Psychosocial Support and Research Program, Pediatric Oncology Branch, Center for Cancer Research, National Cancer Institute, National Institutes of Health, Bethesda, Maryland, United States of America

  https://orcid.org/0000-0002-9573-8870

  ⨯
• Anne-Sophie Darlington,

  Roles Conceptualization, Funding acquisition, Investigation, Methodology, Supervision, Writing – review & editing

  Affiliation School of Health Sciences, University of Southampton, Highfield, Southampton, United Kingdom

  ⨯
• Hanneke Poort,

  Roles Conceptualization, Funding acquisition, Investigation, Writing – review & editing

  Affiliation Department of Psychosocial Oncology and Palliative Care, Dana-Farber Cancer Institute, Boston, Massachusetts, United States of America

  ⨯
• Abby R. Rosenberg,

  Roles Conceptualization, Funding acquisition, Investigation, Methodology, Supervision, Writing – review & editing

  Affiliations Division of Hematology/Oncology, Department of Pediatrics, University of Washington School of Medicine, Seattle, Washington, United States of America, Palliative Care and Resilience Program, Seattle Children’s Research Institute, Seattle, Washington, United States of America, Cambia Palliative Care Center of Excellence, University of Washington School of Medicine, Seattle, Washington, United States of America

  ⨯
• Meaghann S. Weaver,

  Roles Conceptualization, Funding acquisition, Investigation, Supervision, Writing – review & editing

  Affiliations Divisions of Palliative Care & Pediatric Hematology/Oncology, University of Nebraska Medical Center, Lincoln, Nebraska, United States of America, National Center for Ethics in Health Care, Washington DC, Washington, United States of America

  ⨯
• Fiona Schulte,

  Roles Conceptualization, Funding acquisition, Investigation, Writing – review & editing

  Affiliations Division of Psychosocial Oncology, Department of Oncology, Cumming School of Medicine, University of Calgary, Calgary, Alberta, Canada, Hematology, Oncology and Transplant Program, Alberta Children’s Hospital, Calgary, Alberta, Canada

  ⨯
• Antoinette Anazodo,

  Roles Conceptualization, Funding acquisition, Investigation, Writing – review & editing

  Affiliations School of Clinical Medicine, UNSW Medicine & Health, Randwick Clinical Campus, Discipline of Paediatrics, UNSW Sydney, Kensington, New South Wales, Australia, Sydney Youth Cancer Service, Prince of Wales/Sydney Children’s Hospital, Randwick, New South Wales, Australia, Kids Cancer Centre, Sydney Children’s Hospital, Randwick, New South Wales, Australia

  ⨯
• Celeste Phillips,

  Roles Conceptualization, Funding acquisition, Investigation, Methodology, Writing – review & editing

  Affiliation School of Nursing, Indiana University, Indianapolis, Indiana, United States of America

  ⨯
• Louise Sue,

  Roles Conceptualization, Funding acquisition, Investigation, Methodology, Writing – review & editing

  Affiliation Adolescent and Young Adult Cancer Services Team, Canterbury District Health Board, Christchurch, New Zealand

  https://orcid.org/0000-0003-4091-5486

  ⨯
• Anthony R. Herbert,

  Roles Conceptualization, Funding acquisition, Investigation, Methodology, Writing – review & editing

  Affiliations Children’s Health Queensland Hospital and Health Service, South Brisbane, Queensland, Australia, Centre for Children’s Research, Queensland University of Technology, Brisbane, Queensland, Australia

  ⨯
• Jennifer W. Mack,

  Roles Conceptualization, Funding acquisition, Investigation, Methodology, Writing – review & editing

  Affiliation Population Sciences for Pediatric Hematology/Oncology, Dana-Farber Cancer Institute, Boston, Massachusetts, United States of America

  ⨯
• Toni Lindsay,

  Roles Conceptualization, Funding acquisition, Investigation, Methodology, Writing – review & editing

  Affiliation Chris O’Brien Lifehouse Cancer Centre, Camperdown, New South Wales, Australia

  https://orcid.org/0000-0003-4728-1578

  ⨯
• Holly Evans,

  Roles Data curation, Formal analysis, Project administration, Writing – original draft, Writing – review & editing

  Affiliations Behavioural Sciences Unit proudly supported by the Kids with Cancer Foundation, Kids Cancer Centre, Sydney Children’s Hospital, Randwick, New South Wales, Australia, School of Clinical Medicine, UNSW Medicine & Health, Randwick Clinical Campus, Discipline of Paediatrics, UNSW Sydney, Kensington, New South Wales, Australia

  ⨯
• Claire E. Wakefield,

  Roles Conceptualization, Funding acquisition, Investigation, Methodology, Supervision, Writing – review & editing

  Affiliations Behavioural Sciences Unit proudly supported by the Kids with Cancer Foundation, Kids Cancer Centre, Sydney Children’s Hospital, Randwick, New South Wales, Australia, School of Clinical Medicine, UNSW Medicine & Health, Randwick Clinical Campus, Discipline of Paediatrics, UNSW Sydney, Kensington, New South Wales, Australia

  https://orcid.org/0000-0001-7704-7067

  ⨯
•  [ ... ],
• on behalf of The Global Adolescent and Young Adult Cancer Accord End-of-Life Study Group

  ¶Membership of The Global Adolescent and Young Adult Cancer Accord End-of-Life Study Group is provided in the Acknowledgments

  ⨯
• [ view all ]
• [ view less ]