“I wanna live and not think about the future” what place for advance care planning for people living with severe multiple sclerosis and their families? A qualitative study

• Jonathan Koffman ,

  Roles Conceptualization, Formal analysis, Funding acquisition, Investigation, Methodology, Project administration, Supervision, Validation, Visualization, Writing – original draft, Writing – review & editing

  * E-mail: Jonathan.koffman@hyms.ac.uk

  Affiliations Hull York Medical School, Wolfson Palliative Care Research Centre, Hull, United Kingdom, King’s College London, Cicely Saunders Institute, London, United Kingdom

  https://orcid.org/0000-0001-8513-5681

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• Clarissa Penfold,

  Roles Data curation, Formal analysis, Investigation, Methodology, Project administration, Validation, Writing – original draft, Writing – review & editing

  Affiliation Hull York Medical School, Wolfson Palliative Care Research Centre, Hull, United Kingdom

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• Laura Cottrell,

  Roles Data curation, Investigation, Project administration, Writing – review & editing

  Affiliation Faculty of Nursing, Langara College, Vancouver, Canada

  https://orcid.org/0000-0001-6877-8343

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• Bobbie Farsides,

  Roles Conceptualization, Data curation, Funding acquisition, Investigation, Methodology, Validation, Writing – review & editing

  Affiliation Brighton and Sussex Medical School, Brighton, United Kingdom

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• Catherine J. Evans,

  Roles Writing – review & editing

  Affiliation King’s College London, Cicely Saunders Institute, London, United Kingdom

  https://orcid.org/0000-0003-0034-7402

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• Rachel Burman,

  Roles Funding acquisition, Writing – review & editing

  Affiliation King’s College Hospital NHS Foundation Trust, London, United Kingdom

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• Richard Nicholas,

  Roles Conceptualization, Funding acquisition, Writing – review & editing

  Affiliation United Kingdom Multiple Sclerosis Tissue Bank, Burlington Danes, Imperial College London, London, United Kingdom

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• Stephen Ashford,

  Roles Funding acquisition, Writing – review & editing

  Affiliations King’s College London, Cicely Saunders Institute, London, United Kingdom, Regional Hyper-Acute Rehabilitation Unit, Northwick Park Hospital, North West University, Harrow, United Kingdom

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• Eli Silber

  Roles Conceptualization, Funding acquisition, Methodology

  Affiliation King’s College Hospital NHS Foundation Trust, London, United Kingdom

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