Why does it take so long for rare disease patients to get an accurate diagnosis?—A qualitative investigation of patient experiences of hereditary angioedema

• Moeko Isono,

  Roles Conceptualization, Data curation, Formal analysis, Investigation, Methodology, Project administration, Writing – original draft, Writing – review & editing

  Affiliation Department of Biomedical Ethics and Public Policy, Graduate School of Medicine, Osaka University, Suita, Osaka, Japan

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• Minori Kokado,

  Roles Formal analysis, Investigation, Methodology, Writing – review & editing

  Affiliations Department of Biomedical Ethics and Public Policy, Graduate School of Medicine, Osaka University, Suita, Osaka, Japan, Faculty of Pharmacy, Kobe Pharmaceutical University, Kobe, Hyogo, Japan

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• Kazuto Kato

  Roles Conceptualization, Formal analysis, Funding acquisition, Investigation, Methodology, Project administration, Writing – review & editing

  * E-mail: kato@eth.med.osaka-u.ac.jp

  Affiliation Department of Biomedical Ethics and Public Policy, Graduate School of Medicine, Osaka University, Suita, Osaka, Japan

  https://orcid.org/0000-0001-9006-9551

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