Linking a European cohort of children born with congenital anomalies to vital statistics and mortality records: A EUROlinkCAT study

• M. Loane ,

  Roles Conceptualization, Data curation, Funding acquisition, Investigation, Methodology, Supervision, Validation, Writing – original draft, Writing – review & editing

  * E-mail: ma.loane@ulster.ac.uk

  Affiliation Faculty of Life and Health Sciences, Ulster University, Northern Ireland, United Kingdom

  https://orcid.org/0000-0002-1206-3637

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• J. E. Given,

  Roles Data curation, Investigation, Methodology, Validation, Writing – review & editing

  Affiliation Faculty of Life and Health Sciences, Ulster University, Northern Ireland, United Kingdom

  https://orcid.org/0000-0003-4921-1944

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• J. Tan,

  Roles Formal analysis, Investigation, Methodology, Writing – review & editing

  Affiliation Population Health Research Institute, St George’s, University of London, London, United Kingdom

  https://orcid.org/0000-0003-0462-4761

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• A. Reid,

  Roles Investigation, Methodology, Writing – review & editing

  Affiliation Population Health Research Institute, St George’s, University of London, London, United Kingdom

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• D. Akhmedzhanova,

  Roles Data curation, Investigation, Writing – review & editing

  Affiliation OMNI-Net for Children International Charitable Fund, Rivne Regional Medical Diagnostic Center, Rivne, Ukraine

  https://orcid.org/0000-0001-5845-2956

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• G. Astolfi,

  Roles Data curation, Investigation, Writing – review & editing

  Affiliation Emilia Romagna Registry of Birth Defects, University Hospital of Ferrara, Ferrara, Italy

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• I. Barišić,

  Roles Funding acquisition, Supervision, Writing – review & editing

  Affiliation Klinika za dječje bolesti, Zagreb, Croatia

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• N. Bertille,

  Roles Data curation, Investigation, Writing – review & editing

  Affiliation Institut National de la Santé et de la Recherche Médicale, Paris, France

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• L. B. Bonet,

  Roles Data curation, Investigation, Writing – review & editing

  Affiliation Rare Diseases Research Unit, Foundation for the Promotion of Health and Biomedical Research in the Valencian Region, Valencia, Spain

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• C. C. Carbonell,

  Roles Data curation, Investigation, Writing – review & editing

  Affiliation Rare Diseases Research Unit, Foundation for the Promotion of Health and Biomedical Research in the Valencian Region, Valencia, Spain

  https://orcid.org/0000-0002-4858-6456

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• O. Mokoroa Carollo,

  Roles Data curation, Investigation, Writing – review & editing

  Affiliation Departamento de Salud Gobierno Vasco, Basque Country, Spain

  https://orcid.org/0000-0003-3831-6089

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• A. Coi,

  Roles Data curation, Investigation, Writing – review & editing

  Affiliation Unit of Epidemiology of Rare Diseases and Congenital Anomalies, Institute of Clinical Physiology, National Research Council, Pisa, Italy

  https://orcid.org/0000-0002-9816-3144

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• J. Densem,

  Roles Conceptualization, Funding acquisition, Methodology, Writing – review & editing

  Affiliation Biomedical Computing Limited, Battle, United Kingdom

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• E. Draper,

  Roles Data curation, Investigation, Writing – review & editing

  Affiliation East Midlands & South Yorkshire Congenital Anomaly Registry, University of Leicester, Leicester, United Kingdom

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• E. Garne,

  Roles Conceptualization, Funding acquisition, Supervision, Writing – review & editing

  Affiliation Hospital Lillebaelt, Region Syddanmark, Denmark

  https://orcid.org/0000-0003-0430-2594

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• M. Gatt,

  Roles Data curation, Investigation, Writing – review & editing

  Affiliation Directorate for Health Information and Research, G’Mangia, Malta

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• S. V. Glinianaia,

  Roles Investigation, Methodology, Writing – review & editing

  Affiliation Faculty of Medical Sciences, Population Health Sciences Institute, Newcastle University, Newcastle upon Tyne, United Kingdom

  https://orcid.org/0000-0001-6690-4975

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• A. Heino,

  Roles Data curation, Investigation, Writing – review & editing

  Affiliation Finnish Institute for Health and Welfare, Helsinki, Finland

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• E. Den Hond,

  Roles Data curation, Investigation, Writing – review & editing

  Affiliation Provinciaal Instituut voor Hygiëne (PIH), Antwerpen, Belgium

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• S. Jordan,

  Roles Investigation, Supervision, Writing – review & editing

  Affiliation Swansea University, Wales, United Kingdom

  https://orcid.org/0000-0002-5691-2987

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• B. Khoshnood,

  Roles Data curation, Investigation, Writing – review & editing

  Affiliation Institut National de la Santé et de la Recherche Médicale, Paris, France

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• S. Kiuru-Kuhlefelt,

  Roles Data curation, Investigation, Supervision, Writing – review & editing

  Affiliation Finnish Institute for Health and Welfare, Helsinki, Finland

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• K. Klungsøyr,

  Roles Data curation, Investigation, Writing – review & editing

  Affiliation Division of Mental and Physical Health, Department of Global Public Health and Primary Care, Norwegian Institute of Public Health, University of Bergen, Bergen, Norway

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• N. Lelong,

  Roles Data curation, Investigation, Writing – review & editing

  Affiliation Institut National de la Santé et de la Recherche Médicale, Paris, France

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• L. R. Lutke,

  Roles Data curation, Investigation, Writing – review & editing

  Affiliation Department of Genetics, University Medical Center, University of Groningen, Groningen, The Netherlands

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• A. J. Neville,

  Roles Funding acquisition, Supervision, Writing – review & editing

  Affiliation Emilia Romagna Registry of Birth Defects, University Hospital of Ferrara, Ferrara, Italy

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• L. Ostapchuk,

  Roles Data curation, Investigation, Writing – review & editing

  Affiliation OMNI-Net for Children International Charitable Fund, Rivne Regional Medical Diagnostic Center, Rivne, Ukraine

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• A. Puccini,

  Roles Investigation, Writing – review & editing

  Affiliation Territorial Care Service, Emilia Romagna Health Authority, Bologna, Italy

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• A. Rissmann,

  Roles Data curation, Investigation, Writing – review & editing

  Affiliation Medical Faculty Otto-von-Guericke, Malformation Monitoring Centre Saxony-Anhalt, University Magdeburg, Magdeburg, Germany

  https://orcid.org/0000-0002-9437-2790

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• M. Santoro,

  Roles Data curation, Investigation, Writing – review & editing

  Affiliation Unit of Epidemiology of Rare Diseases and Congenital Anomalies, Institute of Clinical Physiology, National Research Council, Pisa, Italy

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• I. Scanlon,

  Roles Data curation, Investigation, Writing – review & editing

  Affiliation Swansea University, Wales, United Kingdom

  ⨯
• G. Thys,

  Roles Data curation, Investigation, Writing – review & editing

  Affiliation Provinciaal Instituut voor Hygiëne (PIH), Antwerpen, Belgium

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• D. Tucker,

  Roles Data curation, Investigation, Writing – review & editing

  Affiliation Public Health Wales, Wales, United Kingdom

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• S. K. Urhoj,

  Roles Data curation, Investigation, Writing – review & editing

  Affiliation Section of Epidemiology, University of Copenhagen, Copenhagen, Denmark

  https://orcid.org/0000-0002-2069-9723

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• H. E. K. de Walle,

  Roles Data curation, Funding acquisition, Supervision, Writing – review & editing

  Affiliation Department of Genetics, University Medical Center, University of Groningen, Groningen, The Netherlands

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• D. Wellesley,

  Roles Data curation, Investigation, Writing – review & editing

  Affiliation Wessex Clinical Genetics Service, Princess Anne Hospital, Southampton, United Kingdom

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• O. Zurriaga,

  Roles Data curation, Supervision, Writing – review & editing

  Affiliation Rare Diseases Research Unit, Foundation for the Promotion of Health and Biomedical Research in the Valencian Region, Valencia, Spain

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•  [ ... ],
• J. K. Morris

  Roles Conceptualization, Formal analysis, Funding acquisition, Investigation, Methodology, Project administration, Supervision, Writing – original draft, Writing – review & editing

  Affiliation Population Health Research Institute, St George’s, University of London, London, United Kingdom

  https://orcid.org/0000-0002-7164-612X

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