Is SF-12 a valid and reliable measurement of health-related quality of life among adults with Marfan syndrome? A confirmatory study

• Nathasha Udugampolage ,

  Contributed equally to this work with: Nathasha Udugampolage, Rosario Caruso, Alessandro Pini

  Roles Conceptualization, Data curation, Formal analysis, Funding acquisition, Methodology, Resources, Supervision, Validation, Writing – original draft, Writing – review & editing

  * E-mail: rosario.caruso@grupposandonato.it

  Affiliation Cardiovascular-Genetic Center, IRCCS Policlinico San Donato, San Donato Milanese, Italy

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• Rosario Caruso ,

  Contributed equally to this work with: Nathasha Udugampolage, Rosario Caruso, Alessandro Pini

  Roles Conceptualization, Data curation, Formal analysis, Funding acquisition, Methodology, Resources, Supervision, Validation, Visualization, Writing – original draft, Writing – review & editing

  Affiliation Health Professions Research and Development Unit, IRCCS Policlinico San Donato, San Donato Milanese, Italy

  https://orcid.org/0000-0002-7736-6209

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• Mariangela Panetta ,

  Roles Investigation, Project administration, Writing – original draft, Writing – review & editing

  ¶‡ These authors also contributed equally to this work.

  Affiliation Cardiovascular-Genetic Center, IRCCS Policlinico San Donato, San Donato Milanese, Italy

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• Edward Callus ,

  Roles Investigation, Project administration, Writing – original draft, Writing – review & editing

  ¶‡ These authors also contributed equally to this work.

  Affiliations Clinical Psychology Service, IRCCS Policlinico San Donato, Milan, Italy, Department of Biomedical Sciences for Health, Università degli Studi di Milano, Milan, Italy

  https://orcid.org/0000-0001-9286-1825

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• Federica Dellafiore ,

  Roles Investigation, Project administration, Writing – original draft, Writing – review & editing

  ¶‡ These authors also contributed equally to this work.

  Affiliation Health Professions Research and Development Unit, IRCCS Policlinico San Donato, San Donato Milanese, Italy

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• Arianna Magon ,

  Roles Investigation, Project administration, Writing – original draft, Writing – review & editing

  ¶‡ These authors also contributed equally to this work.

  Affiliation Health Professions Research and Development Unit, IRCCS Policlinico San Donato, San Donato Milanese, Italy

  https://orcid.org/0000-0003-0440-6940

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• Susan Marelli ,

  Roles Investigation, Project administration, Writing – original draft, Writing – review & editing

  ¶‡ These authors also contributed equally to this work.

  Affiliation Cardiovascular-Genetic Center, IRCCS Policlinico San Donato, San Donato Milanese, Italy

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• Alessandro Pini

  Contributed equally to this work with: Nathasha Udugampolage, Rosario Caruso, Alessandro Pini

  Roles Conceptualization, Data curation, Formal analysis, Funding acquisition, Methodology, Resources, Supervision, Validation, Writing – original draft, Writing – review & editing

  Affiliation Cardiovascular-Genetic Center, IRCCS Policlinico San Donato, San Donato Milanese, Italy

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