The patient journey of patients with Fabry disease, Gaucher disease and Mucopolysaccharidosis type II: A German-wide telephone survey

• Eugen Mengel,

  Roles Conceptualization, Methodology, Writing – review & editing

  Affiliations SphinCS GmbH – Clinical Science for LSD, Hochheim, Germany, Universitätsmedizin Mainz, Zentrum für Kinder- und Jugendmedizin, Villa Metabolica, Mainz, Germany

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• Jens Gaedeke,

  Roles Conceptualization, Methodology, Writing – review & editing

  Affiliation Charité – Universitätsmedizin Berlin, Klinik für Nephrologie und Intensivmedizin, Berlin, Germany

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• Holger Gothe ,

  Roles Supervision, Writing – original draft, Writing – review & editing

  * E-mail: holger.gothe@iges.com

  Affiliations IGES Institut GmbH, Department Health Services Research, Berlin, Germany, Chair for Health Sciences / Public Health, Medical Faculty “Carl Gustav Carus”, Technical University Dresden, Dresden, Germany, Department of Public Health, Institute of Public Health, Medical Decision Making and Health Technology Assessment, Health Services Research and Health Technology Assessment, UMIT – University for Health Sciences, Medical Informatics and Technology, Tyrol, Austria

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• Simon Krupka,

  Roles Data curation, Formal analysis, Visualization, Writing – original draft

  Affiliation IGES Institut GmbH, Department Health Services Research, Berlin, Germany

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• Anja Lachmann,

  Roles Conceptualization, Supervision, Writing – original draft, Writing – review & editing

  Affiliation Shire Deutschland GmbH, Berlin, Germany

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• Jörg Reinke,

  Roles Conceptualization, Methodology, Writing – review & editing

  Affiliations Universitätsmedizin Mainz, Zentrum für Kinder- und Jugendmedizin, Villa Metabolica, Mainz, Germany, Medizinische Zentrum für Erwachsene mit Behinderung (MZEB) der Kreuznacher Diakonie, Bad Kreuznach, Germany

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• Christoph Ohlmeier

  Roles Conceptualization, Formal analysis, Methodology, Project administration, Visualization, Writing – original draft, Writing – review & editing

  Affiliation IGES Institut GmbH, Department Health Services Research, Berlin, Germany

  https://orcid.org/0000-0002-2868-5211

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