Patient preferences and quality of life implications of ravulizumab (every 8 weeks) and eculizumab (every 2 weeks) for the treatment of paroxysmal nocturnal hemoglobinuria

• John Devin Peipert,

  Roles Conceptualization, Formal analysis, Investigation, Methodology, Writing – review & editing

  Affiliation Department of Medical Social Sciences, Northwestern University Feinberg School of Medicine, Chicago, IL, United States of America

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• Austin G. Kulasekararaj,

  Roles Conceptualization, Investigation, Methodology, Validation, Writing – review & editing

  Affiliation Department of Haematological Medicine, King’s College Hospital, NIHR/Wellcome King’s Clinical Research Facility, and King’s College London, London, United Kingdom

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• Anna Gaya,

  Roles Validation, Writing – review & editing

  Affiliation Department of Hematology, Hospital Clinic de Barcelona, Spain

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• Saskia M. C. Langemeijer,

  Roles Investigation, Writing – review & editing

  Affiliation Department of Hematology, Radboud University Medical Center, Nijmegen, Netherlands

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• Susan Yount,

  Roles Conceptualization, Data curation, Investigation, Methodology, Project administration, Supervision, Validation, Writing – review & editing

  Affiliation Department of Medical Social Sciences, Northwestern University Feinberg School of Medicine, Chicago, IL, United States of America

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• F. Ataulfo Gonzalez-Fernandez,

  Roles Investigation, Validation, Writing – review & editing

  Affiliation Department of Hematology, Hospital Universitario Clinico San Carlos, Madrid, Spain

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• Emilio Ojeda Gutierrez,

  Roles Investigation, Writing – review & editing

  Affiliation Department of Hematology, Hospital Universitario Puerta de Hierro Majadahonda, Madrid, Spain

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• Christa Martens,

  Roles Conceptualization, Data curation, Formal analysis, Investigation, Methodology, Project administration, Validation, Writing – original draft, Writing – review & editing

  Affiliation Department of Medical Social Sciences, Northwestern University Feinberg School of Medicine, Chicago, IL, United States of America

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• Amy Sparling,

  Roles Data curation, Formal analysis, Methodology, Project administration, Validation, Writing – review & editing

  Affiliation Department of Medical Social Sciences, Northwestern University Feinberg School of Medicine, Chicago, IL, United States of America

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• Kimberly A. Webster,

  Roles Methodology, Project administration, Writing – review & editing

  Affiliation Department of Medical Social Sciences, Northwestern University Feinberg School of Medicine, Chicago, IL, United States of America

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• David Cella,

  Roles Conceptualization, Methodology, Writing – review & editing

  Affiliation Department of Medical Social Sciences, Northwestern University Feinberg School of Medicine, Chicago, IL, United States of America

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• Ioannis Tomazos,

  Roles Conceptualization, Funding acquisition, Investigation, Resources, Supervision, Writing – review & editing

  Affiliation Alexion Pharmaceuticals, Inc., Boston, MA, United States of America

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• Masayo Ogawa,

  Roles Conceptualization, Data curation, Formal analysis, Methodology, Validation, Writing – review & editing

  Affiliation Alexion Pharmaceuticals, Inc., Boston, MA, United States of America

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• Caroline I. Piatek,

  Roles Investigation, Writing – review & editing

  Affiliation Department of Medicine, Jane Anne Nohl Division of Hematology, Keck School of Medicine of University of Southern California, Los Angeles, CA, United States of America

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• Richard Wells,

  Roles Investigation, Writing – review & editing

  Affiliation Department of Medicine, Sunnybrook Health Sciences Centre, Toronto, ON, Canada

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• Flore Sicre de Fontbrune,

  Roles Resources, Validation, Visualization, Writing – review & editing

  Affiliation Centre de Référence Aplasie Médullaire, Service d'Hématologie Greffe, Assistance Publique des Hôpitaux de Paris, Hôpital Saint-Louis, Paris, France

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• Alexander Röth,

  Roles Investigation, Writing – review & editing

  Affiliation Department of Hematology, West German Cancer Center, University Hospital Essen, University of Duisburg-Essen, Essen, Germany

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• Lindsay Mitchell,

  Roles Data curation, Investigation, Validation, Writing – review & editing

  Affiliation Department of Hematology, University Hospital Monklands, North Lanarkshire, Scotland

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• Anita Hill,

  Roles Conceptualization, Project administration, Validation, Writing – review & editing

  Current address: Alexion Pharmaceuticals, Inc., Boston, MA, United States of America

  Affiliation Department of Haematology, St James' Institute of Oncology, Leeds, United Kingdom

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•  [ ... ],
• Karen Kaiser

  Roles Conceptualization, Data curation, Funding acquisition, Investigation, Methodology, Project administration, Supervision, Writing – original draft, Writing – review & editing

  * E-mail: k-kaiser@northwestern.edu

  Affiliation Department of Medical Social Sciences, Northwestern University Feinberg School of Medicine, Chicago, IL, United States of America

  http://orcid.org/0000-0002-6550-5240

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