Assessing gastro-intestinal related quality of life in cystic fibrosis: Validation of PedsQL GI in children and their parents

• Mieke Boon ,

  Roles Conceptualization, Data curation, Formal analysis, Methodology, Supervision, Writing – original draft, Writing – review & editing

  * E-mail: mieke.boon@uzleuven.be

  Affiliation Cystic Fibrosis Center, Department of Pediatrics, University Hospital Gasthuisberg, Leuven, Belgium

  http://orcid.org/0000-0001-8138-5405

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• Ine Claes,

  Roles Data curation, Investigation, Methodology, Visualization, Writing – review & editing

  Affiliation Cystic Fibrosis Center, Department of Pediatrics, University Hospital Gasthuisberg, Leuven, Belgium

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• Trudy Havermans,

  Roles Conceptualization, Data curation, Investigation, Methodology, Supervision, Validation, Writing – original draft

  Affiliation Cystic Fibrosis Center, Department of Pediatrics, University Hospital Gasthuisberg, Leuven, Belgium

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• Victoria Fornés-Ferrer,

  Roles Data curation, Formal analysis, Methodology, Software, Visualization, Writing – review & editing

  Affiliation Instituto de Investigación Sanitaria La Fe de Valencia, Spain

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• Joaquim Calvo-Lerma,

  Roles Conceptualization, Data curation, Funding acquisition, Investigation, Methodology, Project administration, Visualization, Writing – original draft

  Affiliation Instituto de Investigación Sanitaria La Fe de Valencia, Spain

  http://orcid.org/0000-0001-7818-0652

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• Inês Asseiceira,

  Roles Data curation, Investigation, Writing – review & editing

  Affiliation Associação para a Investigação e Desenvolvimento da Faculdade de Medicina, Lisbon, Portugal

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• Anna Bulfamante,

  Roles Data curation, Investigation, Writing – review & editing

  Affiliation Università degli Studi di Milano, Fondazione IRCCS Ca’ Granda, Ospedale Maggiore Policlinico, Milan, Italy

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• María Garriga,

  Roles Data curation, Investigation, Writing – review & editing

  Affiliation Hospital Universitario Ramón y Cajal, Madrid, Spain

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• Etna Masip,

  Roles Data curation, Investigation, Writing – review & editing

  Affiliation Instituto de Investigación Sanitaria La Fe de Valencia, Spain

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• Sandra Woodcock,

  Roles Data curation, Investigation, Writing – review & editing

  Affiliation Erasmus Medical Center, Sophia Children’s Hospital, Rotterdam, Netherlands

  http://orcid.org/0000-0002-5702-2564

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• Sylvia Walet,

  Roles Data curation, Investigation, Writing – review & editing

  Affiliation Erasmus Medical Center, Sophia Children’s Hospital, Rotterdam, Netherlands

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• Celeste Barreto,

  Roles Data curation, Investigation, Writing – review & editing

  Affiliation Associação para a Investigação e Desenvolvimento da Faculdade de Medicina, Lisbon, Portugal

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• Carla Colombo,

  Roles Data curation, Investigation, Supervision, Writing – review & editing

  Affiliation Università degli Studi di Milano, Fondazione IRCCS Ca’ Granda, Ospedale Maggiore Policlinico, Milan, Italy

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• Paula Crespo,

  Roles Data curation, Formal analysis, Investigation, Project administration, Writing – review & editing

  Current address: Department of Heatlh Science, Universidad Europea Miguel de Cervantes, Valldolid, Spain.

  Affiliation Instituto de Investigación Sanitaria La Fe de Valencia, Spain

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• Els Van der Wiel,

  Roles Data curation, Project administration

  Affiliation Erasmus Medical Center, Sophia Children’s Hospital, Rotterdam, Netherlands

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• Jessie Hulst,

  Roles Conceptualization, Investigation, Methodology, Writing – review & editing

  Current address: Division of Gastroenterology, Hepatology and Nutrition, Hospital for Sick Children, Toronto, Canada.

  Affiliation Erasmus Medical Center, Sophia Children’s Hospital, Rotterdam, Netherlands

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• Sandra Martinez-Barona,

  Roles Data curation, Investigation, Writing – review & editing

  Affiliation Instituto de Investigación Sanitaria La Fe de Valencia, Spain

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• Rita Nobili,

  Roles Data curation, Investigation, Writing – review & editing

  Affiliation Università degli Studi di Milano, Fondazione IRCCS Ca’ Granda, Ospedale Maggiore Policlinico, Milan, Italy

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• Luisa Pereira,

  Roles Conceptualization, Methodology, Writing – review & editing

  Affiliation Associação para a Investigação e Desenvolvimento da Faculdade de Medicina, Lisbon, Portugal

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• Mar Ruperto,

  Roles Data curation, Investigation, Writing – review & editing

  Affiliation Hospital Universitario Ramón y Cajal, Madrid, Spain

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• Saioa Vicente,

  Roles Data curation, Investigation, Writing – review & editing

  Affiliation Hospital Universitario Ramón y Cajal, Madrid, Spain

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• Kris De Boeck,

  Roles Conceptualization, Investigation, Methodology, Supervision, Writing – original draft

  Affiliation Cystic Fibrosis Center, Department of Pediatrics, University Hospital Gasthuisberg, Leuven, Belgium

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• Carmen Ribes-Koninckx,

  Roles Conceptualization, Funding acquisition, Resources, Supervision, Writing – review & editing

  Affiliation Instituto de Investigación Sanitaria La Fe de Valencia, Spain

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•  [ ... ],
• for the MyCyFAPP consortium

  ¶Membership of the MyCyFAPP consortium is provided in the Acknowledgments.

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