From crisis to self-confidence and adaptation; Experiences of being a parent of a child with VACTERL association – A complex congenital malformation

• Ann-Marie Kassa ,

  Roles Conceptualization, Data curation, Formal analysis, Investigation, Methodology, Validation, Writing – original draft

  * E-mail: ann-marie.kassa@kbh.uu.se

  Affiliations Department of Women’s and Children’s Health, Uppsala University, Uppsala, Sweden, Department of Pediatric Surgery, University Children's Hospital, Uppsala, Sweden

  http://orcid.org/0000-0001-9788-6159

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• Helene Engstrand Lilja,

  Roles Conceptualization, Supervision, Validation, Writing – review & editing

  Affiliations Department of Women’s and Children’s Health, Uppsala University, Uppsala, Sweden, Department of Pediatric Surgery, University Children's Hospital, Uppsala, Sweden

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• Gunn Engvall

  Roles Conceptualization, Methodology, Supervision, Validation, Writing – review & editing

  Affiliation Department of Women’s and Children’s Health, Uppsala University, Uppsala, Sweden

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