Impact of severe polyhandicap on parents’ quality of life: A large French cross-sectional study

• Marie-Christine Rousseau ,

  Contributed equally to this work with: Marie-Christine Rousseau, Karine Baumstarck

  Roles Conceptualization, Data curation, Funding acquisition, Investigation

  * E-mail: marie-christine.rousseau@aphp.fr

  Affiliations Fédération des Hôpitaux de Polyhandicap et Multihandicap, Hôpital San Salvadour, Assistance Publique Hôpitaux de Paris, Hyères, France, EA 3279, Self-perceived Health Assessment Research Unit, School of Medicine, Aix Marseille Université, Marseille, France

  http://orcid.org/0000-0002-8065-8667

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• Karine Baumstarck ,

  Contributed equally to this work with: Marie-Christine Rousseau, Karine Baumstarck

  Roles Conceptualization, Funding acquisition, Methodology

  Affiliation EA 3279, Self-perceived Health Assessment Research Unit, School of Medicine, Aix Marseille Université, Marseille, France

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• Sherezad Khaldi-Cherif,

  Roles Investigation

  Affiliation Union Générale Caisse Assurance Maladie (UGECAM), Paris, France

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• Catherine Brisse,

  Roles Investigation

  Affiliation Comité d'Études, d'Éducation et de Soins Auprès des Personnes Polyhandicapées, Paris, France

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• Agnès Felce,

  Roles Investigation

  Affiliation Hôpital d’Hendaye, Assistance Publique Hôpitaux de Paris, Hendaye, France

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• Benjamin Moheng,

  Roles Investigation

  Affiliation EA 3279, Self-perceived Health Assessment Research Unit, School of Medicine, Aix Marseille Université, Marseille, France

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• Anderson Loundou,

  Roles Formal analysis

  Affiliation EA 3279, Self-perceived Health Assessment Research Unit, School of Medicine, Aix Marseille Université, Marseille, France

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• Thierry Billette de Villemeur,

  Roles Conceptualization, Funding acquisition, Investigation, Supervision

  Affiliations Sorbonne Université, UPMC, GRC ConCer-LD, Paris, France, Service de Neuropédiatrie—Pathologie du développement, Centre de référence des déficits intellectuels de causes rares, Hôpital Trousseau, Assistance Publique Hôpitaux de Paris, Paris, France, Service de Polyhandicap Pédiatrique, Assistance Publique Hôpitaux de Paris, Hôpital de La Roche Guyon, La Roche Guyon, France

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• Pascal Auquier,

  Roles Conceptualization, Funding acquisition, Methodology, Supervision, Validation

  Affiliation EA 3279, Self-perceived Health Assessment Research Unit, School of Medicine, Aix Marseille Université, Marseille, France

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• the French Polyhandicap Group

  ¶Membership of the French Polyhandicap Group is provided in the Acknowledgments.

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