Participant perspectives of a home-based palliative approach for people with severe multiple sclerosis: A qualitative study

Ambra Mara Giovannetti; Claudia Borreani; Elisabetta Bianchi; Andrea Giordano; Sabina Cilia; Susanna Cipollari; Ilaria Rossi; Claudia Cavallaro; Valentina Torri Clerici; Edoardo Rossetti; Maria Consiglia Stefanelli; Amadio Totis; Angelo Pappalardo; Gina Occhipinti; Paolo Confalonieri; Simone Veronese; Maria Grazia Grasso; Francesco Patti; Paola Zaratin; Mario Alberto Battaglia; Alessandra Solari; on behalf of the PeNSAMI project

doi:10.1371/journal.pone.0200532

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Open Access

Peer-reviewed

Research Article

Participant perspectives of a home-based palliative approach for people with severe multiple sclerosis: A qualitative study

Ambra Mara Giovannetti,

Roles Writing – original draft, Writing – review & editing

Affiliations Unit of Neuroepidemiology, Foundation IRCCS Neurological Institute C. Besta, Milan, Italy, Department of Neuroimmunology and Neuromuscular Diseases, Foundation IRCCS Neurological Institute C. Besta, Milan, Italy
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Claudia Borreani,

Roles Conceptualization, Formal analysis, Methodology, Writing – original draft, Writing – review & editing

Affiliation Unit of Clinical Psychology, Foundation IRCCS Istituto Nazionale per la Cura dei Tumori, Milan, Italy
⨯
Elisabetta Bianchi,

Roles Data curation, Formal analysis, Investigation, Writing – review & editing

Affiliation Unit of Clinical Psychology, Foundation IRCCS Istituto Nazionale per la Cura dei Tumori, Milan, Italy
⨯
Andrea Giordano,

Roles Conceptualization, Writing – review & editing

Affiliation Unit of Neuroepidemiology, Foundation IRCCS Neurological Institute C. Besta, Milan, Italy
⨯
Sabina Cilia,

Roles Data curation, Investigation, Writing – review & editing

Affiliation MS Centre, Neurology Clinic, University Hospital Policlinico Vittorio Emanuele, Catania, Italy
⨯
Susanna Cipollari,

Roles Data curation, Investigation, Writing – review & editing

Affiliation Multiple Sclerosis Unit, Foundation IRCCS S. Lucia, Rome, Italy
⨯
Ilaria Rossi,

Roles Writing – review & editing

Affiliation Multiple Sclerosis Unit, Foundation IRCCS S. Lucia, Rome, Italy
⨯
Claudia Cavallaro,

Roles Writing – review & editing

Affiliation MS Centre, Neurology Clinic, University Hospital Policlinico Vittorio Emanuele, Catania, Italy
⨯
Valentina Torri Clerici,

Roles Writing – review & editing

Affiliation Department of Neuroimmunology and Neuromuscular Diseases, Foundation IRCCS Neurological Institute C. Besta, Milan, Italy
⨯
Edoardo Rossetti,

Roles Writing – review & editing

Affiliation Department of Neuroimmunology and Neuromuscular Diseases, Foundation IRCCS Neurological Institute C. Besta, Milan, Italy
⨯
Maria Consiglia Stefanelli,

Roles Writing – review & editing

Affiliation ANTEA Charitable Foundation, Rome, Italy
⨯
Amadio Totis,

Roles Writing – review & editing

Affiliation Department of Neuroimmunology and Neuromuscular Diseases, Foundation IRCCS Neurological Institute C. Besta, Milan, Italy
⨯
Angelo Pappalardo,

Roles Writing – review & editing

Affiliation MS Centre, Neurology Clinic, University Hospital Policlinico Vittorio Emanuele, Catania, Italy
⨯
Gina Occhipinti,

Roles Writing – review & editing

Affiliation MS Centre, Neurology Clinic, University Hospital Policlinico Vittorio Emanuele, Catania, Italy
⨯
Paolo Confalonieri,

Roles Writing – review & editing

Affiliation Department of Neuroimmunology and Neuromuscular Diseases, Foundation IRCCS Neurological Institute C. Besta, Milan, Italy
⨯
Simone Veronese,

Roles Writing – review & editing

Affiliation FARO Charitable Foundation, Turin, Italy
⨯
Maria Grazia Grasso,

Roles Writing – review & editing

Affiliation Multiple Sclerosis Unit, Foundation IRCCS S. Lucia, Rome, Italy
⨯
Francesco Patti,

Roles Writing – review & editing

Affiliation MS Centre, Neurology Clinic, University Hospital Policlinico Vittorio Emanuele, Catania, Italy
⨯
Paola Zaratin,

Roles Writing – review & editing

Affiliation Scientific Research Area, Italian Multiple Sclerosis Foundation (FISM), Genoa, Italy
⨯
Mario Alberto Battaglia,

Roles Writing – review & editing

Affiliation Department of Life Sciences, University of Siena, Siena, Italy
⨯
Alessandra Solari ,

Roles Conceptualization, Funding acquisition, Project administration, Supervision, Writing – original draft, Writing – review & editing

* E-mail: alessandra.solari@istituto-besta.it

Affiliation Unit of Neuroepidemiology, Foundation IRCCS Neurological Institute C. Besta, Milan, Italy

http://orcid.org/0000-0001-9930-7579

⨯
[ ... ],
on behalf of the PeNSAMI project

¶Membership of the PeNSAMI Project is provided in the Acknowledgments.
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Participant perspectives of a home-based palliative approach for people with severe multiple sclerosis: A qualitative study

Ambra Mara Giovannetti,
Claudia Borreani,
Elisabetta Bianchi,
Andrea Giordano,
Sabina Cilia,
Susanna Cipollari,
Ilaria Rossi,
Claudia Cavallaro,
Valentina Torri Clerici,
Edoardo Rossetti

Published: July 12, 2018
https://doi.org/10.1371/journal.pone.0200532

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