Adequacy of care management of patients with polyhandicap in the French health system: A study of 782 patients

• Marie-Christine Rousseau ,

  Contributed equally to this work with: Marie-Christine Rousseau, Karine Baumstarck

  Roles Conceptualization, Data curation, Funding acquisition, Investigation, Supervision, Validation, Writing – original draft

  Affiliations Fédération des Hôpitaux de Polyhandicap et Multihandicap Hôpital San Salvadour, Assistance Publique Hôpitaux de Paris, Hyères, France, EA 3279, CEReSS—Health Service Research and Quality of Life Center, Aix Marseille Université, 27 bd Jean Moulin, Marseille, France

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• Thierry Billette de Villemeur,

  Roles Conceptualization, Data curation, Investigation, Supervision, Writing – review & editing

  Affiliations Sorbonne Université, UPMC, GRC ConCer-LD and AP-HP, Hôpital Trousseau, Service de Neuropédiatrie—Pathologie du développement, Paris, France, Centre de référence des déficits intellectuels de causes rares, Inserm, Paris, France, Hôpital de La Roche Guyon, Service de Polyhandicap Pédiatrique, Assistance Publique Hôpitaux de Paris, La Roche Guyon, France

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• Sherezad Khaldi-Cherif,

  Roles Data curation, Writing – review & editing

  Affiliation Union Générale Caisse Assurance Maladie (UGECAM), Ile de France, Paris, France

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• Catherine Brisse,

  Roles Data curation, Writing – review & editing

  Affiliation Comité d'Études, d'Éducation et de Soins Auprès des Personnes Polyhandicapées, Paris, France

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• Agnès Felce,

  Roles Data curation, Writing – review & editing

  Affiliation Hôpital d’Hendaye, Assistance Publique Hôpitaux de Paris, Hendaye, France

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• Karine Baumstarck ,

  Contributed equally to this work with: Marie-Christine Rousseau, Karine Baumstarck

  Roles Conceptualization, Methodology, Supervision, Validation, Writing – original draft

  * E-mail: karine.baumstarck@univ-amu.fr

  Affiliation EA 3279, CEReSS—Health Service Research and Quality of Life Center, Aix Marseille Université, 27 bd Jean Moulin, Marseille, France

  http://orcid.org/0000-0003-3602-6766

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• Pascal Auquier,

  Roles Conceptualization, Formal analysis, Methodology, Validation, Writing – original draft, Writing – review & editing

  Affiliation EA 3279, CEReSS—Health Service Research and Quality of Life Center, Aix Marseille Université, 27 bd Jean Moulin, Marseille, France

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• on behalf of the French Polyhandicap Group

  ¶Membership of the French Polyhandicap Group is provided in the Acknowledgments.

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