Healthcare resource use and costs of managing children and adults with lysosomal acid lipase deficiency at a tertiary referral centre in the United Kingdom

• Julian F. Guest ,

  Roles Conceptualization, Data curation, Formal analysis, Funding acquisition, Investigation, Methodology, Project administration, Resources, Software, Supervision, Validation, Visualization, Writing – original draft, Writing – review & editing

  * E-mail: julian.guest@catalyst-health.com

  Affiliations Catalyst Health Economics Consultants, Rickmansworth, Hertfordshire, United Kingdom, Faculty of Life Sciences and Medicine, King’s College, London, United Kingdom

  http://orcid.org/0000-0003-0162-2007

  ⨯
• Andy Ingram,

  Roles Data curation, Investigation, Methodology, Writing – review & editing

  Affiliation Catalyst Health Economics Consultants, Rickmansworth, Hertfordshire, United Kingdom

  ⨯
• Nadia Ayoub,

  Roles Data curation, Formal analysis, Investigation, Validation, Writing – review & editing

  Affiliation Catalyst Health Economics Consultants, Rickmansworth, Hertfordshire, United Kingdom

  ⨯
• Christian J. Hendriksz,

  Roles Investigation, Methodology, Resources, Writing – review & editing

  Affiliations Adult Inherited Metabolic Disorders, Salford Royal NHS Foundation Trust, Salford, United Kingdom, Paediatrics and Child Health, University of Pretoria, Pretoria, South Africa

  ⨯
• Elaine Murphy,

  Roles Investigation, Methodology, Resources, Writing – review & editing

  Affiliation Charles Dent Metabolic Unit, National Hospital for Neurology and Neurosurgery, London, United Kingdom

  ⨯
• Yusof Rahman,

  Roles Investigation, Methodology, Resources, Writing – review & editing

  Affiliation Adult Inherited Metabolic Disease, Guy's & St Thomas' Hospital, London, United Kingdom

  ⨯
• Patrick McKiernan,

  Roles Investigation, Methodology, Resources, Writing – review & editing

  Affiliation The Liver Unit, Birmingham Children's Hospital, Birmingham, United Kingdom

  ⨯
• Helen Mundy,

  Roles Resources, Writing – review & editing

  Affiliation Evelina Children's Hospital, Guy's & St Thomas' Hospital, London, United Kingdom

  ⨯
• Patrick Deegan

  Roles Investigation, Methodology, Resources, Validation, Writing – original draft, Writing – review & editing

  Affiliation Lysosomal Disorders Unit, Addenbrooke's Hospital, Cambridge, United Kingdom

  ⨯