Maintaining primacy of the patient perspective in the development of patient-centered patient reported outcomes

• Rochelle E. Tractenberg ,

  * E-mail: rochelle.tractenberg@gmail.com

  Affiliations Collaborative for Research on Outcomes and –Metrics, Georgetown University Medical Center, Washington, D.C., United States of America, Department of Neurology, Georgetown University Medical Center, Washington, D.C., United States of America, Department of Biostatistics, Bioinformatics & Biomathematics, Georgetown University Medical Center, Washington, D.C., United States of America

  http://orcid.org/0000-0002-1121-2119

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• Amanda Garver,

  Affiliation Department of Rehabilitation Medicine, Georgetown University Medical Center, Washington, D.C., United States of America

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• Inger H. Ljungberg,

  Affiliations Department of Rehabilitation Medicine, Georgetown University Medical Center, Washington, D.C., United States of America, MedStar National Rehabilitation Hospital, Washington, D.C., United States of America

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• Manon M. Schladen,

  Affiliations Department of Rehabilitation Medicine, Georgetown University Medical Center, Washington, D.C., United States of America, MedStar National Rehabilitation Hospital, Washington, D.C., United States of America, MedStar Health Research Health Institute, Hyattsville, Maryland, United States of America

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• Suzanne L. Groah

  Affiliations Department of Rehabilitation Medicine, Georgetown University Medical Center, Washington, D.C., United States of America, MedStar National Rehabilitation Hospital, Washington, D.C., United States of America

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