Self-Reported Health Experiences of Children Living with Congenital Heart Defects: Including Patient-Reported Outcomes in a National Cohort Study

• Rachel Louise Knowles ,

  * E-mail: rachel.knowles@ucl.ac.uk

  Affiliation Life Course Epidemiology and Biostatistics Section, Population Policy and Practice Programme, UCL Institute of Child Health, University College London, London, United Kingdom

  http://orcid.org/0000-0002-5490-7682

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• Valerija Tadic,

  Affiliation Life Course Epidemiology and Biostatistics Section, Population Policy and Practice Programme, UCL Institute of Child Health, University College London, London, United Kingdom

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• Ailbhe Hogan,

  Affiliation Life Course Epidemiology and Biostatistics Section, Population Policy and Practice Programme, UCL Institute of Child Health, University College London, London, United Kingdom

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• Catherine Bull,

  Affiliation Cardiac Unit, Great Ormond Street Hospital for Children NHS Trust, London, United Kingdom

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• Jugnoo Sangeeta Rahi,

  Affiliation Life Course Epidemiology and Biostatistics Section, Population Policy and Practice Programme, UCL Institute of Child Health, University College London, London, United Kingdom

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• Carol Dezateux,

  Affiliation Life Course Epidemiology and Biostatistics Section, Population Policy and Practice Programme, UCL Institute of Child Health, University College London, London, United Kingdom

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• UK Collaborative Study of Congenital Heart Defects (UKCSCHD)

  ¶Membership of the UK Collaborative Study of Congenital Heart Defects (UKCSCHD) is provided in the Acknowledgments.

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