Long-Term Use of Everolimus in Patients with Tuberous Sclerosis Complex: Final Results from the EXIST-1 Study

• David N. Franz ,

  * E-mail: David.Franz@cchmc.org

  Affiliation Department of Neurology, Cincinnati Children’s Hospital Medical Center, Cincinnati, Ohio, United States of America

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• Elena Belousova,

  Affiliation Department of Pediatrics, Research and Clinical Institute of Pediatrics, Pirogov Russian National Research Medical University, Moscow, Russia

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• Steven Sparagana,

  Affiliation Department of Neurology, Texas Scottish Rite Hospital for Children, Dallas, Texas, United States of America

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• E. Martina Bebin,

  Affiliation Department of Neurology, University of Alabama School of Medicine, Birmingham, Alabama, United States of America

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• Michael D. Frost,

  Affiliation Department of Neurology, Minnesota Epilepsy Group, St. Paul, Minnesota, United States of America

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• Rachel Kuperman,

  Affiliation Department of Neurology, Children’s Hospital and Research Center, Oakland, California, United States of America

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• Olaf Witt,

  Affiliation Department of Oncology, University of Heidelberg Medical Center and German Cancer Research Center, Heidelberg, Germany

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• Michael H. Kohrman,

  Affiliation Department of Neurology, University of Chicago, Chicago, Illinois, United States of America

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• J. Robert Flamini,

  Affiliation Department of Neurology, Children’s Healthcare of Atlanta, Atlanta, Georgia, United States of America

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• Joyce Y. Wu,

  Affiliation Department of Neurology, Mattel Children’s Hospital at the University of California Los Angeles, Los Angeles, California, United States of America

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• Paolo Curatolo,

  Affiliation Department of Neurology, University of Rome Tor Vergata, Rome, Italy

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• Petrus J. de Vries,

  Affiliation Department of Psychiatry and Mental Health, Division of Child & Adolescent Psychiatry, University of Cape Town, Cape Town, South Africa

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• Noah Berkowitz,

  Affiliation Department of Oncology, Novartis Pharmaceuticals Corporation, East Hanover, New Jersey, United States of America

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• Julie Niolat,

  Affiliation Department of Oncology, Novartis Pharmaceuticals S.A.S., Rueil-Malmaison, France

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• Sergiusz Jóźwiak

  Affiliation Department of Pediatric Neurology, Medical University of Warsaw, Warsaw, Poland

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