Involving Families with Osteogenesis Imperfecta in Health Service Research: Joint Development of the OI/ECE Questionnaire

• Maman Joyce Dogba ,

  * E-mail: joyce-maman.dogba@fmed.ulaval.ca

  Affiliation Department of Family and Emergency Medicine, Faculty of Medicine, Université Laval, Québec City, Quebec, Canada

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• Noémi Dahan-Oliel,

  Affiliation Office of Clinical Research, Shriners Hospital for Children, Montreal, Quebec, Canada

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• Laurie Snider,

  Affiliation School of Physical and Occupational Therapy, McGill University, Montreal, Quebec, Canada

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• Francis H. Glorieux,

  Affiliation Genetics Unit, Shriners Hospital for Children, Montreal, Quebec, Canada

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• Michaela Durigova,

  Affiliation Genetics Unit, Shriners Hospital for Children, Montreal, Quebec, Canada

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• Telma Palomo,

  Affiliation Genetics Unit, Shriners Hospital for Children, Montreal, Quebec, Canada

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• Michel Cordey,

  Affiliation Genetics Unit, Shriners Hospital for Children, Montreal, Quebec, Canada

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• Marie-Hélène Bédard,

  Affiliation Genetics Unit, Shriners Hospital for Children, Montreal, Quebec, Canada

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• Christophe Bedos,

  Affiliations Faculty of Dentistry, McGill University, Montreal, Quebec, Canada, Department of Social and Preventive Medicine, Faculty of Medicine, Université de Montréal, Montreal, Quebec, Canada

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• Frank Rauch

  Affiliation Genetics Unit, Shriners Hospital for Children, Montreal, Quebec, Canada

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