Patient Engagement Practices in Clinical Research among Patient Groups, Industry, and Academia in the United States: A Survey

• Sophia K. Smith ,

  * E-mail: sophia.smith@duke.edu

  Affiliation School of Nursing, Duke University, Durham, NC, United States of America

  ⨯
• Wendy Selig,

  Affiliation WS Collaborative, McLean, VA, United States of America

  ⨯
• Matthew Harker,

  Affiliation Clinical Trials Transformation Initiative, Duke Clinical Research Institute, Durham, NC, United States of America

  ⨯
• Jamie N. Roberts,

  Affiliation Clinical Trials Transformation Initiative, Duke Clinical Research Institute, Durham, NC, United States of America

  ⨯
• Sharon Hesterlee,

  Affiliation Parent Project Muscular Dystrophy, Hackensack, NJ, United States of America

  ⨯
• David Leventhal,

  Affiliation Pfizer Worldwide Research and Development, Groton, CT, United States of America

  ⨯
• Richard Klein,

  Affiliation U.S. Food and Drug Administration, Silver Spring, MD, United States of America

  ⨯
• Bray Patrick-Lake,

  Affiliation Clinical Trials Transformation Initiative, Duke Clinical Research Institute, Durham, NC, United States of America

  ⨯
• Amy P. Abernethy

  Affiliation Flatiron Health, New York, NY, United States of America

  ⨯