Upper Limb Evaluation and One-Year Follow Up of Non-Ambulant Patients with Spinal Muscular Atrophy: An Observational Multicenter Trial

• Andreea Mihaela Seferian ,

  Contributed equally to this work with: Andreea Mihaela Seferian, Amélie Moraux

  Affiliation Institute of Myology, Paris, France

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• Amélie Moraux ,

  Contributed equally to this work with: Andreea Mihaela Seferian, Amélie Moraux

  Affiliation Institute of Myology, Paris, France

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• Aurélie Canal,

  Affiliation Institute of Myology, Paris, France

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• Valérie Decostre,

  Affiliation Institute of Myology, Paris, France

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• Oumar Diebate,

  Affiliation Institute of Myology, Paris, France

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• Anne Gaëlle Le Moing,

  Affiliations Institute of Myology, Paris, France, Department of Child Neurology, Centre Hospitalier Universitaire Amiens-Picardie, Amiens, France

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• Teresa Gidaro,

  Affiliation Institute of Myology, Paris, France

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• Nicolas Deconinck,

  Affiliation Department of Pediatrics, Division of Pediatric Neurology and Metabolism, Neuromuscular Reference Center, Universitair Ziekenhuis Gent, Gent, Belgium

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• Frauke Van Parys,

  Affiliation Department of Pediatrics, Division of Pediatric Neurology and Metabolism, Neuromuscular Reference Center, Universitair Ziekenhuis Gent, Gent, Belgium

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• Wendy Vereecke,

  Affiliation Department of Pediatrics, Division of Pediatric Neurology and Metabolism, Neuromuscular Reference Center, Universitair Ziekenhuis Gent, Gent, Belgium

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• Sylvia Wittevrongel,

  Affiliation Department of Pediatrics, Division of Pediatric Neurology and Metabolism, Neuromuscular Reference Center, Universitair Ziekenhuis Gent, Gent, Belgium

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• Mélanie Annoussamy,

  Affiliation Institute of Myology, Paris, France

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• Michèle Mayer,

  Affiliation Reference Center for Neuromuscular Disease, Assistance Publique-Hôpitaux de Paris—Hôpital Trousseau, Paris, France

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• Kim Maincent,

  Affiliation Reference Center for Neuromuscular Disease, Assistance Publique-Hôpitaux de Paris—Hôpital Trousseau, Paris, France

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• Jean-Marie Cuisset,

  Affiliation Department of Pediatrics, Centre Hospitalier Régional Universitaire de Lille—Hôpital Roger Salengro, Lille, France

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• Vincent Tiffreau,

  Affiliation Department of Physical Medicine and Rehabilitation, Centre Hospitalier Régional Universitaire de Lille—Hôpital Pierre Swynghedauw, Lille, France

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• Severine Denis,

  Affiliation Reference Center for Neuromuscular Disease, Centre Hospitalier Régional de La Citadelle, Liège, Belgium

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• Virginie Jousten,

  Affiliation Reference Center for Neuromuscular Disease, Centre Hospitalier Régional de La Citadelle, Liège, Belgium

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• Susana Quijano-Roy,

  Affiliation Department of Pediatrics, Centre de références Maladies Neuromusculaires Garches-Necker-Mondor-Hendaye and Endicap U1179 INSERM—Université de Versailles-Saint-Quentin-en-Yvelines, Assistance Publique-Hôpitaux de Paris—Hôpital Raymond-Poincaré, Garches, France

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• Thomas Voit,

  Affiliations Institute of Myology, Paris, France, Thérapie des maladies du muscle strié / Institut de Myologie, Unité Mixte de Recherche S 974 Université Pierre et Marie Curie—Institut national de la santé et de la recherche médicale—Formation de Recherche en Evolution 3617 Centre national de la recherche scientifique—Association Institut de Myologie, Paris, France

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• Jean-Yves Hogrel ,

  ¶‡ These authors also contributed equally to this work.

  Affiliation Institute of Myology, Paris, France

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•  [ ... ],
• Laurent Servais

  * E-mail: l.servais@institut-myologie.org

  ¶‡ These authors also contributed equally to this work.

  Affiliations Institute of Myology, Paris, France, Reference Center for Neuromuscular Disease, Centre Hospitalier Régional de La Citadelle, Liège, Belgium

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