Upper Limb Strength and Function Changes during a One-Year Follow-Up in Non-Ambulant Patients with Duchenne Muscular Dystrophy: An Observational Multicenter Trial

• Andreea Mihaela Seferian ,

  * E-mail: a.totoescu@institut-myologie.org

  ¶‡ AMS and AM contributed equally to this work.

  Affiliation Institute of Myology, Paris, France

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• Amélie Moraux ,

  ¶‡ AMS and AM contributed equally to this work.

  Affiliation Institute of Myology, Paris, France

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• Mélanie Annoussamy,

  Affiliation Institute of Myology, Paris, France

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• Aurélie Canal,

  Affiliation Institute of Myology, Paris, France

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• Valérie Decostre,

  Affiliation Institute of Myology, Paris, France

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• Oumar Diebate,

  Affiliation Institute of Myology, Paris, France

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• Anne-Gaëlle Le Moing,

  Affiliations Institute of Myology, Paris, France, Department of Child Neurology, Groupe de Recherches sur l’Analyse Multimodale de la Fonction Cérébrale, Centre Hospitalier Universitaire d’Amiens, Amiens, France

  ⨯
• Teresa Gidaro,

  Affiliation Institute of Myology, Paris, France

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• Nicolas Deconinck,

  Affiliation Department of Pediatrics, Division of Pediatric Neurology and Metabolism, Neuromuscular Reference Center, Universitair Ziekenhuis Gent, Gent, Belgium

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• Frauke Van Parys,

  Affiliation Department of Pediatrics, Division of Pediatric Neurology and Metabolism, Neuromuscular Reference Center, Universitair Ziekenhuis Gent, Gent, Belgium

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• Wendy Vereecke,

  Affiliation Department of Pediatrics, Division of Pediatric Neurology and Metabolism, Neuromuscular Reference Center, Universitair Ziekenhuis Gent, Gent, Belgium

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• Sylvia Wittevrongel,

  Affiliation Department of Pediatrics, Division of Pediatric Neurology and Metabolism, Neuromuscular Reference Center, Universitair Ziekenhuis Gent, Gent, Belgium

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• Michèle Mayer,

  Affiliation Department of Child Neurology, Assistance Publique—Hôpitaux de Paris Hôpital Trousseau, Paris, France

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• Kim Maincent,

  Affiliation Department of Child Neurology, Assistance Publique—Hôpitaux de Paris Hôpital Trousseau, Paris, France

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• Isabelle Desguerre,

  Affiliation Department of Child Neurology, Assistance Publique—Hôpitaux de Paris Hôpital Necker Enfants Malades, Paris, France

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• Christine Thémar-Noël,

  Affiliation Institute of Myology, Paris, France

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• Jean-Marie Cuisset,

  Affiliation Department of Child Neurology, Centre Hospitalier Régional Universitaire de Lille—Hôpital Roger-Salengro, Lille, France

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• Vincent Tiffreau,

  Affiliation Department of Physical Medicine and Rehabilitation, Centre Hospitalier Régional Universitaire de Lille—Hopital Pierre Swynghedauw, Lille, France

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• Severine Denis,

  Affiliation Reference Center for Neuromuscular Disease, Centre hospitalier régional de la Citadelle, Liège, Belgium

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• Virginie Jousten,

  Affiliation Reference Center for Neuromuscular Disease, Centre hospitalier régional de la Citadelle, Liège, Belgium

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• Susana Quijano-Roy,

  Affiliation Department of Pediatrics, Centre de références Maladies Neuromusculaires Garches-Necker-Mondor-Hendaye, Université de Versailles Saint-Quentin-en-Yvelines Assistance Publique—Hôpitaux de Paris Hôpital Raymond Poincaré, Garches, France

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• Thomas Voit,

  Affiliations Institute of Myology, Paris, France, Thérapie des maladies du muscle strié / Institut de Myologie, Unité Mixte de Recherche S 974 Université Pierre et Marie Curie—Institut national de la santé et de la recherche médicale—Formation de Recherche en Evolution 3617 Centre national de la recherche scientifique—Association Institut de Myologie, Paris, France

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• Jean-Yves Hogrel ,

  ¶JYH and LS also contributed equally to this work.

  Affiliation Institute of Myology, Paris, France

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•  [ ... ],
• Laurent Servais

  ¶JYH and LS also contributed equally to this work.

  Affiliations Institute of Myology, Paris, France, Reference Center for Neuromuscular Disease, Centre hospitalier régional de la Citadelle, Liège, Belgium

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