About the Authors

Sally Pezaro

Roles Conceptualization, Data curation, Formal analysis, Investigation, Methodology, Project administration, Writing – original draft, Writing – review & editing

sally.pezaro@coventry.ac.uk

Affiliations Research Centre for Healthcare and Communities, Coventry University, Coventry, United Kingdom, The University of Notre Dame, Notre Dame, Australia

Isabelle Brock

Roles Conceptualization, Data curation, Formal analysis, Investigation, Writing – review & editing

Affiliation Department of Connective Tissue, Nova Combian Research Institute, New York, New York, United States of America

Maggie Buckley

Roles Data curation, Formal analysis, Investigation, Writing – review & editing

Affiliation The Ehlers Danlos Society’s International Consortium, New York, New York, United States of America

Sarahann Callaway

Roles Data curation, Formal analysis, Investigation, Writing – review & editing

Affiliation Main Line Health- Bryn Mawr Rehab, King of Prussia, Pennsylvania, United States of America

Serwet Demirdas

Roles Data curation, Formal analysis, Investigation, Writing – review & editing

Affiliation Department of Clinical Genetics, Erasmus Medical Centre, Rotterdam, The Netherlands

Alan Hakim

Roles Data curation, Formal analysis, Writing – original draft, Writing – review & editing

Affiliation The Ehlers-Danlos Society, The Ehlers-Danlos Society – Europe, London, United Kingdom

Cheryl Harris

Roles Data curation, Formal analysis, Investigation, Writing – review & editing

Affiliation Harris Whole Health, Fairfax, Virginia, United States of America

Carole High Gross

Roles Data curation, Formal analysis, Investigation, Writing – review & editing

Affiliation Lehigh Valley Health Network, Palmer, Pennsylvania, United States of America

Megan Karanfil

Roles Data curation, Formal analysis, Investigation, Writing – review & editing

Affiliation The International Consortium on the Ehlers-Danlos syndromes and Hypermobility Spectrum Disorders, The Herds Nerd, Baltimore, Maryland, United States of America

Isabelle Le Ray

Roles Data curation, Formal analysis, Investigation, Methodology, Validation, Writing – review & editing

Affiliation Integrative Systemic Medicine Center, Boulogne-Billancourt and Strasbourg University Hospital, Strasbourg, France

Laura McGillis

Roles Data curation, Formal analysis, Investigation, Writing – review & editing

Affiliation GoodHope EDS Program, Toronto General Hospital, Toronto, Ontario, Canada

Bonnie Nasar

Roles Data curation, Formal analysis, Investigation, Writing – review & editing

Affiliation Registered Dietitian Nutritionist, Ridgewood, New Jersey, United States of America

Melissa Russo

Roles Data curation, Formal analysis, Investigation, Validation, Writing – review & editing

Affiliation Women and Infants Hospital, An Affiliate of Warren Alpert Medical School at Brown University in Providence, Providence, Rhode Island, United States of America

Lorna Ryan

Roles Data curation, Formal analysis, Investigation, Writing – review & editing

Affiliation Lorna Ryan Health, London, United Kingdom

Natalie Blagowidow

Roles Conceptualization, Data curation, Formal analysis, Investigation, Writing – original draft, Writing – review & editing

Affiliation Harvey Institute for Human Genetics, Greater Baltimore Medical Center, Baltimore, Maryland, United States of America

Competing Interests

SP reports receiving honorariums from the Ehlers-Danlos Society. AH reports receiving honorariums from the Ehlers-Danlos Society. NB reports receiving honorariums from the Ehlers-Danlos Society. Other authors report no conflict of interest.