About the Authors

Lisa Belter

Contributed equally to this work with: Lisa Belter, Allison Mazzella, Shannon O’Brien, Jill Jarecki

Roles Conceptualization, Data curation, Formal analysis, Methodology, Project administration, Supervision, Visualization, Writing – original draft, Writing – review & editing

lisa.belter@curesma.org

Affiliation Research Department, Cure SMA, Elk Grove Village, IL, United States of America

Allison Mazzella

Contributed equally to this work with: Lisa Belter, Allison Mazzella, Shannon O’Brien, Jill Jarecki

Roles Conceptualization, Formal analysis, Methodology, Visualization, Writing – original draft, Writing – review & editing

Affiliations Research Department, Cure SMA, Elk Grove Village, IL, United States of America, Division of Penn Translational Medicine and Human Genetics, Perleman Center for Advanced Medicine, Philadelphia, PA, United States of America

Shannon O’Brien

Contributed equally to this work with: Lisa Belter, Allison Mazzella, Shannon O’Brien, Jill Jarecki

Roles Conceptualization, Methodology, Writing – original draft, Writing – review & editing

Affiliation Community Support Department, Cure SMA, Elk Grove Village, IL, United States of America

Jill Jarecki

Contributed equally to this work with: Lisa Belter, Allison Mazzella, Shannon O’Brien, Jill Jarecki

Roles Conceptualization, Methodology, Writing – original draft, Writing – review & editing

Affiliations Research Department, Cure SMA, Elk Grove Village, IL, United States of America, Department of Strategic Risk Management, BioMarin Pharmaceutical Inc., San Rafael, CA, United States of America

Competing Interests

The authors have declared that no competing interests exist.