Young people’s data governance preferences for their mental health data: MindKind Study findings from India, South Africa, and the United Kingdom

• Solveig K. Sieberts ,

  Roles Data curation, Formal analysis, Methodology, Software, Supervision, Visualization, Writing – original draft, Writing – review & editing

  ¶‡ SKS and CM are joint first authors on this work.

  Affiliation Sage Bionetworks, Seattle, Washington, United States of America

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• Carly Marten ,

  Roles Data curation, Formal analysis, Investigation, Methodology, Project administration, Supervision, Validation, Visualization, Writing – original draft, Writing – review & editing

  ¶‡ SKS and CM are joint first authors on this work.

  Affiliation Sage Bionetworks, Seattle, Washington, United States of America

  https://orcid.org/0000-0003-3942-310X

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• Emily Bampton,

  Roles Formal analysis, Investigation, Writing – review & editing

  Affiliation Department of Psychiatry, University of Oxford, Oxford, Oxfordshire, United Kingdom

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• Elin A. Björling,

  Roles Formal analysis, Supervision, Visualization, Writing – original draft, Writing – review & editing

  Affiliation Human Centered Design and Engineering, University of Washington, Seattle, Washington, United States of America

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• Anne-Marie Burn,

  Roles Conceptualization, Formal analysis, Investigation, Methodology, Project administration, Supervision, Writing – review & editing

  Affiliation Department of Psychiatry, University of Cambridge, Cambridge, Cambridgeshire, United Kingdom

  https://orcid.org/0000-0002-0637-2118

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• Emma Grace Carey,

  Roles Formal analysis, Investigation, Writing – review & editing

  Affiliation Department of Psychiatry, University of Cambridge, Cambridge, Cambridgeshire, United Kingdom

  https://orcid.org/0000-0002-2294-7989

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• Sonia Carlson,

  Roles Project administration, Software

  Affiliation Sage Bionetworks, Seattle, Washington, United States of America

  https://orcid.org/0000-0002-1413-4056

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• Blossom Fernandes,

  Roles Investigation, Methodology, Project administration, Supervision, Writing – review & editing

  Affiliation Department of Psychiatry, University of Oxford, Oxford, Oxfordshire, United Kingdom

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• Jasmine Kalha,

  Roles Investigation, Methodology, Project administration, Supervision, Writing – review & editing

  Affiliation Centre for Mental Health Law & Policy, Indian Law Society, Pune, Maharashtra, India

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• Simthembile Lindani,

  Roles Formal analysis, Investigation, Writing – review & editing

  Affiliation Department of Psychiatry, Walter Sisulu University, Eastern Cape, South Africa

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• Hedwick Masomera,

  Roles Formal analysis, Investigation

  Affiliations Department of Psychiatry, Walter Sisulu University, Eastern Cape, South Africa, Nelson Mandela University, Gqeberha, Eastern Cape, South Africa

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• Lakshmi Neelakantan,

  Roles Formal analysis, Investigation, Methodology, Project administration, Writing – review & editing

  Affiliation Department of Psychiatry, University of Oxford, Oxford, Oxfordshire, United Kingdom

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• Lisa Pasquale,

  Roles Project administration

  Affiliation Sage Bionetworks, Seattle, Washington, United States of America

  ⨯
• Swetha Ranganathan,

  Roles Formal analysis, Investigation, Writing – review & editing

  Affiliation Centre for Mental Health Law & Policy, Indian Law Society, Pune, Maharashtra, India

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• Erin Joy Scanlan,

  Roles Project administration

  Affiliation Sage Bionetworks, Seattle, Washington, United States of America

  ⨯
• Himani Shah,

  Roles Formal analysis, Investigation

  Affiliation Centre for Mental Health Law & Policy, Indian Law Society, Pune, Maharashtra, India

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• Refiloe Sibisi,

  Roles Formal analysis, Investigation, Writing – review & editing

  Affiliations Activate Change Drivers ZA, Johannesburg, Gauteng, South Africa, University of Johannesburg, Johannesburg, Gauteng, South Africa

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• Sushmita Sumant,

  Roles Formal analysis, Investigation

  Affiliation Centre for Mental Health Law & Policy, Indian Law Society, Pune, Maharashtra, India

  ⨯
• Christine Suver,

  Roles Conceptualization, Methodology, Supervision, Writing – review & editing

  Affiliation Sage Bionetworks, Seattle, Washington, United States of America

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• Yanga Thungana,

  Roles Formal analysis, Investigation, Supervision

  Affiliation Department of Psychiatry, Walter Sisulu University, Eastern Cape, South Africa

  https://orcid.org/0000-0001-9854-314X

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• Meghasyam Tummalacherla,

  Roles Data curation, Formal analysis, Software, Visualization

  Affiliation Sage Bionetworks, Seattle, Washington, United States of America

  ⨯
• Jennifer Velloza,

  Roles Conceptualization, Methodology, Writing – review & editing

  Affiliations Department of Epidemiology & Biostatistics, University of California San Francisco, San Francisco, California, United States of America, Department of Global Health, University of Washington, Seattle, Washington, United States of America

  https://orcid.org/0000-0001-7242-7415

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• Pamela Y. Collins,

  Roles Conceptualization, Funding acquisition, Supervision, Writing – review & editing

  Affiliations Department of Global Health, University of Washington, Seattle, Washington, United States of America, Department of Psychiatry and Behavioral Sciences, University of Washington, Seattle, Washington, United States of America

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• Mina Fazel,

  Roles Conceptualization, Funding acquisition, Methodology, Project administration, Supervision, Writing – review & editing

  Affiliation Department of Psychiatry, University of Oxford, Oxford, Oxfordshire, United Kingdom

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• Tamsin Ford,

  Roles Conceptualization, Funding acquisition, Methodology, Project administration, Supervision, Writing – review & editing

  Affiliations Department of Psychiatry, University of Cambridge, Cambridge, Cambridgeshire, United Kingdom, Cambridgeshire and Peterborough Foundation NHS Trust, Fulbourn, Cambridgeshire, United Kingdom

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• Melvyn Freeman,

  Roles Conceptualization, Project administration, Supervision, Writing – review & editing

  Affiliations University of Stellenbosch, Stellenbosch, Western Cape, South Africa, Higher Health, Centurion, Gauteng, South Africa

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• Soumitra Pathare,

  Roles Conceptualization, Funding acquisition, Project administration, Supervision, Writing – review & editing

  Affiliation Centre for Mental Health Law & Policy, Indian Law Society, Pune, Maharashtra, India

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• Zukiswa Zingela,

  Roles Conceptualization, Project administration, Supervision, Writing – review & editing

  Affiliation Nelson Mandela University, Gqeberha, Eastern Cape, South Africa

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• The MindKind Consortium ,

  ¶Membership of the MindKind Consortium is provided in the Acknowledgments.

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•  [ ... ],
• Megan Doerr

  Roles Conceptualization, Formal analysis, Funding acquisition, Methodology, Project administration, Resources, Supervision, Visualization, Writing – original draft, Writing – review & editing

  * E-mail: megan.doerr@sagebionetworks.org

  Affiliation Sage Bionetworks, Seattle, Washington, United States of America

  https://orcid.org/0000-0003-2383-5978

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