Diagnostic needs for rare diseases and shared prediagnostic phenomena: Results of a German-wide expert Delphi survey

• Susanne Blöß,

  Affiliation Department of Pediatric Hematology and Oncology, Hannover Medical School, Hannover, Hannover, Germany

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• Christian Klemann,

  Affiliations Center for Chronic Immunodeficiency (CCI), University Medical Center Freiburg, University of Freiburg, Freiburg, Germany, Center for Pediatric and Adolescent Medicine, University Medical Center Freiburg, University of Freiburg, Freiburg, Germany

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• Ann-Katrin Rother,

  Affiliation Department of Pediatric Hematology and Oncology, Hannover Medical School, Hannover, Hannover, Germany

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• Sandra Mehmecke,

  Affiliations Department of Pediatric Hematology and Oncology, Hannover Medical School, Hannover, Hannover, Germany, Department of Neurology, Hannover Medical School, Hannover, Germany

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• Ulrike Schumacher,

  Affiliation DRK Clementinenkrankenhaus, Hannover, Germany

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• Urs Mücke,

  Affiliation Department of Pediatric Hematology and Oncology, Hannover Medical School, Hannover, Hannover, Germany

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• Martin Mücke,

  Affiliation Center for Rare Diseases Bonn (ZSEB), University Hospital of Bonn, Bonn, Germany

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• Christiane Stieber,

  Affiliation Center for Rare Diseases Bonn (ZSEB), University Hospital of Bonn, Bonn, Germany

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• Frank Klawonn,

  Affiliations Ostfalia University of Applied Sciences, Wolfenbuettel, Germany, Helmholtz Centre for Infection Research, Braunschweig, Germany

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• Xiaowei Kortum,

  Affiliation Ostfalia University of Applied Sciences, Wolfenbuettel, Germany

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• Werner Lechner,

  Affiliation Improved Medical Diagnostics IMD GmbH, Hannover, Germany

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• Lorenz Grigull

  * E-mail: Grigull.lorenz@mh-hannover.de

  Affiliation Department of Pediatric Hematology and Oncology, Hannover Medical School, Hannover, Hannover, Germany

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