Psychometric Properties of a Generic, Patient-Centred Palliative Care Outcome Measure of Symptom Burden for People with Progressive Long Term Neurological Conditions

• Wei Gao ,

  * E-mail: wei.gao@kcl.ac.uk

  Affiliation King's College London, Faculty of Life Sciences and Medicine, Department of Palliative Care, Policy and Rehabilitation, Cicely Saunders Institute, London, United Kingdom

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• Vincent Crosby,

  Affiliation Palliative Medicine, Nottingham University Hospitals NHS Trust, Nottingham, United Kingdom

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• Andrew Wilcock,

  Affiliation Palliative Medicine and Medical Oncology, School of Medicine, University of Nottingham, Nottingham, United Kingdom

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• Rachael Burman,

  Affiliation King's College London, Faculty of Life Sciences and Medicine, Department of Palliative Care, Policy and Rehabilitation, Cicely Saunders Institute, London, United Kingdom

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• Eli Silber,

  Affiliation Department of Neurology, Kings' College Hospital, London, United Kingdom

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• Nilay Hepgul,

  Affiliation King's College London, Faculty of Life Sciences and Medicine, Department of Palliative Care, Policy and Rehabilitation, Cicely Saunders Institute, London, United Kingdom

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• K Ray Chaudhuri,

  Affiliation National Parkinson Foundation Centre of Excellence, Kings College Hospital and Kings College, London, United Kingdom

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• Irene J. Higginson,

  Affiliation King's College London, Faculty of Life Sciences and Medicine, Department of Palliative Care, Policy and Rehabilitation, Cicely Saunders Institute, London, United Kingdom

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• on behalf of the OPTCARE Neuro trial

  ¶Membership of the OPTCARE Neuro trial is provided in the Acknowledgments.

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