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Media Coverage of This Article

Posted by PLOS_ONE_Group on 06 Aug 2012 at 20:14 GMT

The following article represents some of the media coverage that has occurred for this paper:

Publication: ActiveQuote
Title: “CBT and GET are cost effective treatments for chro.. | News | ActiveQuote”
http://www.activequote.co...

Publication: BBC News
Title: “BBC News - Chronic fatigue syndrome: Brain training is most cost-effective treatment”
http://www.bbc.co.uk/news...

Publication: Health Canal
Title: “Health News - Two effective treatments for CFS/ME are also cost-effective”
http://www.healthcanal.co...

Publication: Healthcare Today
Title: “New help for ME sufferers | News | Healthcare Today UK”
http://www.healthcare-tod...

Publication: Joy Online
Title: “Chronic fatigue syndrome: Brain training is most cost-effective treatment | Health”
http://lifestyle.myjoyonl...

Publication: King's College London
Title: “Two effective treatments for CFS/ME also cost-effective”
http://www.kcl.ac.uk/iop/...

Publication: Medical Research Council
Title: “Medical Research Council | News | Two effective treatments for CFS/ME are also cost-effective”
http://www.mrc.ac.uk/News...

Publication: NetDoctor.co.uk
Title: “Health News - Two treatments for CFS/ME 'are cost-effective'”
http://www.netdoctor.co.u...

Publication: NHS Choices
Title: “Pacing for chronic fatigue syndrome 'not cost-effective' - Health News - NHS Choices”
http://www.nhs.uk/news/20...

Publication: The British Psychological Society
Title: “Behavioural therapies can help with ME | BPS”
http://www.bps.org.uk/new...

Publication: The Independent
Title: “Two chronic fatigue syndrome treatments offer good value - Health News - Health & Families - The Independent”
http://www.independent.co...

Publication: The Information Daily
Title: “New recommendations for treating fatigue could save economy millions | eGov monitor | The Information Daily”
http://www.egovmonitor.co...

Publication: TopNews Arab Emirates
Title: “2 Cost Effective Ways to Treat CFS | TopNews Arab Emirates”
http://topnews.ae/content...

Publication: UKPA
Title: “The Press Association: Two CFS treatments offer good value”
http://www.google.com/hos...

Publication: WebMD
Title: “CBT 'most effective' for chronic fatigue syndrome (CFS/ME)”
http://www.webmd.boots.co...

If you see any additional coverage of this paper in the press or blogosphere, please reply to this thread and add the link to the article.

Competing interests declared: PLOS ONE Staff

RE: Media Coverage of This Article

AngelaKennedy replied to PLOS_ONE_Group on 07 Aug 2012 at 06:02 GMT

The articles above demonstrate how easily the results of medical studies are misrepresented and exaggerated in all sections of public, medical and academic press and media. As a result of such misrepresentation of this paper (and the PACE study's first Lancet paper), and the unsafe claims to efficacy, from both papers themselves, but then further exaggerated by articles such as those cited above, patients will be put at further risk as they are exhorted to try, what remain dangerous treatments, by doctors, the DWP, and the community at large.

Authors of such studies have an ethical duty to patients, to prevent placing them in danger by taking particular care not to misrepresent or exaggerate their findings or claims when disseminating their studies to the press.

Competing interests declared: Social scientist with interest in research methodology; author of forthcoming book critiquing psychogenic explanations of physical illnesses; parent and carer of woman with chronic illness and disability who became ill as a child.

RE: RE: Media Coverage of This Article

MEMatters replied to AngelaKennedy on 07 Aug 2012 at 12:35 GMT

Saga
ME: is cognitive behavioural therapy therapy best?
http://www.saga.co.uk/hea...

No competing interests declared.

RE: RE: Media Coverage of This Article

MEMatters replied to AngelaKennedy on 07 Aug 2012 at 12:36 GMT

Saga
ME: is cognitive behavioural therapy therapy best?
http://www.saga.co.uk/hea...

No competing interests declared.

RE: RE: Media Coverage of This Article

MEMatters replied to AngelaKennedy on 07 Aug 2012 at 12:37 GMT

Saga
ME: is cognitive behavioural therapy therapy best?
http://www.saga.co.uk/hea...

No competing interests declared.

RE: Media Coverage of This Article

MEMatters replied to PLOS_ONE_Group on 07 Aug 2012 at 12:42 GMT

NICE backs CBT for chronic fatigue syndrome

http://www.nursingtimes.n...

No competing interests declared.

RE: RE: Media Coverage of This Article

IiME replied to MEMatters on 07 Aug 2012 at 13:35 GMT

NICE may back this treatment for CFS (masquerading as for ME).

But NICE was emphatically rejected by the ME patient community (save for two charities who have taken government funds in the past and who we feel are not representative of ME patients).

NICE were even taken to judicial review regarding their guidelines - by ME patients.

NICE completely ignored all biomedical research about ME and NICE guidelines cannot be used as any standard for treating ME.


References:
1] ME/CFS is (bio)logically explainable; Standard treatment is ineffective, and even potentially harmful. - Frank N.M. Twisk and Dr. Michael Maes

http://www.investinme.org...


2] Invest in ME Response to NICE Guidelines
http://www.investinme.org...


3] Memo to NICE re: CG53 revision
http://www.investinme.org...

No competing interests declared.

RE: Media Coverage of This Article

PLOS_ONE_Group replied to PLOS_ONE_Group on 10 Aug 2012 at 21:48 GMT

The following article represents some of the media coverage that has occurred for this paper:

Publication: Nursing Times
Title: “NICE backs CBT for chronic fatigue syndrome | News | Nursing Times”
http://www.nursingtimes.n...

If you see any additional coverage of this paper in the press or blogosphere, please reply to this thread and add the link to the article.

Competing interests declared: PLOS ONE Staff

RE: RE: Media Coverage of This Article

Kati1 replied to PLOS_ONE_Group on 24 Aug 2012 at 12:45 GMT

Media propaganda for this paper have reached all around the globe and is causing much harm to the ME/CFS population.

- there are currently other treatments for ME, namely Ampligen and Rituximab, so CBT, GET and pacing are not the only options as the authors seem to constrain to 3 non- pharmacological treatments
- Patients use pacing in order to maximize their time attending chores or errands if they can get out. Pacing is free and can be learned through peers.
- The authors declare conflics of interests directly linked to this paper.
-this group of authors always have larger than life media coverage, but other ME biomedical research does not get coveraget all. This should investigated as of why.

Competing interests declared: i am a patient with ME currently on Rituximab.
CBT does nothing for my 4.5% NK cell function and my chronic state of EBV. GET has thrown me in 2-3 months long relapses.