https://orcid.org/0000-0001-7154-2585
About the Authors
- Sarah R. Rivera
-
Roles Project administration, Supervision, Writing – original draft, Writing – review & editing
* E-mail: riverapharmd@gmail.com
Affiliation Department of Clinical Services, Optum Lifesciences Wolfeboro, Wolfeboro, New Hampshire, United States of America
- Sumit K. Jhamb
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Roles Data curation, Formal analysis, Writing – original draft, Writing – review & editing
Affiliation Department of Clinical Services, Optum Global Solutions, Noida, Uttar Pradesh, India
- Hoda Z. Abdel-Hamid
-
Roles Investigation, Methodology
¶‡ These authors also contributed equally to this work
Affiliation Division of Child Neurology, Children's Hospital of Pittsburgh of UPMC, Pittsburgh, Pennsylvania, United States of America
- Gyula Acsadi
-
Roles Investigation, Methodology
¶‡ These authors also contributed equally to this work
Affiliation Department of Neurology, Connecticut Children's Medical Center, Farmington, Connecticut, United States of America
- John Brandsema
-
Roles Investigation, Methodology
¶‡ These authors also contributed equally to this work
Affiliation Division of Neurology, Children’s Hospital of Philadelphia, Perelman School of Medicine at the University of Pennsylvania, Philadelphia, Pennsylvania, United States of America
- Emma Ciafaloni
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Roles Investigation, Methodology
¶‡ These authors also contributed equally to this work
Affiliation Department of Pediatric Neuromuscular Medicine, University of Rochester Medical Center, Rochester, New York, United States of America
- Basil T. Darras
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Roles Investigation, Methodology
¶‡ These authors also contributed equally to this work
Affiliation Department of Neurology, Boston Children’s Hospital and Harvard Medical School, Boston, Massachusetts, United States of America
- Susan T. Iannaccone
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Roles Investigation, Methodology
¶‡ These authors also contributed equally to this work
Affiliation Department of Pediatrics, UT Southwestern, Dallas, Texas, United States of America
- Chamindra G. Konersman
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Roles Investigation, Methodology
¶‡ These authors also contributed equally to this work
Affiliation Department of Neurosciences, University of California, San Diego, San Diego, California, United States of America
- Nancy L. Kuntz
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Roles Investigation, Methodology
¶‡ These authors also contributed equally to this work
Affiliation Department of Pediatrics, Ann & Robert H Lurie Children’s Hospital, Chicago, Illinois, United States of America
- Craig M. McDonald
-
Roles Investigation, Methodology
¶‡ These authors also contributed equally to this work
Affiliation Department of Physical Medicine & Rehabilitation, UC Davis Health, Sacramento, California, United States of America
- Julie A. Parsons
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Roles Investigation, Methodology
¶‡ These authors also contributed equally to this work
Affiliation Department of Pediatrics and Neurology, University of Colorado School of Medicine, Aurora, Colorado, United States of America
- Carolina Tesi Rocha
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Roles Investigation, Methodology
¶‡ These authors also contributed equally to this work
Affiliation Department of Neurology, Stanford University, Palo Alto, California, United States of America
- Craig M. Zaidman
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Roles Investigation, Methodology
¶‡ These authors also contributed equally to this work
Affiliation Department of Neurology, Divisions of Child Neurology and Neuromuscular, Washington, University in St. Louis School of Medicine, St. Louis, Missouri, United States of America
- Russell J. Butterfield
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Contributed equally to this work with: Russell J. Butterfield, Anne M. Connolly, Katherine D. Mathews
Roles Investigation, Methodology, Validation, Writing – review & editing
Affiliation Department of Neurology and Pediatrics, University of Utah, Salt Lake City, Utah, United States of America
- Anne M. Connolly
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Contributed equally to this work with: Russell J. Butterfield, Anne M. Connolly, Katherine D. Mathews
Roles Investigation, Methodology, Validation, Writing – review & editing
Affiliation Department of Neurology, Nationwide Children’s Hospital, Columbus, Ohio, United States of America
- Katherine D. Mathews
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Contributed equally to this work with: Russell J. Butterfield, Anne M. Connolly, Katherine D. Mathews
Roles Investigation, Methodology, Supervision, Validation, Writing – review & editing
Affiliation Departments of Pediatrics, University of Iowa Carver College of Medicine, Iowa City, Iowa, United States of America
Competing Interests
SRR and SKJ are currently employed by Optum. Sarepta funded this study. This does not alter our adherence to PLOS ONE policies on sharing data and materials.