About the Authors

Miriam Galvin

GALVINMI@tcd.ie

‡ Joint First Authors

Affiliation Academic Unit of Neurology, Trinity Biomedical Sciences Institute, Trinity College Dublin, Ireland

Padhraig Ryan

‡ Joint First Authors

Affiliation Department of Health Policy and Management, Trinity College Dublin, Ireland

Sinead Maguire

Affiliation National ALS ClinicDepartment of Neurology, National Neuroscience Centre Beaumont Hospital, Dublin, Ireland

Mark Heverin

Affiliation Academic Unit of Neurology, Trinity Biomedical Sciences Institute, Trinity College Dublin, Ireland

Caoifa Madden

Affiliation Academic Unit of Neurology, Trinity Biomedical Sciences Institute, Trinity College Dublin, Ireland

Alice Vajda

Affiliation Academic Unit of Neurology, Trinity Biomedical Sciences Institute, Trinity College Dublin, Ireland

Charles Normand

Affiliation Department of Health Policy and Management, Trinity College Dublin, Ireland

Orla Hardiman

Affiliations Academic Unit of Neurology, Trinity Biomedical Sciences Institute, Trinity College Dublin, Ireland, National ALS ClinicDepartment of Neurology, National Neuroscience Centre Beaumont Hospital, Dublin, Ireland

Competing Interests

I have read the journal's policy and the authors of this manuscript have the following competing interests. OH is Editor in Chief of the journal Amyotrophic Lateral Sclerosis and the Frontotemporal Degenerations, and a member of the editorial board of The Journal of Neurology, Neurosurgery and Psychiatry. This does not alter our adherence to PLOS ONE policies on sharing data and materials. MG, PR, SM, MH, CM, AV, CN report no conflicts of interest. We wish to confirm that there are no known competing interests associated with this publication and there has been no significant financial support for this work that could have influenced its outcome.

Author Contributions

Conceptualization: MG OH. Data curation: MH AV. Formal analysis: MG PR SM OH. Funding acquisition: OH. Investigation: MG PR SM MH CM AV. Methodology: MG PR OH. Project administration: MG SM MH AV. Resources: OH. Software: PR. Supervision: MG CN OH. Validation: PR SM OH. Visualization: MG PR OH. Writing – original draft: MG PR OH. Writing – review & editing: MG PR SM MH CM AV CN OH.