About the Authors

Olalekan Lee Aiyegbusi

Affiliations Centre for Patient Reported Outcomes Research, University of Birmingham, Edgbaston, Birmingham, United Kingdom, Institute of Applied Health Research, University of Birmingham, Edgbaston, Birmingham, United Kingdom

Derek Kyte

d.g.kyte@bham.ac.uk

Affiliations Centre for Patient Reported Outcomes Research, University of Birmingham, Edgbaston, Birmingham, United Kingdom, Institute of Applied Health Research, University of Birmingham, Edgbaston, Birmingham, United Kingdom

Paul Cockwell

Affiliations Centre for Patient Reported Outcomes Research, University of Birmingham, Edgbaston, Birmingham, United Kingdom, Department of Renal Medicine, University Hospitals Birmingham NHS Foundation Trust, Queen Elizabeth Hospital Birmingham, Edgbaston, Birmingham, United Kingdom

Tom Marshall

Affiliations Centre for Patient Reported Outcomes Research, University of Birmingham, Edgbaston, Birmingham, United Kingdom, Institute of Applied Health Research, University of Birmingham, Edgbaston, Birmingham, United Kingdom

Adrian Gheorghe

Affiliation Oxford Policy Management Ltd, Oxford, United Kingdom

Thomas Keeley

Affiliation PAREXEL International, London, United Kingdom

Anita Slade

Affiliations Centre for Patient Reported Outcomes Research, University of Birmingham, Edgbaston, Birmingham, United Kingdom, Institute of Applied Health Research, University of Birmingham, Edgbaston, Birmingham, United Kingdom

Melanie Calvert

Affiliations Centre for Patient Reported Outcomes Research, University of Birmingham, Edgbaston, Birmingham, United Kingdom, Institute of Applied Health Research, University of Birmingham, Edgbaston, Birmingham, United Kingdom

Competing Interests

OLA is funded by the Health Foundation’s PhD Awards for Improvement Science. DK is funded by the National Institute for Health Research (NIHR) Fellowship. The views expressed in this publication are those of the author(s) and not necessarily those of the NHS, the National Institute for Health Research, Health Education England or the Department of Health. The funder had no role with respect to study design; collection, management, analysis, and interpretation of data; writing of the report; and the decision to submit the report for publication. TM is partly funded by the NIHR through the Collaborations for Leadership in Applied Health Research and Care for West Midlands (CLAHRC-WM). This paper presents independent research and the views expressed in this publication are not necessarily those of the NIHR, the Department of Health, NHS Partner Trusts, University of Birmingham or the CLAHRC-WM Management Group. AG is employed by Oxford Policy Management Ltd. TK is employed by PAREXEL International. MC reports grants from the NIHR, Macmillan Cancer Support, personal fees from Ferring and Astellas Pharma, outside the submitted work; and co-Chairs the International Society for Quality of Life Research Best Practices for PROs in Trials Taskforce. These affiliations do not alter our adherence to PLOS ONE policies on sharing data and materials.

Author Contributions

Conceptualization: MC DK PC TM OLA. Data curation: OLA TK AG AS. Formal analysis: OLA AS. Funding acquisition: MC DK PC TM. Investigation: OLA TK AG AS. Methodology: MC DK PC TM OLA. Project administration: MC DK PC TM OLA. Supervision: MC DK PC TM. Visualization: MC DK PC TM OLA. Writing – original draft: OLA. Writing – review & editing: MC DK PC TM OLA TK AG AS.